Transplant Patients - SCT/BMT - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

1,772 members799 posts

Transplant Patients - SCT/BMT

Tinkerbellcgy profile image
7 Replies

Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you.

NOTE: I have included Bone Marrow Transplant patients as well although I don't know of any Non-Hodgkins Lymphoma patients who have undergone a BMT.

Written by
Tinkerbellcgy profile image
Tinkerbellcgy
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Cjjn3 profile image
Cjjn3

Hi, yes I am scheduled to have a BMT in September, and I have NHL. It's scary, but I don't have other options. As I have mentioned before I have Cutaneous T-Cell with Sezary. I get chemo every six weeks, but it's just a band aid and doctors do not know how long they can mask symptoms for.So....I'm taking the plunge, but very scared!!

Tinkerbellcgy profile image
Tinkerbellcgy in reply to Cjjn3

Thank you for responding. You are the first NHL patient that I know of who is slated for a BMT. It was my understanding that a BMT was only performed on Leukemia patients.

I just realized that I don't know how to message you on this board so below is the link to the FB Transplant support group I was speaking of. Please let them know that you got the link from Liz Madgett.

facebook.com/groups/bonemar...

1Anj1 profile image
1Anj1

My brother has T cell histiocyte rich B cell lymphoma, stage 4. He had an autologous stem cell transplant about 18 months ago and relapsed after about 16 months.

We are now going to have a donor stem cell transplant very shortly and I'm the donor.

This not where we would have liked to be. The toxicity on the pre chemo and the procedure itself is phenomenal.

The only thing he has going for him is his age.

Tinkerbellcgy profile image
Tinkerbellcgy in reply to 1Anj1

All the very best for a successful transplant this time. Both you and your brother may find the Facebook transplant support page beneficial. The link is posted above in this thread.

Liz

1Anj1 profile image
1Anj1

Thanks Liz,

I appreciate your reply. Fingers and toes crossed it goes well.

Reem-ayoub profile image
Reem-ayoub

Liz...it's been a while since I posted here. Raja had his SCT and is now a bit over a month since receiving his stem cells! He is doing ok. Still has a long way to get back his energy and appetite. We are grateful to be able to go into remissionnhoping it will be a long one! I did joint the Facebook group and another for Mantel Cell Lymphoma. Good to know you are doing well! All the best!

Tinkerbellcgy profile image
Tinkerbellcgy in reply to Reem-ayoub

Hi Reem,

It's nice to hear from you. I am glad to hear that the worst is behind Raja and each day will get better.

Feel free to PM me on Facebook to let me know how both of you are doing.

Liz

You may also like...

Auto Stem Cell transplant?

of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to...

Post transplant feedback

Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain...

Advice on Diet and supplements to keep in remission

Mantle Cell Lymphoma in July 2015 and underwent RCOP and stem cell transplant with my own cells in...

Relapsed Mantle Cell Lymphoma--I'm new here!

C-VAD chemo with Rituxin and then had a stem cell transplant in October, 2008. I was in remission...

My search for the perfect anti lymphoma diet

diagnosed with Mantle cell lymphoma in July 2015 and had R Chop and a stem cell transplant. One...