I'm new here: I have been in a fight... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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I'm new here

Robcampbell profile image
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I have been in a fight for over a year now with large diffused B cell lymphoma....and it has finally taken its toll on me....my body can no longer take chemo and the cancer has become resented to the chemo...I've been in a clinical trial and even that almost did me in....is there a treatment out there that doesn't have chemo in it and that will not cause my counts to drop so low that I become septic or end back up in the hospital in septic shock....my wife is taking me home on palliative care because we are out of options here

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Robcampbell
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R-16728 profile image
R-16728

Sorry to hear of your plight. I also reached a point where chemo wouldn't work. I've been on a Zydelig trial for 18 months without any bothersome side effects except loose stools.

wmay13241 profile image
wmay13241

Consider a CAR-T clinical trial. My wife who has follicular lymphoma has been in complete remission for 9 months - and counting.

2007winner profile image
2007winner

Have you tried healthy life blogs?

rforbes420 profile image
rforbes420

Cannabis oil...whole plant Cannabis oil, B17, and immune support mushroom supplement you can get on Amazon. I'm about to also try Liposomal Vitamin C. Rebecca's Non Hodgkins Lymphoma Journey on Facebook. 20 + yr follicular 8+ year diffuse large B cell survivor. Did R CHOP chemo in 2014. 4 treatments.

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