What's the main piece of advice you w... - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

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What's the main piece of advice you would give someone newly diagnosed with NHL?

krayburn profile imagekrayburnPartner34 Voters

Please select all that apply:

15 Replies
Vukelima1 profile image
Vukelima1

Trust in the Lord with all thine heart and lean not unto thine own understanding.

Mitzie profile image
Mitzie

Don't panic!

laylalulu profile image
laylalulu in reply to Mitzie

That's what I was feeling and wanted to say too hang in there

aviatorcase profile image
aviatorcase

I was diagnosed with "T Cell" Lymphoma. Quite a deadly diagnosis. I did go the standard oncology / radiation route, but before that happened, I went to a Doctor of Natural Medicine. She was formerly with the same hospital and worked in oncology. She advised me on some life style changes to make; changed my diet around; advised me on whet to do to strengthen my body for the ordeal ahead; set me on a regime of supplements, to clear my system and improve my health and I survived the chemo & radiation quite well, without ever getting nauseated, never lost the hair off my head, but I did loose some body hair and shaving went down to about every third day. and I am now 2 years in remission and doing well. When others were dropping off all around me, I cam through this well and surprisingly without side effects. I will admit that I do tire quite easily. It is a common side effect. I am not a lazy person, but find that I do tire without having put ion what I would have previously only thought of as being a partial work day. I do sleep well though. I do not believe it would have gone so well without the intervention and direction of the Natural Doctor. I highly advise following this route. Just be careful and find one who is well trained and has done time on rounds in a hospital or clinical setting.

Shar0n profile image
Shar0nVolunteer in reply to aviatorcase

Aviatorcase - this is complementary medicine at its best - working alongside your medical team to maximise your ability to fight your illness.

Hwcpa profile image
Hwcpa

ThAnk one treatment at a time. Remember 3/4 of the battle is in the mind. You can live with it.

dkpratt profile image
dkpratt

Seek medical attention immediately...don't wait; if you have episodes of sweating at night see a doctor...the sooner you get medical attention the better.

Janekite2015 profile image
Janekite2015

Don't panic. Research your subtype with reputable sources such as Mayo and Cleveland Clinic, then move forward.

wmay13241 profile image
wmay13241

Always do your homework and identify your next treatment in case your NHL progresses.

Ccallon profile image
Ccallon

Make sure you lean heavily on your faith and don't be too proud to ask for help from you loved ones.

jamoza profile image
jamoza

Tell the person closest to you everything you're feeling and fearing. Then take an inventory of your lifestyle and diet and formulate a plan to get yourself in the best shape to take on the condition and any treatment. Wishing you all the best

Shar0n profile image
Shar0nVolunteer

Know that it's completely normal to be shocked when you have received the diagnosis and for some time afterwards until you reorientate yourself to the new situation. Ask questions; do your own research online but don't exhaust yourself going around in circles. Avoid websites that claim there is a magic bullet type cure - you need facts based on research.

Make your own notes to set out on paper what you understand about your condition. Be clear on your treatment options by asking your doctor.

I found that bringing my husband with me helped at the beginning when I was in shock as he remembered things that I couldn't . However, I prefer to talk directly to my doctor now as he was inclined to talk to my husband a bit too much before, and his time is limited with a roomful of patients outside - many more ill than I am.

Resolve to maximise the health that you have; this will strengthen you mentally and physically for whatever lies ahead. That's all I can think of at the moment.

Bhlool profile image
Bhlool

Stay positive. It's long hard journey. Treatments are stander. All toxic chemicals. So eat good and drink a lot of clean water God bless.

oncloudnine profile image
oncloudnine

My wife was always at my side, and I can't imagine going through this without her love & support.

Robin-Newman profile image
Robin-Newman

Don't panic. Don't compare yourself to others. It affects every one differently. Seek out a listening ear. Your mate may need a listening ear as well. NHL diagnoses affects you and your mate.