iron infusion

[Viviola]

Just been notified that I need to start having iron infusions. Anyone had these? Any info/advice anyone can give much appreciated. Any side effects?

Thanks

[googie]

I was going to have this done, but didn't need it in the end. My doctor told me it was much easier than when they used to do the injections. You just sit there, they plug you in and the iron goes in. He didn't mention any side effects to me. Not sure about constipation though, although that might just be a side effect people get when on the tablets,although I have never had a problem with this. Let us know how it goes x

[tfc5]

Have they said whether this will be whilst on dialysis ? I had an iron via an injection and that was fine but I believe some people say they get a metallic taste in their mouth and yes ive heard constipation and or diarrhoea but I got none of these

[Viviola in reply to tfc5]

Thanks for your response. Not yet on dialysis (and hoping to avoid it altogether) as hopeful that my brother is a suitable living donor. Although creatinine levels are still only 308 my eGFR has now dropped to 14. Seem to be experiencing other health issues as a result of CKD like hyperparathyroidism and low iron. Not sure yet how often I will need the iron infusion - guess I'll find that out next week.

[ROXE]

Hi, I am at end stage kidney failure and had during the last 3 months twice iron treatment. The first time was 5 weeks once a week and the second time was 3 weeks also once a week. No metallic taste in my mouth, and no side effects, in the contrary, was feeling really tired before I got it done and not anymore after!!!!

Hope you will be fine too,

Regards

Eva

[ROXE]

By the way, before they used to put it with saline solution and used to take long time to get to the body, now they just put it with an injection that should take between 10 and 20 minutes, and you get to talk for a while with the nice nurse giving it to you ;). You arrive, they put the via, then check with saline water that it working and after they put the iron. (My advise... make sure they check it first with the saline water, not all of them do specially if they are in a hurry, happend twice to me, and when they tried to put the iron discovered that it was not siting right in the vein what gave me a horrible purple spot under my skin but the worst is the pain!!!. Also if while trying first with the saline water feels weird of pain, do tell them!!)

Good luck!!

Eva

[adorrian]

Hi, I'm CKD5 and am on Haemodialysis and i have iron (Venofer) once every two weeks - done during my haemo. Absolutely no issues for me, and i feel a lot better for it.

Best of luck.

[Viviola]

Thanks to everyone who has responded and offered advice. Hoping the iron infusion will give me a bit more get and go as it seems to have got up and gone!

[justagirl]

I've been having it for a while (monthly) through my haemo, no side effects although when I'm getting it there is a strong taste of liquorice! Hopefullly it should help your energy levels

[Viviola in reply to justagirl]

Hi justagirl. Thank you for you reply. I quite like liquorice as it goes!

[justagirl]

Thats's lucky then! I don't think everybody can but I find it quite funny so not the worst side effect in the world! Hope it all goes well for you x

[chelseagirl]

Hi yes I've had them quite a lot, last time yesterday. Have it along with epo. No side effects accept the licorice taste yum yum. Good luck

[tjj70]

My husband has iron infusion quite often. He says he sometimes gets metallic taste in his mouth but definitely gives him more energy. He does it through his home dialysis machine rather than an injection. Hope it goes well.