Hello, I'm Hannah, I'm 43 yrs old. I'm new to this site, and in fact all of this. I've already gained a lot from reading peoples posts, and it's given me the courage to reach out, thank you.
I have previously been fit and well, but I became unwell at the end of August with extreme fatigue, nausea, loss of appetite etc. Bloods showed I had creatinine 174 and GFR 23. I had a biopsy, which showed I had Interstitial Nephritis, likely caused by Aspirin or Ibuprofen. Unfortunately the biopsy was delayed by a few weeks due to a spurious blood infection result and a stay in hospital treating something I didn't have. All the while my kidneys were no better.
I've been now been on Prednisolone since beginning of October, started on 50mg but now thankfully down to 15mg. I've had unpleasant side effects, but know they are necessary. They've improved my situation which is great, GFR now 44.
Biopsy showed scarring, and at appointment last week my consultant said this may be about as good as it gets, with maybe some slight improvement. I am disappointed with this result, as it seems this is stage 3 and at first I was given the impression this is a temporary thing, I don't have kidney disease and it was all going to go away. I am now left feeling quite differently.
I've been given little information from consultant, I have never actually been told I have CKD stage 3, i'm just working from my numbers and what I have read. So i suppose my questions are these, if anyone has any input on them i'd be really grateful.
1) I was diagnosed initially with Acute Kidney Injury and was told it would go away with steroids, now I have GFR of less than 50, this has gone on for over 3 months and is not likely to change, does this mean I have Chronic Kidney Disease at stage 3?
2) Consultant said I will be fine to live a normal life, work, diet all normal. However, I am still very much not myself, quite tired, unable to work at the moment, can't drive due to nervousness, I jump at the slightest noise, and have the shakes constantly. They are putting this down to the steroids, but I was like this before I started taking them. Does anyone else have these symptoms with or without steroids? I just don't trust that I am going to return to normal.
I've had a battle with food and acid, and loss of appetite throughout, but appetite is coming back, so thats a good sign.
I totally understand there are people in a much worse situation than me, but this has rocked my world a bit. I'm sorry this is such a long post, but thought best to give the whole picture. Thanks for reading.