I have stage 4 PKD. Saw nephrologist first time on Friday. I have been following a program for the past 4 months and lowered my creatinine from 3.9 to 3.2 and raised my GFR to 15. Have lowered my blood pressure to 120s/80s. Was very proud of my accomplishments but he didn't even mention them. Just wants to put me on bp med(calcium channel blocker) which I was just reading about that shouldn't be given to PKD patients. Also said could raise my creatinine and I've worked so hard to lower it. Not sure what to do. Don't want to take bp meds, I feel they may do more harm than good. Anyone else have this problem?
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