Anaemia : I have stage 3 kidney disease... - Early CKD Support

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Anaemia

bowler profile image
9 Replies

I have stage 3 kidney disease [ 37 ] creatanine 127 platelets below normal at 120.

I have been feeling very tired recently but a blood test revealed that I'm not anaemic.

However I noticed on the print out sheet it stated " Rouleaux formation present, Red cells show Acanthocytosis " my Dr. didn't seem concerned and said I could have another blood test in 6 weeks time. Has anyone heard of this ? I did google it and it seems it could be a form of anaemia, the info was a bit confusing or I'm a bit thick !!!! I am a bit worried as I know that with kidney disease you can get anaemic.

bowler

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cmcginily profile image
cmcginily

Hi bowler

I am no expert in bloods but sometimes the strange things you have seen can just be there because you have had a mild infection. Wait and see what the bloods show in six weeks before you start worrying. I am just hanging on to stage 3 renal failure and although all the doctors tell you that you should have no symptoms they are wrong. Tiredness is a feature of kidney failure so it could just be that simple. I just listen to my body. Hope all goes well just rest when you need to.

Best wishes Christine.

bowler profile image
bowler in reply to cmcginily

Thank you cmcginily and Bluebellgirl

It could be that I had/have a mild infection, I do have gallstones so maybe that's why the "Acanthocytosis" showed up,? maybe my gallbladder is inflamed ? [ I have a hospital appointment next week re the gallbladder ] I also have Giant Cell Arteritis which also causes inflammation, but the inflammatory markers were ok with that, Perhaps I am worrying too much and will wait till I have another b/test, I did have an ECG not long ago which was fine, however I do have hypertension which is controlled by Ramipril.

I did have a feeling that the Dr. I saw [ Locum ] didn't know much about Acanthocytosis !!

denny123 profile image
denny123 in reply to cmcginily

im hanging on to stage 3 also.crearine 1.9 bun 38 gfr 36

Bluebellgirl profile image
Bluebellgirl

I too have stage 3 CKD and only have one kidney. I also had a bowel resection. Both last year. This week I went to the GP as I was feeling very tired and cold all the time. I also had headaches and was breathless. He checked me over and said I had a heart murmur. Perhaps you need to be checked over too. I hope you get things sorted soon. Take care. xx

Lilbill profile image
Lilbill

Hi, at a gfr of 37 I was probably slightly more tired than normal (I'm 15 gfr now) - could it be possible that you are starting a cold or something like that? Since having reduced kidney function any type of cough or cold has really affected my energy levels. Just a thought..... x

denny123 profile image
denny123 in reply to Lilbill

How long have you had gfr of 37,mine is 34

bowler profile image
bowler in reply to denny123

My gfr has fluctuated over the past 5 years ranging from 45 to 37 I had a blood test a few days ago and it was 38, next week it could be

40 !! My creatinine is always a bit high, at the moment it is 127

Lilbill profile image
Lilbill

My gfr is now at 15. I had a nephrectomy at about 35% 6 years ago and my function has gradually reduced since then. I'm now waiting for my second nephrectomy and then I'll be on immediate dialysis and then hopefully a transplant (from my sister). Hope you keep stable.

bowler profile image
bowler in reply to Lilbill

All my best wishes for your future transplant, and not forgetting your sister

regards bowler

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