I've been living in France for the last 23 years. Up until marche 2010 I had a very active working life.
Unbearable left kidney pain put a stop to my work and my life. Although I have many urine and blood tests that show problems I juste cannot find a Dr that will accept that I have a problem that needs to be found.
I have ; Bood,protien,sodium urate crystals and calcium phosphate crystals in my urine,all of which can be seen with a naked eye when in a crisis. The level of "coproporpherine I " was found to be 250% the max. "Coproporpherine III " was normal.
; Vitamine 25OHD 7.0 ng/ml
; "Leucocytes et Neuttrophiles" are very often very high (I was told in one case it is
probably a mistake at the laboratory)
; "MYPGOBINEMIE" 6.0 ug/l
; HTA when in crisis 240 / 160 and when not 115 / 80 - 125 / 85
; " C R P " often high up to 400% max
; cholesterol variable from normal high to very high
; "Carboxy HB 5.5 %"
It is very difficult for me to understand exactly the meaning of these tests and if anyone can be of any help it would be very much apprieciated. The Dr's at present contradict themselves and each other trying to fob me of with any excuse to try and convince me that everything is ok and that there is no reason that I should be in pain.
I am at present taking "oxycontin LP" 20 mg morning and evening (LP means slow release) and "oxynorm" 10 mg every 4 hours when in a crisis. When the pain is still unbearable,which is very rare,I go to hospital and I am given intrevienus pain killers until calmed and then I am told to go home and speak to my GP,whom has sent me to many specialists who send me back to her saying "there is nothing wrong with you sir, goodbye".
I know that I am not the only person who is,or has gone through hell to finally be diagnosed with something. If anyone has had very similar symptoms or can make sense out of all this,please do contact me.
I want to be able to fight but I need to know what I'm fighting against.
Thanks in advance.