I am hopeing someone can help. I have breathing difficulties breathing when I do most activites and my muscles hurt badly. The last time I saw my kidney doctor he said it wasn't my ckd (gfr 22) he said there was something else going on. Today I saw lung specialist and predictably I have to go down the ct scan route. He did say that as I was going on a plane befooore I saw him again he told me to make sure there was oxygen on board. Does anyone else have these problem?