Need some advice, should I start dialysis?

Hi everyone. I'm a longer time reader, first time poster! I would appreciate hearing your experiences of starting dialysis. I have CKD stage 5 with a gfr of between 9-12. I also have anaemia which I am going to have a blood transfusion to try to help with this. My plan for dialysis is to have PD at home.

I have been feeling pretty awful now for a few months slowly getting more and symptoms. All the usual try this and that have been tried and haven't made a difference. I have now agreed with my consultant to have the catheter put into my tummy ready to start dialysis should I continue to feel awful. I am now quite nervous about the situation.

Basically, my question is does dialysis help make you feel better? Do you notice a difference?

I don't want to start dialysis if I am not going to feel a benefit from it.

Thanks everyone I would appreciate hearing about your experiences. ❤️

10 Replies

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  • Hi Melirm,

    I started CAPD 2 years ago with a gfr of 9. Transformed my life, much more energy, still

    Working full time at 70.

    Unfortunately I have have peritonitis 6?times and two of catheters. Was so good for me but for some reason peritonitis would not clear up so have recently had an A V fistula and hope to start home heamo in 4-6 weeks time.

    Dialysis for me was a game changer and can't wait to start the home heamo

  • at home. Have been very low having not been on any form of dialysis for 6?weeks and another few weeks to go before I start home heamo.

    You hospital dialysis of team will support you all thee way. Life will be good again

    Philip

  • Hi Philipjm, thanks for answering. I am 45 and trying my best to work full time but am struggling. I guess I have felt so tired and awful for so long it's hard to believe that it will change, hence my worries about starting a new life long intrusive treatment. I just need to know it will make a difference.

    Thanks for sharing your experience. I really appreciate it. Good luck with your new treatment. x

  • I am too old to be considered a candidate for dialysis, but if I were eligible, I would definitely do it. I base my opinion on what I've read here from readers who are on dialysis.

  • Its generally thought that if your kidneys are defiantly going to fail starting dialysis sooner is better. Waiting and waiting till the last minute risks damage to the heart.

    Dialysis SHOULD make you feel better. PD has a high risk of infection so you will need to be scrupulous about the hygiene around your catheter.

    A friend of mine did PD for nearly 10 years without any infections, and was able to carry on pretty much normally.

    Its also one of the most portable types of dialysis so you can travel, take it with you and fluids will be delivered to the hotel.

    Many people start on PD (APD or CAPD)

    Heres a quiz that can help you compare the different kinds of dialysis

    davita.com/treatmentevaluator/

    Also how PD works

    kidneypatientguide.org.uk/p...

  • Hi JMan, thanks for your reply and the web links which are really helpful. wishing you well. x

  • Hi melirm

    It does sound like the time has come for dialysis. PD didn't suit me, I've been on dialysis for 26 years now and still work. Yes, you should feel better once you have got used to the treatment. Good luck.

  • Hi Melim

    If you are stage 5 you are on the point of total kidney failure. If you feel unwell, back pains, difficulty walking, sometimes chest pains, breathlessness and generally feeling s... that is kidney failure and dialysis will make you better. Kidneys filter out toxins and pass them out in your urine. That is not happening for you now. The toxins are building up in your body and poisining you at the moment. Dialysis will stop that.

    You will probably start on CAPD or manual peritoneum dialysis. APD employs a machine that you use for approx 10 hours overnight I was on APD for about a year , but it did not suit me, I retained fluid and put on weight. I went to Hemodialysis and reduced the fluid weight gain in about a month. Later I went onto HHD home hemodialysis and the nocturnal HHD.

    Good luck I am sure you will feel better. Incidentally I am 75.

    Chris

  • Hi chris,

    Thanks for your reply.

    That's exactly how I'm feeling, so I guess it is time. I just need some reassurance I guess, it feels like such a big step. The plan is to start on APD so that I can do at home overnight and still go to work. Fingers crossed.

    Thanks everyone x

  • I started PD Dialysis 5 months ago. No infections yet. Yes you will feel better I did It was like a cloud was lifted and I could think clearly again. I’m hoping for a transplant. I still work but it’s getting harder as I still get so tired and worn out quickly. And it takes me longer to recover but I’m still better than before. Yes it a lot of stress just hooking everything up I just do it the same way every time. I’ll do PD As long as I can

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