I've joiuned the Haemo club


After 10 years of PD my peritonium membrane has given up. I am now a member of the HD club. Am suffering a few problems with the switch: constantly tired and have occasional chest pains which are keeping cardiologists from going bust (but not solving....).. They can be excruciating at times (usually early morning or late afternoon) and only careful deep breathing seems to help. I learn from another HD patient that this occurred to him and it feels like you are heading for expiry! Can take a few months to dissipate. Anyone else had these symptoms? Now my potassium is also high and I thought HD removed potassium better than PD.

2 Replies

  • Hi Stephen I wish you all the best and I hope they can sort your problems ... My Husband was 11 years before he had Kidney failure , we knew it would happen one day ! His Potassium is high too ,, we try to deal with that with what eats , also he needs iron .... He was fine to begin with and was getting on fine , but then after a few months he got an infection through his emergency cannula , which fixed while he waited for his fistula to settle .. It is called Spondylodiscitis an infection in the spine and the pain unbearable so he is on morphine etc . it has been a night mare .. And Try as I will where are the experts that know about Discitis ?

    He gets panic attacks and gets very hot , may be the medication ? his renal team have been fantastic , but the Discitis team very lacking ;-(

    All the best to you

  • HD does remove potassium, but only as much as the session and concentrate/dialysate allows for.

    Heamo is quite a crude treatment. Keeping the haemoglobin up may be the key to more energy (10 or above) but not above 13.. You need to discuss this with the doctors or anaemia/epo nurses.

    You may need to keep a food diary for a week or two to identify any high potassium foods, or drinks you may be consuming

    You may find some of the following publications useful

    Eating Well With Kidney Failure, a Practical Guide and Cookbook


    Eating Well for Kidney Health, Expert Guidance and Delicious Recipes


    Eating Well, Living with Kidney Disease


    Truly Tasty, over 100 recipes created by Irelands Top Chefs for Adults Living with Kidney Disease


    Food With Thought PDF Download or printed copy for £2.50 via the NKF


    Davita Recipes, an American website with many many recipes.


You may also like...