Hi, I've had CKF for several years and I've just been monitored every six months and had functionality between 25 and 30%. I'm now about to have a kidney removed, fuctionality has dropped to 23-21% but we are hoping that the removal of the kidney will only affect my functionality by about 20%. There is therefore a faint glimmer of hope that I may not be starting dialysis immediately and / or that I may still have PD as an option. But I have some questions that I'm hoping experienced people on dialysis can help me with:
1. Engergy levels - this concerns me. I love working and I need to continue to work. How much energy do you really still have whilst on dialysis? I'm a very motivated and upbeat person and I'm struggling to image not being like this.
2. I'm told that if you feel ok, you can go as low as 10% functionality before starting dialysis. I know this is a "how long is a piece of string" type question but what positive experiences do people have where functionality is dropping below 20%?
3. PD - what's the diet really like? Can I still enjoy the odd glass of wine?!
4. Travel - it is easy to travel whilst on CPD?
Thanks in advance for any feedback