Dialysis: Is there anyone who is on... - Dialysis Support

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Sabuj profile image
17 Replies

Is there anyone who is on dialysis for 5+ years?

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Sabuj profile image
Sabuj
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17 Replies
clem556 profile image
clem556

yes, I have been having dialysis since June 2007. How can I help you?

Sabuj profile image
Sabuj in reply to clem556

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

clem556 profile image
clem556 in reply to Sabuj

Hi Sabju,

I have had high PTH results in the past, I have never taken anything for it. I had my parathyroid glands removed March last year, for almost a year my PTH has been low, <4. It has started to creep up and my latest reading was 52.7 this was 5 days ago. My consultant says, they may have missed some or the hormone is being produced by the thyroid glands?

I dialyise on twilight, as I still work, I do Monday, Wednesday and Friday, that's for work and dialysis.

I re-started dialysis in 2007, when my transplant failed, it worked for very nearly 17 years.

CeeBee profile image
CeeBee

Hello

I have been on dialysis for 21 years continuously (I'm a 55 year old Man) and have maintained a reasonably normal life throughout. If I can help you with anything please ask.

Colin

Sabuj profile image
Sabuj in reply to CeeBee

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

CeeBee profile image
CeeBee in reply to Sabuj

Hello

I had my parathyroid glands removed approx. 6 years ago when they became over active, this is relatively common in long term dialysis patients.

Skabenga profile image
Skabenga

Hi, yup I've been on heamo dialysis for just over 25 years. I've still managed to live in 3 countries since starting and also run my business full time. I'm 43. Any questions feel free to ask.

Cheers, James

Sabuj profile image
Sabuj in reply to Skabenga

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

Yes, been on heamo, mostly at home since 2005

Sabuj profile image
Sabuj in reply to

Thanks for the reply. and sorry for my late reply!!

I am on Hemo dialysis since 2011. We can share and

discuss anything as we are having a similar kind of life.

Do you take Cinacalcet to reduce PTH(ParaThyroedHormon) level?

Do you take 3 dialysis/week?

in reply to Sabuj

No I had my parathyroid glands removed a long time ago when my calcium levels rose to to dangerous levels.

I'm on home heamodialysis 4 times a week (Tues Thurs Sun, Mond Wed Friday.

I take 2 prescribed vitamin supplements and phosphate binders.

3 Previous transplants, and cancer and meningitis..

minimaggot profile image
minimaggot

Hi.

Was wondering if any other long-term dialysis patients suffer from fatigue?

Some days I can hardly get out of bed, and yet, reading these posts, some people seem to have a normal life.

Sabuj profile image
Sabuj in reply to minimaggot

What is your Heamoglobine level?

What EPO do you incject?

in reply to minimaggot

Yes, much seems to depend on my Hb.. I managed a whole day out, kite flying, and then shopping in the afternoon later with a mate. (A whole day for me is RARE, usually I'm knackered after lunch)

And I woke up the next day feeling fairly OK.. That's rare, but my Hb is at 12 on last blood results. And I feel more focused.

micar6024 profile image
micar6024 in reply to minimaggot

I am a 55 year old male and have been on Dialysis nearly 6 years and do experience extreme fatigue which is extremely frustrating when you hear of others being able to carry on life just about normal when on H/ dialysis

Regards Mike

micar6024 profile image
micar6024

Hello

I am a 55 year old male

I have been on H/dialysis for 6 years in feb.

I certainly have my up days and down days

I you want you can mail me mandcgibs@vodafone.co.nz

Regards Mike

TamekaS profile image
TamekaS

On dialysis since 2009...do u have a question about something

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