What resources do you find to be help... - Parents of Childr...

Parents of Children with Kidney Disease

903 members211 posts

What resources do you find to be helpful for you and/or your child (websites, apps, etc?)

KelliC_NKF profile image
3 Replies

When resources do you find to be helpful for you and/or your child (websites, apps, etc?)

Also, what resources do you wish had been made available to you?

Written by
KelliC_NKF profile image
KelliC_NKF
To view profiles and participate in discussions please or .
3 Replies
AHP2018 profile image
AHP2018NKF Ambassador

We use a great app called BP Monitor when I take my daughter's blood pressure. I enter the values and it stores the values and then I can email it directly to her nurse.

My daughter is in 7th grade, so we are just on the cusp of her taking on more ownership. We gave her an apple watch a few years ago so she can set multiple alarms each day (for medications, as well as for reminders to drink water) and she texts me from it every morning at school (as well as at sleepovers, etc.) to tell me that she took her medications. It is a great way to communicate and I can feel more comfortable giving her more space to manage her own health. They are expensive but I have found it to be very worth it for her medical situation. A phone can do the same thing and would probably be less costly.

Does anyone use a good medication management app that reminds when to take medications, and possibly reminds when to order new ones? Right now I store everything in my head but I want my daughter to start taking ownership of that as well.

Outnumbered8908 profile image
Outnumbered8908 in reply to AHP2018

Medisafe is a great app for medication reminders.

JMRC profile image
JMRC in reply to AHP2018

I was also looking for a medication reminder for my son, 15 years old. I had it on my phone but he really needs to be the one. We just set the alarm in his iPhone. 3 days in and seems to work.

Apple Watch sounds good too. Have to check that out

You may also like...

What do you know now, that you wish you had been told when your child was first diagnosed?

What advice do you think your child would give to a recently diagnosed child? Share your...

When your child was first diagnosed, what was your doctor's initial advice?

with your doctor after your child's diagnosis. When your child was first diagnosed, what was your...

How do you feel about new treatments and clinical trials?

clinical trials? What would prevent you from involving your child in a medical research study?...

coping with anxiety and depression due to a child needing a kidney transplant

Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not...

What has your experience with the healthcare system been like?

Happy Halloween to you all! Today, our question is about how you and your child have experienced...