6 dagen vergeten prednison!

[HSP1965]

Hallo allemaal,

Één keer per week zet ik mijn medicatie uit voor één week.

Gisteren kwam ik er pas achter dat ik 6 dagen de prednison bij te voegen en dus niet heb ingenomen.

Meteen in de avond 5 mg prednison ingenomen en vanmorgen weer normaal gestart.

Voelde me afgelopen week sloom en moe, hoofdpijn en trillerig.

Ook laatste dagen erge last van jeuk op armen en benen.

Ik ben er dus veel te laat achtergekomen!

Ben altijd wel wat chaotisch maar vraag me af wat de ernst ervan is.

Geen arts gebeld maar meteen weer gestart met de prednison 😬

Hoop dat er geen schade aan m'n donornier is!

Iemand die hier iets over weet? 🍀

[WYOAnne NKF Ambassador]

Why do you stop taking your medication for a week? You should never skip even a single dose. You could lose your transplant!!

[HSP1965 in reply to WYOAnne]

Hi

As i wrote before: i accidentally dit this when turning off the weekly medication!!!

I take my meds at 8:00 and then sleep some more.

Please don't judge right away!

My native language is dutch and my English is not very good.

Sincerly,

Josette van Raamt

[WYOAnne NKF Ambassador in reply to HSP1965]

Maybe it was in translation - you said you didn't take for a week. Was it just the prednisone? When did you have your transplant?I would make sure to let your transplant center know what happened. Maybe they can run some labs and make sure all is OK.

I was able to stop my prednisone after 5 years post transplant. Hopefully you will be OK.

I am 22+ years post transplant now.

[HSP1965 in reply to WYOAnne]

I had to have a blood test today that was already fixed.I have an appointment with my nephrogist next week.

That appointment was already set.

When i found out i started taking the prednison!

I had my transplant in January 2020.

I have now taken 3 x prednisone again and luckily i feel a lot better.

I asked this question because i thought maybe someone else had experienced it top

I'm just a woman who makes mistakes once in a while.

And searched for a similar experienced.

I wish you the best. 🍀

[WYOAnne NKF Ambassador in reply to HSP1965]

Don't worry....a lot of us have not taken prednisone on occasion. As Darlenia said - we all make mistakes. Due to English translation, wasn't sure if it was just the Prednisone, or your other immunosuppressants. Hopefully all is well. Let us know how your labs turn out.As I said previously, many of us have been taken off Prednisone with no problems with our labs.

Prayers coming your way!!

[HSP1965 in reply to WYOAnne]

Have a nice day enjoy the little things ☀️

[Darlenia]

Hi. I think you'll be okay, people do occasionally go off this particular med for one reason or another under a doctor's supervision - yours was a mistake. But you're bringing it up with your doctors and that should be enough. Sending positive thoughts that everything turns out well for you.

[HSP1965 in reply to Darlenia]

That's exactly what i always do: stay positive 😁

[HSP1965 in reply to Darlenia]

Go looking on my Instagram.....maby we can follow 😁

Looking my Instagram @josvraamt