Hey everyone. I’ve been reading some of these posts and feel it’s time to share my story. I am 28 and over the past year my gfr has gone from 30 to 16. I am just starting the process with the hospital to get a transplant. I have IGAN and feel really alone. My nephrologist doesn’t have the best bed side manors but am hoping he knows what he’s talking about. I am taking medications but feel I should do more with my diet. However he has only ever told me to cut back on sodium and processed foods, I have asked multiple times to get referred to a renal dietician and he says I don’t need it. I reached out to a dietician but she didn’t specialize in renal.....that is just one thing that is bothering me. I just also feel like I have no idea what this process is going to be like. I have a list of appointments but no real information on what they are about. The appointments are just with nurses and technicians so they can’t really answer my questions. I have no idea how long this process takes. How long does it take to get approved? My boyfriend is wanting to be a donor but we only know he is a blood match at the moment. How long will his process take? Should I be asking other people in the meantime to be a donor before we know if he is a match or not? Am I just over reacting? I’m overwhelmed with working full time and going to these doctors appointments. It’s just begun and I’m not sure how to handle it already.
Overwhelmed : Hey everyone. I’ve been... - Kidney Transplant
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