I on my third kidney transplant 4 yrs. out. I have some kind of infection every month. Trying to find out what meds transplant patients are taking for this issues. My sister is on her third kidney transplant 5yrs. out and from day one she's been prescribed Bactim by her Doctor.
I am getting no where with my Doctor about this problem. What are other kidney transplant patients taking?
I take prednisone, tacrolimus, mycophenolate for antirejection, metformin, glipizide for diabetes caused by antirejections, and metoprolol and amlodipine for BP.
I can't take cellcept. Bad reaction problems. When did you get your kidney and what state did you get your transplant? So your not taking any drugs for infections?
I take Lisinopril for bp very unusual I'd think no antibiotics cause I take Bactrim 3x a week( m,w fri) and zithromax everyday as part of my drug regimine that of course changes if I get sick.She might want to call the transplant coordinatorand let them know the situation.
I am 7 months post transplant now, I take prednisone, tacrolimus, mycophenolate for antirejection. And valgancyclovir for the first 4 months as a precaution against any viral infection
Yes Prednisone, an Tacrolimus . That is all is really take beside something to keep my white blood cell count in range an something for acid reflux. U mite need to talk to anither doc😕😕 an another transplant doc???? A second opinion can never hurt this is your life not theirs.. Always praying. 🙏💜
what infection do you get? what is the dosage of your immuno drugs?
I been having sinus, GI problems, ear, and abscess that put me in the hospital to be drained infections. I take 6mg of tacrolimus every 12 hrs. and 1 daily 10mg of prednisone.
In the hospital they gave me Bactrim and it helped all these problems. I asked my Doctor for a maintenances dose of 160mg of Bactrim but he said no. My sister who is transplant has been on Bactrim for 5 yrs. out and not having infections. I'm finding out that all transplant management Doctors are not prescribing the same medication. I live Fl. my sister lives in NJ.
do you take 12mg of tacro per day? seems quite high, because I take just 4mg per day. you take only 2 immuno drugs? you are not taking cellcept/myfortic?
6mg of Tacrolimus every 12 hrs. gets me to the recommended level of 5 in my system to keep from rejection. What is your blood work Tacrolimus level?
My creatinine level is 1.4. What is yours? When did you get your transplant?
I take tacro 4mg a day and tacro level is 5.9
my friend takes 1mg a day and his level is 5
it depends on how well your body absorbs tacro
my creatinine is 0.89 transplant 6yrs ago
Yes your right. As long as your level is 5 or better taking more or less Tac ok.
My sister and I have to take 6mg twice a day to get to a level 5.
Do you take Bactrim for infections or some other medication ?
Yes my sister and I only take 2 immune drugs Tacrolimus 6mg every 12 hrs. and Prednisone 10mg once a day
I'm 7 yrs post transplant & have taken bactrim 3 times a week since day one, I was transplanted at UPMC in Pittsburgh Pa.
I'm not sure, I'll have to check & get back to you. I'm at work right now.
My meds change according to my labs. I take tacrolimus .5 mg in the am and 1mg in the evening keeps me at 5. Mycophenolate (250 mg) was initially 4 twice a day, then 3 twice s day, now I am at 2 and they just put me on prednisone 10 mg. I also take valcyte (2 months to go) dapsone since bactrim is too strong. Was on fluconazole but they put that on hold. Also take famotidine once a day. I was on magnesium and phosphorus meds but no longer as they are in range. A multivitamin as well. Before the transplant I was in 3 BP medication’s but now just on Coreg twice a day. My creatinine is is .78 and gfr is 89. What’s easy is my meds are at 8 am and 8 pm. I had some bout with vomiting for 2 days but I seem to be ok now! I also accepted a kidney with Hep C and am taking Mavyret for 12 weeks! Have two more weeks to go for treatment and labs show no detection of Hep C. I had my transplant Feb 4,2019. Hope that helps!
I take the same immunosuppressants and Bp meds. With regards to Bactrim, I was told by my transplant center that the duration of taking that medication depends on where you live. According to the transplant nephrologist, there are different Bacteria in different geographical locations, so how long you take that medicine depends on where you live. That might explain why your sibling is still on Bactrim. Please double check with your transplant center for the accuracy of that information.
I am now taking Bactrim 3 times a week and feeling a lot better.
They also changed my Prograf 6mg twice a day to Envarsus 9mg once a day.
On my third transplant 6 years out.
Thanks for your reply.
Thanks. I didn't know about the different bacteria. My sister lives in CA and we go back and fourth on this med/bacteria thing.
Just curious where you and your sister are getting your kidneys for transplant. I had infections early in. Was given Bactrim. It is not so unusual. Let us know how it goes.
My transplant team has me on Bactrim since transplant almost 7 months ago. Has no end date to stop.
most people take Bactrim, for infrection prevention. Since I’m allergic I take atovaquone.
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