Kidney transplant update

[Kidney05love]

I am awaiting transplantation. I am not on the list yet but in the process. I have a gfr. Of 15.5 . I am lucky that I'm not on dialysis at the moment. I suffer from eplilpcy and I do weekly infusions called hizentra. I received my transplant from my mother 13 years ago June 2005. I was diagnosed with p Anca vasculitis as the disease that caused my kidneys to both go. As a young child I was treated with cytoxan,diyalisis and many other life saving drugs. My creatine is running around 4.1 to 3.85 right now . I am on the border of diyalisis and learning all about the options again, sense I was such a little girl last time I was on it. I had a potential donor lined up, but it ended up not working out cause we're not the same blood type. I am suffering from severe anemia and will potentially need a blood transfusion. As I am having weakness all over , and pain in my legs in arms . I'm awaiting results to that blood test

[rabbit01]

Hello. Your levels are about the same as mine. I too am not yet on dialysis and am going through all the tests to see if I am able to get on the transplant waiting list. Last month I attended the local dialysis centre to discuss the various types and pros and cons of each one. I wish you all the best.

[Kidney05love in reply to rabbit01]

Thanks for your kinda words. I Will pray and keep in touch for your well being.

[KelliC_NKF]

I'm sorry to hear you are facing needing a kidney and potentially dialysis. Here are some great videos to learn about your treatment options: youtube.com/playlist?list=P...

All the best to you! Keep us updated on how things go for you!