Queen's tell all: Had to write today since... - Kidney Dialysis

Kidney Dialysis

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Queen's tell all

HipHopQueen profile image
4 Replies

Had to write today since Prince Harry's book came out to scandalous reviews. My tell all would be title "Where's the scandal" because my life is so very boring at the moment. We have no heat, I'm wanting something fancy to eat. There is vodka sauce pasta from the Italian place down the street. Which, might I add, makes you want to lick the bowl. Now what does this have to do with kidney life, well we all have to eat, not be bored and have heat when we need it.

I need to learn more about eating. I know I'm not on dialysis but like a sled on an incline. I'll slowly or quickly at some point get there. I put a letter up on facebook and hoped that it would bring me luck but i haven't heard anything yet. I would love to skip dialysis and maybe it could happen. I need to eat better, I'm missing my veggies. I eat them but very rarely. So that's food.

Queen's look bored to me. Beautifully adorned boredom, but I wonder if behind closed doors they are load of fun. I think in all of this I want to take care of myself, look nice, and carry on. I know things will be different, but I want to maintain the parts of myself I love and deal with what is, what I have to do and take care of.

Having no heat is actually just a fact, it reminds me that like my kidney's going into failure, something I have no control over, but they don't stop you from living. I had to move bedrooms and maneuver around to get to the bathroom and down the stairs. I use a wheelchair daily and this no heat thing is inconveniencing my life. At the end moving upstair has been good. What Queen doesn't want to be warm.

So now that I've given a mismash account of my life. I wonder if any of you feel that trying to keep some routine elements of your life have been extremely important or have you just adapted to a new life and not mourned your previous way of living. I guess basically what's been most important to you as you go through this kidney journey.

PS I'm not rereading this for spelling errors. It's me uncut. aka I'm hungry

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HipHopQueen
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KidneyCoach profile image
KidneyCoachNKF Ambassador

Have you looked at kidneyschool.org? There is great information. Blessings

HipHopQueen profile image
HipHopQueen in reply to KidneyCoach

No I haven’t. Thanks.

Darlenia profile image
Darlenia

It's good hearing from you HipHopQueen! Sorry to hear that your place has no heat, hope it's back on by now. I've been a wife and partner to hubby who went through kidney failure, dialysis, and then a transplant; so my perspective is as his support person. I know that we've had had many ups and downs with his hospitalizations for a number of things including brain surgery after my husband tripped (from a foot drop incurred after his transplant) and fell on his head, etc. So any sense of routine and normalcy flew out of the window on a number of occasions. It was interesting to me how quickly I established "new" routines - even taking the same pathways to and from hospitals, parking on the same floor in parking garages, etc. Even dropping by the same 7-11 on the way home even though there were others. Yes, I have occasionally looked back and mourned past, comfortable routines but those are now more like fond memories to me. I now embrace new routines - some by choice, others by necessity. But I'm sure many others thrive on adventure and take unplanned events in stride, pressing forward through thick and thin without worrying - like my hubby. In reflection, humans are clearly very complex, no one is exactly like the other, and we all have our own journey to navigate. Yet our love and support for each binds us together, particularly on this site. Cheers!

HipHopQueen profile image
HipHopQueen in reply to Darlenia

Thank you Darlenia. Though you are not the one with the transplant your words expressed what I was wondering. I’m afraid of the journey but I’m hoping love is enough to get me through.

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