Hi everyone... a question.. My ortho put me on a low dose of prednisone, (10mg) for 14 days. He said it wasn't processed through the kidneys. Is he right... anyone else on prednisone, any thoughts?
Second is I found or refound a web site that has tons of recipes for healthy eating, categorized by type of diet. Lots of vegan and vegetarian, low sodium, diabetic friendly, none specifically for CKD but I'm sure many of the recipes are kidney friendly. It's also free. It's Eatingwell.com
Hi Jodaer - I’m post transplant and on 10 mg/day. I’ve been “promised” that it will be dropped to 5 mg/d soon. I was off and on prednisone throughout the 25 year period prior to transplant. I recall a period were I was taking 40mg/d. I will check out the Eatingwell website. Thanks for posting that.
Best,
D
I believe that just about everyone takes Prednisone after a transplant. It is a steroid so reduces inflammation. It's just one more drug that helps prevent rejection.I have had to take Prednisone when I am having a flare of arthritis in my knees. It helps to take down swelling and inflammation.
I am 22+ years post transplant and do not need to take any prednisone for the last 10 years post transplant
Congratulations for being 22years after transplant. I wish if you can talk to us a bit on the periods just before the transplant and after the transplant. Thanks !
Year before -In August 0f 1998 I was placed on the transplant list at U of WI and also Froedtert Hospital in Milwaukee, WI. There was a couple of days of testing before I was approved. Until I got the "CALL" I remember being very tired and not real interested in eating. By the next August 1999 it was time for me to start hemo-dialysis. I have small veins so surgeon could not make a fistula, so had an AV Graft placed in my L forearm. I went to dialysis 3 x a week for 3 hours each time. I remember being really tired afterwards, but next day I felt "normal."
October 15th, 1999 2:30 am I got the call that they (U of WI) had a kidney for me. My deceased donor was a 4/6 match and was 16 year old that died in an auto accident.
Arriving at the transplant center, I still remember a nurse telling me that I would do well, since I had the right attitude.
Every day was a little bit better than the day before. About 6 hours after surgery, they had me up and walking a few steps. After a couple days of liquids, I could eat solid food. I went home after 7 days.
After a few days I was taking short walks. At first just down the block, and gradually increasing it till I was out walking 20-30 minutes.
My immunosuppressants (Myfortic, Neoral & Prednisone) and I weren't getting along. I had horrible diarrhea. I made sure to tell my transplant team about this and they were able to lower my doses several times those first 6 months. We also found out that the problems were due to generic form of my drugs. Guess they are just a little different. Once they started me back on name brand Myfortic and Neoral my issues went away.
8 months post-transplant I was hiking in the mountains in Glacier National Park in Montana with friends.
The only real problem I had at about the 2-3 year point, was I developed an incisional hernia in my transplant incision. Wound up getting it surgically repaired and then again a year later.
I have had a fantastic life!! Saw both of my daughters marry, and now have 2 buddies, my grandsons. I finished the work on my Master's degree in Gerontology and had a great career until I retired a couple years ago. My husband have been world travelers - Germany, Austria, Caribbean, Mexico, Canada and visiting family and friends in the US.
My husband was in the Air Force for 25 years and always dreamed of living out West. So, after retiring we moved over 1,000 miles to Casper, WY. We are by the Rocky Mts.
Today I volunteer with the WY Donor Alliance, an Ambassador with NKF and also a Kidney Adocate with the NKF.
Otober 15th will be my 23rd kidney anniversary. I continue to do well with a creatinine of 0.9-1.0
Any specific questions feel free to ask me.
Take care.
Hi Jodaer, I have been on prednisone for the last 1.5 years once the ckd started. The first neph put me on 60mg per day !! that induced diabetes!! and the second neph tapered down gradually over the 1.5 years to 1mg per day and now I am off prednisone. My understanding is that it helps inflammation in the kidney to cool down, so it is ok for kidney and one of the standard treatment drug of ckd.
My Neph put me on Pred. as my CKD is autoimmune related. It really helped my eGFR but then I had to go off as he didn't want me on it long term as it can have other bad effects. My eGFR dropped lower than before when I went off.
At any rate, Pred is safe for the kidneys.
Thanks. I will be eager to see what my GFR is in my next test. In the last one it went down some. Then I relocated and was in a holding pattern for a couple of months and my healthy eating went out the window. It's hard to get back on track.
Thanks 😊 for website
Jodaer, several studies show the BENEFIT of prednisone to helping slow or stop progression of CKD along the lines of the ARBs/ACEs BP meds so low dose according to the 2/3 studies I’ve read say no worries with prednisone, to the contrary it should have some benefit. I’ll go get a couple and post if you’d like but I’m almost asleep so you gotta ask me if you want them…lol! If you are willing I’d like to know if you show any increase in eGFR after 5/6 weeks if you are willing to share with us. Take care friend!
Cystatin C W/EGFR test 
Just saw man on YouTube talking about Lee Hull (author)? 
My eGFR is better and creatinine is normal
How can I gain weight on Kidney friendly diet?
