My husband has been through so much this passed 6 months.Please can someone help me or advise me.Thank yo!

[LoopyLoopsLolly]

I am new on here so if i an doing this wrong please firgive me.My husband has been diagnosed with CKD4,back in May 2020.He was already a diabetic on tablets.But he was taken off the medications straight away as they where causing his major organs to shut down. He has already got fatty liver,. He is over weight due to all the different meds. Diagnosed with sress,anxiety and depression. Leg ulcers,lympademia legs,and he has had to falls this year. Hypertension 2006.Them July this year he fell a banged hus head on a glasss door.zHis was ok. But they then found out that his blood pressure was so low lower than anyones should ever be. Took him into hospital for more tests. Now he sit ,eats,sleeps downstairs in his recliner. As even getting up from his chair makes him exshausted. I am also long term illnessses and disabilities ,mobility issues on PIP . I am really struggling to look after him, myself ,and the house is a mess as i can't do heavy lifting or bending. We have a support bubble our son and his fiancee.But with COVID19 everything is so much harder. Now trying to fill in PIP form fir my husbands.It is a nightmare.I feel as though I am drowning.i can't stand seeing my husband whom i love so much in pain . And i cant do anything to help him.Sorry for babbling on but i am working myself into an anxiety attack..Any one out there who can advice me . Thank you

[Celtic]

I am in a similar position to you with a very sick hubby, a few chronic health conditions of my own and know from experience how overwhelming it can be at times. And being in the midst of a pandemic and all that that entails just adds to the immense difficulties. Luckily we now have hospice on board for when things get even more tough. So do get in touch with your Doctors/Consultant’s and tell them exactly what you have told us. They are the professionals and should be able to help you or at least point you in the right direction. Lots of good luck wishes to you and your hubby.

[LoopyLoopsLolly in reply to Celtic]

I sorry that you are also going through similar.I Thank you for your support.Take care.x

[drmind]

Sounds as if you may be trying to do or want to do too much. You cant take your husband's pain or degree of illness away, but you can be with him to offer comfort. Its so difficult to feel helpless when we are around people we love. But, it is whst it is.

Im sure you are used to doing a lot mote than you can do now because of your own health issues. So, you are dealing with your own losses. But you can only do what you can do. Stop being so hard on yourself and try to find some peace with what you actually do.

Keep letting us know how things are goimg. Prayers and positive thoughts.

[LoopyLoopsLolly in reply to drmind]

Thank you fir all your support.X

[WYOAnne NKF Ambassador]

I think you need to reach out to your husband's doctor and tell him everything that you posted here. If there is one thing that I have learned thru my kidney journey is to tell my nephrologist any health issue I am experiencing. Your doctor needs to know the poor quality of life your husband is leading. Maybe it's some medication he is on, or maybe there is a med that would help him. A doctor can't help him if you don't let him know.I would get on the phone now and call the doctor's office.

Take care of yourself too.

Thoughts and prayers!

[LoopyLoopsLolly in reply to WYOAnne]

Thank you.I have lost all faith in our GP. They know the situation but i feel as though they do not care. As my husband is on medication but nothing fir his kidneys,liver or heart.

[LoopyLoopsLolly in reply to LoopyLoopsLolly]

Thank you.d

[Darlenia]

Oh Loopy! My heart goes out to you. It's tough, isn't it, so very tough. I'm also a caregiver to my hubby, who is on dialysis, and neither of us are young. Please do talk to your doctor - s/he will implement improvements and arrangements for both of you. Then, please call your local county office on aging, caretaking, and wellness. Often, your county will have respite programs as well as volunteers who can drop by the assist you in multiple ways. And, lastly, there are some additional groups you can also join such as "The Solace Alliance - Supporting Caregivers Everywhere", on Facebook. It's noteworthy in that it runs regular Zoom meetings in which people can simply talk and find support and answers quickly. Please reach out, and hold on - help will come to you. And we are here as well - keeping you in our thoughts and giving you hugs. Please stay in touch.

[Love101cats]

It takes just one phone call to sort it out but it has to be the right one. You have family in your bubble so if they are able to get hold of leaflets written for carers at home they usually have helpful numbers on the back. I was in your state and I phoned a local community care team and had a home visit assessment then everything began to change. I had help with forms , carers, practical advice and support. I appreciate that each area is different but the approach for help for carers worked better than help for my husband. I hope you get sorted.

[Amrellessy66]

I can’t make out which country you live in.My son has stage 4 kidney desease . Doctors don’t help much in the way of nuitrition. Watching dr William Li on U tube has helped me take care of my son a lot.

Also the simple act of using the internet to find out which smoothies I can make to stabilise blood pressure , fight anemia etc has helped a great deal .

Before you administer any smoothly , check with your doctor or renal dietician because of the diabetes etc.

It’s tough but you can do it taking small steps.