UPDATE : Quick note. As of today. im almost... - Kidney Disease

Kidney Disease

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Quick note. As of today. im almost 85%.better. im eating, not falling into a deep sleep during day, no dizziness, no swelling. and no mental fog any more. Plans are to meet with my new primary and a cardiologist within the week. My intention now is to (1) get over completely from last medication fiasco (2) find out as much as possible what caused such a reaction Unbelievable as it may be, the kidney doctor has ordeted a new medication for me!!!! I have no intention of ever taking anything until i discuss this with the cardiologist and my primary .Boy. am I learning. Thank you all for your advice.

Right now im trying to deal with a 10 lb weight loss since 9/2. I couldn't eat for days other than a few bites

Now. Im eating almost full meals and kmow that this is helping. Wow its been a journey of hard knocks. Thanks everyone for being there for me


16 Replies

Congratulations on your getting back to your normal. It can try a person's spirit. Let us know how it goes with your new physicians. Building a Care Team that will work with you is so critical. I'm not sure if I mentioned this to you before but when I'm in a physician's office and they are suggesting a new medication, I take out my phone and using the app for drugs.com I look up the med and ask questions about it before I leave the office. Had I known about Drugs.com back in 2015, I might not have taken the lisinopril and spent a day in the ER.

Again, glad to hear you are on the mend. Take care of yourself.

drmind in reply to Mr_Kidney

Thanks. Always good to have everyone's support

Bet117NKF Ambassador in reply to Mr_Kidney

Incredible post!

BassetmommerNKF Ambassador

Good to hear.

Bet117NKF Ambassador


So glad to hear that you are feeling better. Thanks for letting us know how you are doing!

Mr._ Kidney has said it all.

This nonsense with doctors and not feeling well does try your patience enough to punch walls.

Get your care team together as he has suggested. His post is filled with great ideas which have been a great help to all of us!

This is a journey and a process.

Just know that you are among friends!


drmind in reply to Bet117

Bet117NKF Ambassador in reply to drmind

Wonderful that you are feeling so much better!

Yes. It is very good to have everyone's support. What I have found out so far:

(1) from ER visit 9,/7: medication probably caused urine retention that caused infection

Dischsrged with 5 days of antibiotics

(2) from CentraCare visit 9/13: infection gone. But, all symptoms including lab work now suggests anemia. Discharged with advice to start eating which i had already done. I could also come back for more evaluation if i still feel sick before I see my primary l.

Two days of eating has improved my situation considerably. I had not eaten for days.

Thank goodness for the caring ER and CentaCare doctors for taking the time to try to find out what happened.

Again , thank everyone for your help


Fantastic you are feeling better. :-)

drmind in reply to apopnj01

Thank you

WYOAnneNKF Ambassador

So glad you are doing better! Sorry you had to go through all of this. I know I learned the hard way also, about being your own advocate and I now have a great care team.

Keep us posted!


Way to go! Strong lady...keep advocating for your health!

Hey drmind! So glad to hear that you’re feeling much better! It’s always great to hear good news! Thank you for sharing! Please do continue to keep us posted on your progress. And remember, we’re always here for you! All my best to you! Many blessings. 😊👍🙏✌️

drmind in reply to Sammi_n_Munk

Thank you

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