How are your coping with things?: I thought... - Kidney Disease

Kidney Disease

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How are your coping with things?

Bassetmommer profile image
BassetmommerNKF Ambassador
61 Replies

I thought we could share how we in this healthunlocked community are doing coping with the corona virus and the impact it is having? Are there things you are doing to help you deal with things? There is strength in sharing. Also, if you have any funny stories, please share.

We live in upstate NY. We are now getting positive cases of COVID-19. In my little village, everything is being shut down. We have a major grocery chain, Wegmans, that was picked over like vultures on a body. It was ridiculous. They are now going from 24 hours a day to limited hours and are encouraging people to not stockpile by limiting what you can buy. You can also order your groceries and pick them up.

The whole thing on toilet paper makes me laugh. In years to come, people will remember when the world ran out of toilet paper. What a legacy.

I am totally not going to enclosed public places. I am on an immunosuppressant infusion and have been on immunosuppressant drugs for 14 years. With Stage 4 CKD, this Momma is not taking any chances.

My husband is now home too as the schools are closed. Being home together 24 x7 is going to be challenging. Fortunately, he can retreat to his man cave.

So, what am I doing? I am spring cleaning the house. I am cooking healthy foods from scratch such as home-made soup and bread. We are working through the foods in the freezer, which actually is a good thing. I work outside in the garden when the weather permits. I am going to work on more kidney classes and certifications. I am working with my peers as a mentor. I am getting caught up on some of the volunteer projects I have. I am painting. I am reading when I have time. And hubby and I are going for short walks.

At first my mental state went to the dark side. I was really sad that I was not going to be going out and participate in the boards and committees I am on. Now, I am looking at this as a stay-cation. I was getting more and more anxious as I read the news, so I am limiting that exposure. I am calling my friends and chatting. And every day I spend some time for meditation and being grateful for what I do have.

What are you doing?

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Bassetmommer
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61 Replies
orangecity41 profile image
orangecity41NKF Ambassador

Our retirement community has restrictions, per CDC guidelines. All activities canceled. We are just staying in place and go out only to Doctor appointments that are necessary. Got prescriptions filled and grocery items . Pharmacies will deliver prescriptions, and groceries will deliver or have pick up arrangements. Time to do taxes and catch up on things needed to do.

rabbit01 profile image
rabbit01

Hi there. I am stage 5 and on peritoneal dialysis. I am staying at home as much as possible following the UK government advice. To be honest I don't mind staying in. Got plenty of books to read and jobs to do around the house. If the weather was to warm up a bit I would do some stuff in the garden. Stay safe everyone.

Bet117 profile image
Bet117NKF Ambassador in reply to rabbit01

You, too, rabbit!

I've canceled my traveling plans. I"m only going out to doctor appointments, pharmacy pick-ups, and grocery runs. Staying in also has its issues. I'm limiting the amount of news I watch. It's too easy to get mentally down by listening to all the talk. I made the decision to select one place to get news and information from and put a limit on how much "noise" I take in. It's a great time to catch up on reading. Speaking with my grandkids is another fun task I'm even doing more of, mainly since they are out of school and have more time during the day. If the rain ever stops I may be able to get outside and work in my yard. So, plenty of things to do, just be wise about getting information overload. Stay up to date, be careful and know that we will get through this.

Bet117 profile image
Bet117NKF Ambassador in reply to

Sounds like a great plan!

I know what you mean about " the noise" , the wise tune it out.

Movies are also great as they relax the mind.

Yes, we will get through this!

B..

Jayhawker profile image
Jayhawker

I’m originally from upper state New York too? If you wouldn’t mind, where do you live? My mother’s home town was Long Lake, NY. My father grew up in Utica, NY. I was born in Cooperstown, Ny.

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Jayhawker

Fairport.... outside of Rochester. Love Long Lake. Camped many times there. We are planning a visit this summer to Cooperstown. Hubby to the Baseball Hall of Fame and me to the Farmers museum. Would love to stay a the Otesaga, but way too expensive now.

Jayhawker profile image
Jayhawker in reply to Bassetmommer

My mother’s brother, one of her brothers, Herb Helms, started the Helms Aviation company in Long Lake, NY. It’s now run by a second cousin but still provides tourist flights for people who want to see the Adirondack mountains from the air.

Jayhawker

Dwidgett profile image
Dwidgett in reply to Jayhawker

I was born in Oswego and have family in Fair Haven and Spencerport. I now live in NC as the winters in NY State were brutal!!!!

Jayhawker profile image
Jayhawker in reply to Dwidgett

My father was originally from Utica, New York. So he grew up in the finger lakes area. My mother grew up in Long Lake in the upper state area, the Adirondack Mountains fairly close to Lake Placid. My father moved to Ling Lake after he graduated from Ithaca College where he majored in music. He taught music in Long Lake where he met and married my mother. We moved from upper state New York to Arizona when I was in grade school. We used to go back to New York every other summer. We camped in various parks for at least 2 months on the summers we would go back to visit. I loved camping!

Anyway, very good memories!!

Jayhawker

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Jayhawker

Jayhawker, so good to read your response. Hadn't seen a post from you for awhile and was hoping you were doing well.

Bet117 profile image
Bet117NKF Ambassador

I live in a mid- size town in Massachusetts and my husband is a college Professor in Rhode Island so we have to stay on top of what is mandated in both states.

Right now there has been one reported case in our county in a town about 45 minutes from here. I pray that that is it, but I am not betting the farm on it.

We have 2 major food chains available; one in out town and the other in the small city across the bridge, Super Wal-Mart is 10 minutes away in the next town. I do my major shopping at a lovely, large family owned grocery chain across the bridge.

Last Thursday I saw the same thing that you did; people purchasing 60 rolls of toilet paper, 6 cases of water and found the last refill of anti- bacterial soap when looked in the back of the shelf. No soaps or Clorox wipes were to be seen anywhere.

Pasta, cereals and dry goods were at a minimum.

My husband ran into Wal-Mart and found barren shelves. Amazes me.

I credit all of the folks who are working hard to re-stock at night. I bless those who put together drive up orders for folks in our area.

My brother is employed by Home Depot where hours have been cut and the novel of being home is bringing scarce amounts of folks with their children to the store to pick up materials for over due projects.

His store is out of Purell wipes for carriages. He brings his own hand sanitizer and washes his hands as frequently as he can ; taking the lead from us- sanitize before going into a store and in the car immediately after, then washing plastic bottles , cans with paper towels and soapy water before putting them away- then washing our own hands. We avoid any area who has close proximity people.

My husband and I check in with the elderly man downstairs as he is no longer able to visit his wife in her nursing home. His daughter brings groceries and we provide the paper and a store bought cake so often.

The college where my husband is employed Full Time mandated campus meetings of ten people on Monday to meet with technology people as he will be teaching online until at least mid April as it stands.

Students at this school are not allowed into dorms to retrieve clothes, books and even laptops left when they left the week before for break. The school where he teaches one class extended break by a week as students were allowed to retrieve personal items. They will be on line as of next week.

Local schools are closed.

It is different having my husband home and teaching from our den. We had some fun with the kids as he had me introduce the first slide of his powerpoints. We are lucky to be compatible but having him working gives each other space.

I cook, read, enjoy movies, and use the time to study techniques as to enhance my voice in the additional career in which I became certified this fall. Yes, I am discarding old papers and keeping the case clean.

We also take a walk every so often and a ride together to the drug store.

A great gift is calling, email or texting friends, etc. and just to see how they are doing.

As I see the intensity of this, I pray for the ill and their families and keep up with the news as our governor has closed all restaurants other than take out.

Without losing realism, I don't give up hope and with every sunrise, find new projects and things to do.

Please feel free to reach out as I will reach back.

B..

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Bet117

Enjoyed reading your post, Bet, and appreciated the positive tone while offering ideas of what you and hubby will be doing to stay engaged with projects and work as well as unstructured time.

I've chosen on news source for once/day news and one local news channel for daily updates.

Bet117 profile image
Bet117NKF Ambassador in reply to FlowerPreciousLover

Good to hear from you, Flower!

Hope that you are doing well.

Thanks for the kudos. I agree that submerging yourself in the news is not mind healthy.

My husband and I watch

" Morning Joe" together over a coffee or tea and generally part of the daily address from Washington just to" see".

He prepares the beverage at 7am and brings it to me every morning; one of the perks of having him home, so I can't complain!

We are both fans of "Days of Our Lives" and have been since we were kids so we tune into that together, now, where before we watched it together on our NBC phone App. in the evening before bed.

Governor Raimondo of RI picks 1 pm to address the people so we catch up with her then and stream

" Days " on the app in the evening. We find that time relaxing as always.

When I am home, I watch " General Hospital" as a point of discussion with my brother besides politics and baseball, which we all miss terribly.

I tune into a Boston station, so we get the MA catch up as Governor Baker of MA likes 2:15 or so to address us, so "GH" is piecemeal which is no biggie.

I introduced my husband to such films as

"Gidget" and "A Summer Place"

( for those of you who remember films of that era)

Coming from a home of brothers they are really a curiosity to him and reminder of my days of babysitting and watching them late night while waiting for the parents of the children to return home from their " date night".

It all works...

Please take care of yourself and your loved ones .. and reach back again.

Remember what mom always told me:

" and this too shall pass"

Bet

Halebopp profile image
Halebopp

I live in Northern California, USA. We have had a couple of deaths in our community & many infected. I’m in a large city & nearly everything has been shut down. I’m 73, have an autoimmune disease & stage 3b CKD, so I’m taking this very seriously.

I live alone, but communicate with my daughter almost daily. I’m well-stocked with food & have fresh produce delivery every 2 weeks. I try to cook at least 2 healthy meals every day.

I also have several hobbies. I read voraciously! I paint & I do Zentangle. Right now I’m putting my time into reading & Zentangle. Their are several instructors doing Zoom classes & some are doing “freebies” right now. There are also YouTube videos. It’s a great community. I also put on uplifting music in the morning when I get up.

I’ve canceled nearly everything in my life except doctor appointments. It’s been raining for several days, but when the sun comes out again there’s a nearby park along the river & I can go for a daily walk. I’m saving $$ by not going anywhere & my mantra is “this too shall pass”. This situation is horrible, & there will be many deaths, but I feel the only control I have is to take care of myself & isolate, & try to find a silver lining amidst the chaos.

Bet117 profile image
Bet117NKF Ambassador in reply to Halebopp

Hi halebopp,

Glad that you reached out.

I am saddened by the losses in your area. This whole this is such a travesty.

Your days sound full and I am happy that your daughter is checking in. I try to do that with my friends as well as the caring is a most precious gift.

Also happy that food is being delivered to you.

The son and daughter- in- law of a long time friend live in northern CA as well with two young children, so via Grandma, I have heard about the situation in that area.

Please stay strong and focus on all of the good things..

I agree ; it will pass but in the meantime key is to keep each other going.

Take care of yourself and do reach out again.

In my thoughts and prayers

Bet

TaffyTwoshoes27 profile image
TaffyTwoshoes27

Can you take in a PD patient from Atlanta? Lol.

You sound very upbeat. I am accustomed to being alone (no family in GA and only a couple good friends). There is at least an inch of dust on my two bedroom dressers. I just feel deflated and cannot get the energy to clean.

I didn’t go to my Fresenius clinic Tues for my monthly blood draw. I called my renal nurse Monday and they had no real protocols in place to keep social distancing in play. She told me to come in with mask (surgical types are only 80% effective, but I guess better than nothing) and sit in the “lobby” or waiting area where the seats are 3” apart. Most visits, I am sitting right next to hemo patients and their family members and the waiting area runs out of seats). I asked what they are doing about outside EMS drivers wheeling in Hemodialysis patients, and she said they must put on a mask and everyone who comes thru the doors has their temperature taken with an ear thermometer. Once they have entered the clinic? That seems like “hindsight is 20/20” to me. I think they shld be screened outside before they enter (high risk group that we are). I told the nurse if I keep the appt., I will wait in my car — canceled my free Lyft drives b/c of Coronavirus — and she can call me when I can come straight to her office. Now, the entire clinic is using that protocol (my renal nurse’s boss called today and said that is the “new” protocol and they are trying to think of a way to have the nephrology check and blood draw done only once a month). I have to see the nephrologist next week in his office, but he won’t have any labs to refer to. Sorry FRESENIUS, you are going to lose some money these next couple of months while people RIGHTFULLY practice Social Distancing (especially since our group is high risk! I have COPD (mild) too and this virus attaches to lungs like glue!). Since it seems to be “all about the money” to them at times, this will put a strain on them, but if patients are risking themselves, they may lose us as patients long term (to death!).

I wish I had the desire to garden. I used to like it until I was diagnosed with CKD4 in 2012.

I have used the NKF’s peer program in the past and talked to mentors. I have found it helpful but I wasn’t able to find a mentor more closely akin to my lifestyle (single, no children, a sister who backed out of getting evaluated for donating — after 10 years of telling me she would give me a kidney if I needed one!).

I watch sitcoms to laugh. I’m a pretty funny person so I like to keep up with comedians and funny movies on Amazon Prime. It is better than being gloomy all day!

I text with my transplant support person almost daily and talk daily on the phone to a friend who works for Walmart and tells me the lowdown in the grocery/toilet paper world. Mark my words: the next hurricane or tornado warning, it will be “bread, milk and toilet paper” gone from the shelves!

Hang in their my kidney disease friends!

Jayhawker profile image
Jayhawker

I just learned at 4pm yesterday that my nephrologist’s office will be starting telemedicine next week. This means I can attend my March 31st appointment virtually from the safety of my virus-free home. I’m thrilled!

Jayhawker

Bunkin profile image
Bunkin in reply to Jayhawker

Mine too!

Bet117 profile image
Bet117NKF Ambassador in reply to Jayhawker

Absolutely!

Jayhawker profile image
Jayhawker

As some of you know, I’m a university professor. My campus is no longer meeting on campus at all for the remainder of spring semester.

One of my colleagues just received her letter telling her she has been tenured and promoted. This is a big deal and a situation where we would normally host a formal reception for her. So what to do?

We’re going to host a virtual lunch celebration for her. This is how we’re going to do it:

1. Send out an eInvitatuon to the virtual luncheon.

2. In the eInvite we’ll ask for RSVPs with everyone selecting their favorite restaurant from those still delivering as well as their specific order.

3. Everyone will provide a delivery address.

4. We’ll eat lunch together via Zoom, a video conferencing program my campus uses.

5. And to make this extra special for my colleague, we’ll have flowers delivered to her apartment the morning of our virtual celebration luncheon.

An extra benefit of this approach is that we’ll be able to easily include our Dean, Associate Dean, and our Department Chairperson. And we’re supporting local businesses as we all work together to get through this!

This is going to be fun!

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Jayhawker

What a wonderful idea.

Bet117 profile image
Bet117NKF Ambassador in reply to Jayhawker

Fabulous idea!

My husband's main campus announced yesterday that they will not be meeting in person for the remainder of the semester and that graduation has been pushed back.

They have met via zoom.

As you know, he has continued to adjunct 1 course at the school which helped us through his PhD. He has maintained an on going friendship with members of his dept. there.

I am going to suggest zoom lunches..

Thanks!

Take good care..

B..

Bunkin profile image
Bunkin

I’m doing fine staying home. But now it’s time for lab and I’m scared to go there! Called doctors office, they were of no help. Couldn’t tell me what I should do. Since I’m nearing dialysis, I’m wondering what’s gonna get me. Corona virus or kidney disease! I resolved to do spring cleaning but the fatigue doesn’t carry me very far😂😂 Im also working on a jigsaw puzzle and playing with my dogs. I live in the country so I can go out without seeing anyone 😊

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Bunkin

Bunkin,

Check with your doctor and try to talk to the doc. Have them call you when it is convenient. The nurses and other office staff cannot and should not tell you to go or not to go to the lab. Just like they should not diagnose.

You say you are close to dialysis? How close? It would make a difference in whether I would go have labs.

I am stage 4 and I am not going to keep my nephrologist appointment for next month. Her office is located in the hospital and I am not going anywhere near that. I asked for her to let me do my labs later in April if things calm down and we can go over the results via phone.

Bet117 profile image
Bet117NKF Ambassador in reply to Bassetmommer

Agreed!

Jayhawker profile image
Jayhawker in reply to Bunkin

I had to go to the lab this past Monday for the monthly transplant labs. I was definitely a little nervous. But this is what I did:

1. Washed hands thoroughly first.

2. Put on disposable gloves.

3. Took Clorox wipes with me to wipe down chairs in the lab waiting room, etc.

4. Took my gloves off and threw them out as I came back home. This was in the garage do they didn’t come back into my house.

5. Took all clothes off in the mud room. Put them and my cloth purse in the washer. Added detergent and Clorox. Washed and dried them.

6. Washed my hands thoroughly and then Showered.

7. Dressed.

8. Sanitized door knobs, light switches, counter tops, faucets, keys, garage door opener, phone, magnifying glass (I have a low vision impairment), my cane, and the soles of my tennis shoes with Clorox wipes. Threw the wipes out in my garage trash

9. Washed my hands thoroughly one more time

I’m not sure I needed the disposable gloves. I could have used hand sanitizer while at the lab and after getting back in the car...

So Clorox wipes, laundering clothes and hand washing are the keys with my approach...

Jayhawker

Bunkin profile image
Bunkin in reply to Jayhawker

I plan on doing all those things😂😂😂

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Jayhawker

Excellent self-care procedures to follow for those who simply must go for doc/lab appointments!

A nurse friend said she was also using cholrox wipes on shoes after removing them once home in the garage.

Bunkin profile image
Bunkin

Unfortunately you can’t speak to the doctor over the phone only the nurse. The nurse should’ve asked the doctor but getting them to do anything is like pulling teeth! I will be going next week to do labs. I went to a concert on the 7th and self quarantined for 14 days. So if I have no symptoms I will go Monday for labs. Sure don’t want to infect anyone if I by chance have it. I just feel doctors office could’ve been a little more supportive

in reply to Bunkin

I had to have labs run this past Monday. As soon as I walked into the clinic office I had my temperature taken and told I could proceed to the lab. I left after that. All communication post-lab draw has been done via the portal. I have no other appointments until April so as long as I have no symptoms, I should be okay to go and just be careful of others who don't understand about social distancing. I also carry a small container of sanitizer with me for just those times when I run into someone who is clueless. It happens.

orangecity41 profile image
orangecity41NKF Ambassador in reply to Bunkin

Town near where I live has a lab that does blood draws from your car. Maybe check to see if one near you.

Bunkin profile image
Bunkin in reply to orangecity41

Thanks for the tip! It reminded me that the girl at quest lab that used to do my lab left to start her own Mobil phlebotomy service. I found her! So now I don’t have to go our😊

orangecity41 profile image
orangecity41NKF Ambassador in reply to Bunkin

You are welcome. Glad could be of help.

Bassetmommer profile image
BassetmommerNKF Ambassador

Holy moley, that is thorough. I am disinfecting all our doors and light switches, doing laundry every day, I have and sanitizer and alcohol pads (no wipes they were out) for the times I have gone out before all this hit. Now we are only going to the park and staying away from people and not touching anything outside out house.

The virus is now really bad here. We had one fatality. The hospitals and clinics are going to telemedicine. I am only stage four and have been stable for two years. I don't feel different, so I do not think it is worth the chance to take going to the labs. I am also on immunosuppressant drugs and have been for 14 years. And I am not going for my infusion this month either. NOPE, not worth it. I'll be achy over coughy. :)

WYOAnne profile image
WYOAnneNKF Ambassador

Continue to stay well everyone! Everyone seems to be doing the right thing to stay healthy. My husband and I are both retired, so really don't have to go out, EXCEPT to look for toilet paper! ha, ha...who would have thought that people are hoarding TP!

I was sick a month ago with a stomach bug. So, my nephrologist has me taking my temp daily. It seems for many that is the first sign.

Here in Casper, WY we don't have any cases, but some in Sheridan, Cheyenne and Lander. The state is so spread out that everyone hopes it does not make it here. All infected are at least 150 miles away.

Restaurants are still open but are all doing free delivery and pickup.

All non-essential doctor appts are being cancelled

I am a Meals-on Wheels driver. The number of people needing it now has more than doubled. We are told to meet the person at the door and not to go inside and visit when delivering meals. That is my favorite thing to do.

I am a volunteer with the Donor Alliance here. April is National Donate Life month. All events have been cancelled. Hope it does not have a big impact.

Crazy, scary time. Stay well all!

Lilly234 profile image
Lilly234

Hi, Bassetmommer. I am a Stage 5-4 (it fluctuates) kidney failure patient. I go to dialysis 3 times a week. I have no choice. They take our temperature as soon as we enter the building and give us masks to wear. Wednesday, we received a letter in case they impose a curfew. If I get stopped by being out after the curfew, I pull out my permission letter. I am 71 and am not too concerned. Our grocery store opens at 6:00 a.m,. for the elderly only, until 8:00 a.m. We also have curbside pick-up and delivery. I am retired so do not have to go out unless I have to. I went out last Saturday -- to the Bay Beach Animal Sanctuary, out to eat and then to the casino with my kids. There were a lot of people out and, I guess, a lot of people are not as concerned. Take care, and don't worry too much. We still have to live our lives and this will be over soon. They have vaccines for this.

in reply to Lilly234

Lilly234, I don't know where you are getting your information but before someone reads your post I felt it necessary to correct your statement. At this time there is no vaccine for coronavirus. The earliest estimate is that one is about 12 months out and possibly longer. This shows no sign of being over soon, so please be responsible with your comments. This is a serious disease and do not make light of it.

Lilly234 profile image
Lilly234 in reply to

This is no more serious than the flu. Maybe I heard the wrong things about the vaccine; however, everyone is in a panic mode for no reason. This is being controlled and I, for one, am not worried. I think you should keep your thoughts to yourself.

in reply to Lilly234

Please just be responsible for what you post here. You can live your life any way you choose, just don't post misinformation here for others who take this seriously. Have a good day.

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Lilly234

HI Lilly,

Your information is incorrect. They do NOT have proven safe vaccines. And they won't for a while. And while you think you may be impervious to this, there are others who this WILL kill. This virus is way more dangerous than the FLU and that is because there is no protection from it like a preventative shot, they are not 100% sure of the transmission of it and it is way more contagious than the flu. It has already mutated and could very easily do so again. Another fact is the speed in which this affects the patients once infected. Some people are carriers and have no symptoms and are spreading it. It destroys the body, especially the lungs. There are people who recover but they end up with impaired lungs and other comorbidities. I am not trying scare anyone. But please, be factual. And verify you information.

Mine comes from the University of Rochester Medical Center, Dr. Cushman, who is the head of EMS for our area which is quite large.

Be safe and be smart.

Jayhawker profile image
Jayhawker in reply to Bassetmommer

Bassetmommer,

Your information is consistent with what I’m hearing in the Midwest. While medical personnel and researchers are doing their best to get this figured out and a viable vaccine in place, they really do need for us to follow the guidelines they’ve given us. I only hope and pray that persons throughout the nation will commit to following these guidelines.

I do think that panic isn’t helpful. But panic is different than informed caution. I was nervous when I had to go to St Luke’s Hospital for my monthly transplant labs Monday. But I put some thought into how I wanted to approach it and then got myself to the hospital.

They checked my temperature as soon as I got to the hospital. They also asked if I had been coughing. They then let me in and I went to the lab. They had just wiped the chairs down so I didn’t need to use the Clorox wipes I’d brought with me. I did find that a few of the other patients there were sitting pretty close together and so were not abiding by the distance guidelines we’ve been given. So I moved to the opposite side of the room to wait my turn.

I put my clothes into the laundry as soon as I got home and washed them with detergent and Clorox. I washed my hands then used Clorox wipes on all hard surfaces in my house. Then I washed my hands one more time.

I’m also carrying hand sanitizer with me in my purse and use it intermittently when I’m out of the house. Plus I’m only going out for doctors’ appointments or labs as well as for a few short daily walks with my dog.

Kansas City no longer allows dining in restaurants. All movie theaters are shut down, etc. We’re encouraged to self-isolate, particularly if we’re 65 or older and/or have various serious medical conditions including chronic kidney disease. Plus my nephrologist’s office has just set up telemedicine for all appointments.

So, yes, this is serious. But there are actions we can each take to help ourselves and one another.

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Jayhawker

To my surprise today, I got a call and an email form the Med Center I am affiliated with. One was from my regular PCP who said that all the labs in our county are shutting down accept 6 which will remain open for emergency testing only. We have over 50 labs or more in our area. Then my nephrologist emailed me and said that she wanted me to not worry about my labs and to skip my April appointment. I have one on the calendar for August. That blew my mind. She also said that all doctors are all doing telemedicine anyways.

I hate to say it but I did a little happy dance. I hate going for labs because.... well you know..... it is scary.

Jayhawker profile image
Jayhawker

I’m so close to dialysis that they do want to keep monitoring my labs but I’m excited about the telemedicine as well!

Jayhawker

I haven't been out in a month. I live in an apartment for the over 62 age group. The halls are dead quiet - we are talking to each other through the doors. All maintenance is designated emergency only for the time being. The office is closed to visitors. I needed to sign some papers and they left them on my door and then picked them up after they were signed. It is depressing as all activities have been suspended but it had to be done. The apartment managers had a good plan in place and executed it promptly.

I have 1 doctor's appt. coming up that will be on facetime.

In the evenings I go outside and walk around the complex for some exercise.

I have no family in the area and my caregiver is my lifeline. She goes to the store for me and we are keeping everything well stocked in case she gets sick. We pray she doesn't.

I talk to my relatives often. I'm not lonely but I have a little cabin fever.

We will make it through this.

Jayhawker profile image
Jayhawker in reply to

I know what you mean; I suspect many of us, especially those of us who live alone, are feeling the same.

We’ve just got to hang in there🐶

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador

Its too bad that the dogs that are in the shelters right now can't be brought to seniors to take care for a while. It would be a win win situation.

Jayhawker profile image
Jayhawker in reply to Bassetmommer

Actually, one of our fog shelters did ask for people who were willing to provide foster care for their shelter dogs.

Jayhawker

Lilly234 profile image
Lilly234

I may have told you something the other day that I did not think about and I apologize. There is no vaccine for the virus but they are working on it.

Our State will be having a curfew starting on Monday. I have a curfew letter that states that I have dialysis 3 times a week and need to get out of the house. We don't know, yet, what time the curfew will be. My daughter and I are not too worried. We plan on going to the store today and get some items and then stay in the rest of the weekend. Take care.

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Lilly234

thank you Lilly for writing and I think you owe Mr. Kidney an apology. We are a strong community here and very protective our members. We make sure we put out sound information and advice. So when he corrected you, it was for the good of the group and not personal. Please be careful because you who are on dialysis are very much in the demographics who should take extra caution. Having a cavalier attitude could kill you.

Stay safe.

Klove22 profile image
Klove22

Freeking out. I have Stage 3 kidney disease and diabetes. I HAVE to go out to pay bills and grocery shop. I've been self isolating since labs done on March 9. I have watched news. People at grocery stores don't practice 6 ft social distancing. I have blue gloves. Guess I won't care if I look paranoid to other's. I've even rescheduled all doctor's appts. My doctor's are pre-screening. I plan to watch less news and read 6 books I have instead. Neighbor who drove home other neighbor is consistently at my door. Neighbor she gave ride home to, was at ER 3 minutes away with 1st case of virus reported near me.

Jayhawker profile image
Jayhawker in reply to Klove22

I’ve been self-isolating for about 3 weeks now. The city I live in was just placed on mandatory stay at home starting midnight last night. So today is the first of 30 days we’ll be following this stay at home order.

My neighbors and I check in with each other most dats via the phone. They know I’m at high risk due to both my age and my chronic kidney disease (Stage V but not yet on dialysis).

I’m using Instacart to deliver my groceries. My medications are delivered directly to my front door.

I go out for labs and doctors’ appointments only. I’m still working but totally from home. I connect with friends virtually via Zoom, a video conference program my place of employment uses. I’ve had a “virtual” lunch with a good friend and colleague late last week. We both ordered delivery to support local restaurants and then logged in to zoom to visit with each other as we ate. (We’re both single and live alone.)

I’ve watched movies, read books, etc. when I begin to feel stressed out I hop on my elliptical machine and do a short, 12-minute easy workout (preprogrammed).

This past weekend I began creating an eBook for parents of children with autism. I’ll make it available to them for a very modest price on Amazon. They are all home schooling their children in many states right now so could likely use this set of learning activities with accommodations for their children; activities they can teach in their homes using stuff they have on hand. (I’m a special education faculty member with quite a lot of background in autism so hope this will be of help for these families.)

I’ve also been baking, something I love to do. I’m a diabetic too though. So I’ve been taking my baking to my neighbors and leaving it on their front porches then calling them to let them know so they can go out and pick it up. I dropped off a small loaf of raspberry banana nut bread this past Sunday morning for both of my neighbors. We share a driveway fir all three houses. Do when it gets a little warmer out we’re planning to order delivery from a favorite restaurant. We can then eat outside with appropriate distance between us and visit. That will be fun!

My church has gone online so I’m able to participate in Sunday morning church services as well as the women’s group and my bible study via my computer.

And finally, I’m taking my dog, Izzy, out for several short walks during the day just to break the day up some. I don’t touch anything while out. I don’t sit on any benches, etc. And I wash my hands and use Clorox wipes to disinfect door knobs and all other hard surfaces when I come back inside.

I’ve established a new daily routine and stick to it. That seems to help me. I visit with several friends throughout the day. And I watch just enough news to be current as they learn more about COVID 19. Thankfully I’m still working; that really helps a lot. I just don’t have time to dwell on COVID 19.

We can do this; its about establishing new daily routines. It’s also about understanding what we need to do to protect ourselves and doing it. And then we hope for the best and get on with our lives in this new reality we’re each experiencing🐶🐶 We’ve got this!

Jayhawker

Klove22 profile image
Klove22 in reply to Jayhawker

Thank you for the idea's. Unfortunately I can't bake, although I love 2. I have a full size oven that has never worked. I went out off lockdown due to Corona virus today. Freeway was creepy. Hardly any passenger car's. Only 🚛. I went to two stores, reluctantly. One, grocery store. There was only one woman who didn't practice social distancing. And a man who didn't. Wanted to knock both of them out. Just kidding. I'm quite inventive. No paper towels, cleaning stuff at grocery store. Went to AutoZone for 2 boxes of blue mechanic rags in a box of 200. Material similar to paper towels. Disinfectant, claiming to kill 99.9% of bacteria, etc. At pet/vet supply store where I bought dog food. I did ask next door neighbor if he needed anything from grocery store. He likes oatmeal cookies. Bought him 2 dozen. Wiped plastic with rubbing alcohol and put in bag on his front door. No thank you. I did find a case of water. Soap similar to what surgeons use to scrub b4 surgery called Hibiclens for hands, body, wound disinfectant substitutes antibacterial soap. Needs water. Have a cousin who was a nurse inform me about. It's quite expensive. I bought last box. It's in first aid section of drug store. Tomorrow is disinfecting my car. Had paper towel in bag soaked with rubbing alcohol in plastic bag. Wiped steering wheel, etc when getting in and out of car. There are more death's in my county today. I pray all of you won't get ill. Thanks for reading my long winded text. Hope some of my information helps.

Jayhawker profile image
Jayhawker in reply to Klove22

I’ve been using hibiclens too. I just ordered more of it from Amazon so I won’t need to go out again. It will be here before I run out.

I’m glad you were able to get out to get what you need. It sounds like you took appropriate precautions. That’s all any of us can do; stay in home as much as is possible. Go out only when truly necessary. Take appropriate precautions when we have to go out. Then hope for the best.

Jayhawker

Klove22 profile image
Klove22 in reply to Jayhawker

Unfortunately I have to go out again when I get paid. My rent will b due and car insurance. The one doctor's appointment I have for the rest of the month, is calling his patients. Then more bills are due towards the end of the month and I will have to go out. I will run out of food. There wasn't much food left to buy when I went out last time. This time I will b wearing latex gloves. Read somewhere they don't help. However a lot of people were wearing them last time I went out. I'm wearing them anyway.

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Klove22

The issue with gloves is the removal more than anything. Gloves are to protect people with from passing germs. When you take them off, there is a way so that you do not touch them. You have to pull down with a finger and …. well, it is not as easy as you think. When you snap a glove off you spread all the contamination.

Truthfully, using sanitizer and washing your hands is a better idea. You can still touch your face with the gloves.

youtube.com/watch?v=S4gyNAs...

Jayhawker profile image
Jayhawker in reply to Bassetmommer

I agree that the gloves don’t really help a lot. Plus, they aren’t available in my area any longer. I think they’re all going to medical places in my part of the nation... Jayhawker

Jayhawker profile image
Jayhawker in reply to Klove22

I’ve been hand washing and using hand sanitizer when I have to go out.

Are you able to set your bills up to pay them electronically? All my bills come directly to my checking accounts. I then pay them from my house using my computer. I could also use an app fir my bank on my phone.

Instacart will deliver groceries. I believe they give you one month at no cost. It would be worth contacting them to see if they are charging monthly subscription fees to new subscribers now specifically due to the virus. I actually find it cheaper to use instacart than drive myself to/from stores to shop even though I do pay an annual subscription fee... I’ve literally calculated this to see which is more expensive...

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to Jayhawker

I am using Instacart for a grocery pick up on Saturday. I ordered on Monday. So it is slow to get your order and it does cost more. But I like the convenience right now. We will see how it works out and if I get my groceries as I ordered them. They also no longer had the free trial but I was not made to subscribed either.

Jayhawker profile image
Jayhawker in reply to Bassetmommer

Yes, they normally deliver within a few hours of placing the order but it’s several days later now; sometimes a week later. They have done a good job for me in my area. I’ve been using them for about 18 months. Only once was there an error with my order. They immediately refunded me money fir the error after I contacted them to let them know. They always choose good fresh produce. And, they contact you if something you’ve ordered isn’t available.

Anyway, when I’m not feeling well they have been a reliable food source for me so I’ll have the fresh produce I need to eat appropriately. This is critical for me because I live alone and am the last person living in my family. Neighbors do help but this is easier for everyone🐶🐶

Jayhawker

Bassetmommer profile image
BassetmommerNKF Ambassador

I want to share this because I think it is so great. Someone in my little village came up with this idea. They are reading a children's book about bear hunt. It is referring to stuffed bears, I believe. I am not familiar with it, I have no young children. However, they posted on our Nextdoor social media site that they were taking their kids for a bear hunt around the neighborhood, and would the neighbors put a bear if they had them in the window. Well, it has now spread to the whole village and people are putting bears in the windows for people to see and to "wave" at the kids. I did not have bears, but put Millie the Moose in my front window and now she won't get out of the window. So today, I am going to put her husband, Maurice in the window too. Well, this sparked an idea for April to have everyone participate and put different animals in the windows and create a zoo hunt. I just think it is so cute and heartwarming for people to do this. And it is fun to see the different "beasts" when we go walking.

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