What numbers on Tests should we really be worried about?

[Olivia007]

When we first went to the nephrologist he said although my husband has a low GFR, HIgh BUN, Creatinine, BUN/Creatine Ratio and Low Red blood cell, low hemoglobin, low hematocrit. My husband is ok because there is no Protein in his urine? So I think because of the "no protein in urine" comment my husband thinks all is well, His gfr is 36. So is that true unless there is protein in the urine we really shouldn't worry?

Any input would help. I thought with all his number so low or high that's bad? Now I think I see why my husband is acting like no big deal?

[Hidden]

Your husband is in Stage 3. When I was diagnosed two and a half years ago my GFR was at 32. Since then I've managed to get it as high as 65, but more importantly, I've averaged 51 for my GFR. It can be done. I stick to my kidney-friendly meal plan, designed by me and a renal dietitian based on my lab values. I exercise every day, weather permitting, and when the weather won't cooperate, I use an incline machine.

I take my meds as required, keep all of my appointments, and actively work with all of my doctors to stay off dialysis for as long as possible.

I'm retired and I like my life. I travel in my RV and will do all I have to in order to maintain that lifestyle.

GFR and creatinine are the prime numbers to look at. However, there are other numbers to watch that may signal other issues that could cause complications. He should be looking at protein, potassium, phosphorus, sodium, and calcium. A renal dietitian will help him design a meal plan for him that will encompass everything. He can have it vegan, vegetarian, or with some fish and poultry.

[Olivia007 in reply to Hidden]

Thank u, the difference is my husband is also in denial and is eating anything and everything it’s sad. But that’s wonderful for u keep up the great work. Your amazing!!!

[Hidden in reply to Olivia007]

Have you had him complete an Advanced Directive and a Durable Medical Power of Attorney? If not he should and soon. If he refuses, please see an attorney for advice on how to protect you from issues that can and will arise. Best of luck.

[jesselizzard in reply to Hidden]

Thanks for your input. Could you share your diet information. I would truly like to get my GFR number up. I was at 24 and went on plant based diet. My GFR went to 28 but has not moved up. Any recommendations are appreciated. Thank you, Barbara

[Hidden in reply to jesselizzard]

My kidney-friendly meal.plan was made by me and with help from my renal dietitian after reviewing my lab results for the previous year.

I wasn't into vegan or vegetarian only meals so we added in fish and poultry. I've done well with that for over two years until this past October. I had my gallbladder removed so I had to cut out the fattier fish, like salmon and catfish.

I use a lot of fresh vegetables, nothing frozen or canned. I use a lot of the recipes from the wwwdavita.com website but I make further adjustments to lower the sodium, phosphorus, and potassium levels and I'm at 8oz. of protein each day.

A good renal dietitian, who reviews your labs and works with your preferences is the key.

Best of luck.

[jesselizzard in reply to Hidden]

Thank you & wish you all the best.

[Raclette in reply to jesselizzard]

The same here I would like to know re your diet!

[KidneyCoach NKF Ambassador]

Kidneyschool.org is a great place for information. Personally I would seek a second opinion. Even a GFR of 36 is concerning protein in urine or not. Definitely seek out a referral for a renal dietitian for dietary advice.

Blessings

[HealthBuddyMelissa]

I think all of those labs are concerning. It appears your husband is anemic which will not only make more complications for kidney disease but can also be quite uncomfortable with low quality of living. He also has to be concerned with bones and teeth plus his blood pressure and heart. There is more to kidney disease than just protein in the urine. I have to remind my nephrologist all the time that I am concerned about my bones as I get older. He just seems to think it is not important. Have your husband do some research. He definitely shouldn't eat whatever he wants unless his goal is to go on dialysis. Your doctor has a point that it is not urgent at this stage but being laid back about it isn't a good idea either.

[Olivia007 in reply to HealthBuddyMelissa]

Thank you I agree