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Small fiber polynueropathy, often misdiagnosed as FND, a personal story:
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Not my story but one I was given permission to share: I was originally diagnosed with fibromyalgia, and then later diagnosed with a connective tissue disorder (EDS). My diagnosing geneticist also told me that fibromyalgia was an inaccurate diagnosis, and dropped it. He informed me that I had small fiber
Lady4
in
Functional Neurological Disorder - FND Hope
7 days ago
Co-Amoxiclav side effects with Disopyramide/AF?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
Hi, just started taking Co-amoxiclav as an antibiotic, and now seem to be getting an increase in AF symptoms. Still taking Disopyramide, but this seems to be less effective at rate control than it has been previously. No Caffeine, no alcohol, so no obvious triggers. Anyone else experienced this?
DE-AF
in
Atrial Fibrillation Support
10 days ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
14 days ago
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Leflunomide - be alert!
I was diagnosed with severe bilateral ulnar neuropathic with sensory abnormalities in lower limbs and median and radial nerves in upper limbs. The neurologist says this is probable toxic neuropathy secondary to Leflunomide (based on correlation between the onset of the problem and the time of introduction
I was diagnosed with severe bilateral ulnar neuropathic with sensory abnormalities in lower limbs and median and radial nerves in upper limbs. The neurologist says this is probable toxic neuropathy secondary to Leflunomide (based on correlation between the onset of the problem and the time of introduction
Steal
in
PMRGCAuk
19 days ago
What did I miss???
Hi to all. Sorry I missed tonight sharing. Anyway to get summaries? Went to pain meds and discussed Baclafin pump and pain meds. Nervous since I deal with multiple symptoms. Spasticity, bowel and bladder, neuropathy? Foot pain. I try to research. Not good taking just anything for pain. Neurpathic neuropathy
Hi to all. Sorry I missed tonight sharing. Anyway to get summaries? Went to pain meds and discussed Baclafin pump and pain meds. Nervous since I deal with multiple symptoms. Spasticity, bowel and bladder, neuropathy? Foot pain. I try to research. Not good taking just anything for pain. Neurpathic neuropathy
Irishgirl76
in
My MSAA Community
25 days ago
Leflunomide
Hi just an update on my journey, its been about 3 yrs of not being able to reduce pred mainly being at 15mg , rheumatologist wanted me to try Leflunomide I resisted for too long wish I hadn't after 2 weeks felt a great improvement it's my third week now and Wow feeling much better doing more jobs hips
Hi just an update on my journey, its been about 3 yrs of not being able to reduce pred mainly being at 15mg , rheumatologist wanted me to try Leflunomide I resisted for too long wish I hadn't after 2 weeks felt a great improvement it's my third week now and Wow feeling much better doing more jobs hips
Marko666
in
PMRGCAuk
2 months ago
Leflunomide, Mycophenolate, Azathioprine instead of TCZ, that was the question
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Japsquar
in
PMRGCAuk
2 months ago
Prucalopride & Pelvic floor pain
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hopetobewell
in
Pelvic Pain Support Network
3 months ago
I just need to vent!
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Bramble2000
in
PMRGCAuk
4 months ago
RLS Absence and Clarification
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
vikkitennis
in
Restless Legs Syndrome
4 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
4 months ago
Complementary therapies?
I have just come to the end of the chemo radiation and seemingly I now wait about three months before having a PET scan and a fibroscopy to see how effective the treatment has been and what might be the next steps. Just for my own sense of well being I am thinking about trying some complementary therapies
I have just come to the end of the chemo radiation and seemingly I now wait about three months before having a PET scan and a fibroscopy to see how effective the treatment has been and what might be the next steps. Just for my own sense of well being I am thinking about trying some complementary therapies
Vitex
in
Oesophageal & Gastric Cancer
4 months ago
Lorenzo's Oil Revisited
Chances are you don't take it. I investigated it thoroughly and even had a decent source secured. I only opted out when I was told it would nullify my medical insurance. Depending on whatever scientific report you read it either doesn't work, or stops/reverses progression if you start taking it before
Chances are you don't take it. I investigated it thoroughly and even had a decent source secured. I only opted out when I was told it would nullify my medical insurance. Depending on whatever scientific report you read it either doesn't work, or stops/reverses progression if you start taking it before
monkeybus
in
AMN EASIER
5 months ago
Leflunomide thanks
Thank you allfor replies on Leflunomide and peripheral neuropathy. I did look on forum but didn't find anything that seemed as alarming as I felt mine was, with the muscle wasting and skeletal hands. Heron, thanks for physio suggestion, I have been doing my best to exercise hands, but I mght be better
Thank you allfor replies on Leflunomide and peripheral neuropathy. I did look on forum but didn't find anything that seemed as alarming as I felt mine was, with the muscle wasting and skeletal hands. Heron, thanks for physio suggestion, I have been doing my best to exercise hands, but I mght be better
Steal
in
PMRGCAuk
5 months ago
Leflunomide neuropathy
Sorry about unfinished post. No dexterity, pressed wrong button. On routine appointment to Rheumi in June I asked about pain, numbness , muscle wasting etc in hands. He said unlikely to be related to my GCA. I was already unhappy with Leflunomide and said I was going to stop taking it. He had no interest
Sorry about unfinished post. No dexterity, pressed wrong button. On routine appointment to Rheumi in June I asked about pain, numbness , muscle wasting etc in hands. He said unlikely to be related to my GCA. I was already unhappy with Leflunomide and said I was going to stop taking it. He had no interest
Steal
in
PMRGCAuk
5 months ago
auto injector
hi does anyone use an auto injector ? If so which one is bedt snd can you use needles purchased from anywhere or would i have to buy from same place as i get the auto injector . i will be injecting in upper arm muscle . I would be very grateful for any advice please guys as i havnt got a clue x
hi does anyone use an auto injector ? If so which one is bedt snd can you use needles purchased from anywhere or would i have to buy from same place as i get the auto injector . i will be injecting in upper arm muscle . I would be very grateful for any advice please guys as i havnt got a clue x
Elainedean
in
Pernicious Anaemia Society
5 months ago
And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
5 months ago
discomfort or??
I am currently on 8 mg after tapering from initial 15 mg dose after PMR diagnosis and almost Immediate relief of symptoms. I have tapered from 15 to 12.5 to 10 and then by 1 mg each month afterwards. I don’t have the PMR pain I had at diagnosis but I find when I wake up in the morning I have some
I am currently on 8 mg after tapering from initial 15 mg dose after PMR diagnosis and almost Immediate relief of symptoms. I have tapered from 15 to 12.5 to 10 and then by 1 mg each month afterwards. I don’t have the PMR pain I had at diagnosis but I find when I wake up in the morning I have some
Fishtacoqueen
in
PMRGCAuk
6 months ago
tapering too rapidly after synovitis?
I have now had PMR for about 3 1/2 years; several months ago my hands became very painful, and I was diagnosed eventually with acute synovitis. I was told that if I did not go onto high doses of Pred. I might lose the use of my hands, so I agreed. This is the regime I am on: 20 mg pred for 2 weeks,
I have now had PMR for about 3 1/2 years; several months ago my hands became very painful, and I was diagnosed eventually with acute synovitis. I was told that if I did not go onto high doses of Pred. I might lose the use of my hands, so I agreed. This is the regime I am on: 20 mg pred for 2 weeks,
humlies
in
PMRGCAuk
6 months ago
Feeling Low
Hi, I haven’t posted on here for a while, I have been having lots of problems. I am currently on 400mg of hydroxychloroqine as I am unable to take methotrexate. I have severe burning in my back and now my stomach. I went to the A & E dept where they diagnosed neuropathy and put me in Pregabalin. It
Hi, I haven’t posted on here for a while, I have been having lots of problems. I am currently on 400mg of hydroxychloroqine as I am unable to take methotrexate. I have severe burning in my back and now my stomach. I went to the A & E dept where they diagnosed neuropathy and put me in Pregabalin. It
Wonderfullifeandmore
in
PMRGCAuk
6 months ago
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