Epstein Barr Virus at the root of hypothyroidism and much else. Any thoughts?
TSH110 in Thyroid UK2 years agoPOPULAR
I have stumbled across the theory Epstein Barr virus is at the bottom of thyroid disorders (and a lot else)
Anyone believe their Fibro is connected to other illness
cshields in Fibromyalgia Action UK5 years agoPOPULAR
I am 50yrs old and have been diag for 3yrs, but have had various symptoms since I was 17yrs. Always thought there was something wrong with m...
30 and worried about possible GCA please give me your thoughts.
Natatat123 in PMRGCAuk6 months agoPOPULAR
Hello all! I’ll try to make this story as brief as possible. I am a 30 year old other wise healthy before this. In September 2018 I got a b...
Right Brain Wrong Body
welshnut in Pain Concern5 years agoPOPULAR
I thought I would share my own experiences in hope that others may be able to recognise how I feel and maybe that they are not alone.
Afib isn't a disease,it's a malady
Jdunk in AF Associationa year agoPOPULAR
I have paroxymal afib. I do not feel comfortable taking current meds. I am not convinced that ablation is correct either, since I do not kn...
Which overlap conditions do you experience alongside your lupus?
Paul_Howard in LUPUS UK4 years agoPOPULAR
3100connecticut in Advanced Prostate Cancer2 months agoPOPULAR
One of the things doctors tend not to mention when they're listing those pesky ADT side effects, like weight gain, boobs, hot flashes, night...
Do many people suffer with food allergy with Vasculitis?
nanny4 in Vasculitis UK7 years ago
Hi all, just wondered if any of you suffer with food allergy/anaphalaxis?
My daughter is at the moment going through the is it or isn't stag...
4 Good Reasons Why You Should Take Doxycycline for Parkinson Disease
iqbaliqbal in Parkinson's Movement7 months agoPOPULAR
Please note that I had contacted one of researchers who carried out the following study for recommended dose....
Struggling to understand the possibilities
anneljenkins in Pernicious Anaemia Societya year ago
I hope you guys can help. I have been having steadily worsening symptoms for about four years which include: numbness in feet, ti...
steph75 in PSP Association5 years ago
Hello, I haven't been on here for a long time. My mum has PSP she was diagnosed 3 years ago but we think she has had it for at least 5 years...
Please be careful when stopping drugs.
Bea6 in LUPUS UK2 years ago
Hi I don't usually post but read everyday. I have lupus fibro and Parkinson's. I have just read dragonflys post re side effects and stopping...
B12 Deficiency Syptoms
Nathan12345 in Pernicious Anaemia Society3 years agoPOPULAR
I was just curious as to what symptoms you all have due to B12 Deficiency I have the following;
Pinky finger pins and needles i...
Lupus, Vasculitis and Blocked Blood Vessels
lupus-support1 in LUpus Patients Understanding and Support2 months ago
Adapted from a talk at The SLE Workshop at Hospital for Special Surgery
The word “vasculit...
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Fatigue with GCA
Hidden in PMRGCAuk4 years ago
My main symptom related to my current conditon has been a constant headache with pain and tenderness over my right superficial tempora...
Symptoms of chest infection?
Orangezebragirl in PSP Association5 years ago
My dad has psp. He chokes a lot. A lot. He seems so extra ill all the time at the moment.... stuff like always being too hot, being so tired...
Recently Diagnosed - Seeking Information
topher2018 in Pernicious Anaemia Societya year agoPOPULAR
I am a 49 year old male who was diagnosed on July 3, 2018 with pernicious anemia resulting from autoimmune atrophic gastritis based on a B12...
What are the four stages of pd? When do you know when you've passed into a new stage?
shaky in Parkinson's Movement6 years agoPOPULAR
Lovesewing in IBS Network2 months ago
Hi everyone, I new to this site, I am 71, have had constant stomach pain for over a year, had colonoscopy January this year, report after co...
UNDIAGNOSED CHRONIC RIGHT SIDE PAIN! I can't live like this! In need of advice! Please!
DLAZ in Foggy's "Invisible Illness" Support2 years ago
Hey everyone! I'm a 31 year old female, suffering with severe chronic right side/ab/flank pain everyday and need some advice, please.
My daughter with lupas
selinamcnair in LUPUS UK4 years agoPOPULAR
Hi my daughter was diagnosed with lupas last year can anyone help she has these symptoms that the specialist is baffled with after going to ...
Robbo1 in PSP Association2 years agoPOPULAR
B went into hospital 9 days ago with groin pain. After several scans and lack of peg feeding for 33 hours, they decided not to ope...
Just an observation
backisbad in Pain Concern5 years agoPOPULAR
however, have noticed several people suffering from lower back pain also suffer from IBS. Could there be any connection? Have suffered from...
Professor Graham Hughes' Blog October 2017
MaryF in Sticky Blood-Hughes Syndrome Support2 years ago
BLOG – October 2017
In October, I was a guest speaker in Porto, Portugal. It was at an international immunology meeting, and one of the 2 day...
I think I'm losing the plot....desperate for some perspective
Lulu_65 in Pernicious Anaemia Society2 years ago
I have been self injecting b12 since last August.... With very good results. I have never made a full week before symptoms return so have b...
Just a little moan
RJGFiona in Pernicious Anaemia Societya year agoPOPULAR
So since being diagnosed a couple of months ago I have had all my loading doses and do feel a little less tired. Apparently my B12 was 70 an...
Azathioprine or methertrexate
bunker1 in NRAS4 years ago
Went on Friday see my consultant and told him about the symptoms been having bad tummy,joints feel like joints starting to swell, fatigue,so...
Causation of vasculitis.
Albasain in Vasculitis UK5 years agoPOPULAR
What research is being done as to the causation of vasculitis in its various forms. Possible outside agents such as viruses triggering an a...
What do you think has cause your fibro?
WorldOHurt in Fibromyalgia Action UKa year agoPOPULAR
Personally I think stress (or emotional trauma) longtime has caused mine.
Prolonged diarrhoea and psychosis
Spogofadog in Pernicious Anaemia Society6 months ago
My PA was first diagnosed after a first episode psychosis. I became increasingly paranoid over the weekend but in a moment of calm I b...
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