Just wondered if anyone was in, or has been in, a similar situation to me to help ease my mind a little.
Basically, I gave birth to my son (my first born) 6 weeks prematurely (33+5) in July due to my waters going early. He had the cord wrapped round his neck at birth, spent 3 weeks on SCBU due to his prematurity (he didn't have the sucking reflex as this doesn't develop til 35 weeks) and was jaundice for a few months and weighed 4lbs but otherwise did well from the start and was (and is) a small but otherwise very healthy boy.
He's now 5.5 months (but really 4 months if he were born on time, and this is the age we're using to track his milestones) and weighs around 11 or 12lbs. Lately I've noticed he's not meeting his motor skill development milestones. Cognitively, he seems spot on - he's very smiley, tracks well, babbles and coos and has a strong attachment to myself and his dad. However, his upper body strength is very weak - he can hold his head up (albeit wobbly) when held upright, and at 45 degrees (again a bit wobbly) when propped up on his tummy time toy, but when pulled up by his arms his head lags backwards like a newborn and when placed down flat on the floor he can only move his side to side, not up. He also seems to have very little arm strength and when on his back can't reach far or lift his arms above his head to bat items, even though he's interested in them.
The HV visitor has just said 'wait and see' and at his 3 month check said she didn't think anything sinister was going on, but that he generally was just delayed due to his prematurity. However, it's now a month after she last visited and despite lots of tummy time he's not really improved. The more I read, the more I'm convincing myself he has cerebral palsy (mixed muscle tone - he has strong legs but weak upper body and is quite hard to handle as he likes to bend his body back like he's skydiving when you hold him upright against you).
He's got a developmental review with his paediatrician in March but I'm driving myself crazy because my gut says something isn't right and it's a very long time to wait - especially as I know that if it is CP, early intervention is key.
My sister is a nurse and has suggested that he may just take a little longer than usual (even based on his adjusted age) to hit these milestones but at 4 months adjusted, I'd expect him to be able to hold his head up by now?
Has anyone else had a prem baby that was delayed or had a term baby with similar symptoms? What was the outcome?
All my friends babies seem to have had great motor skills at around just 2 months but they were term so I suppose I'm just looking for something to compare him to, to see if this is normal or if I need to get a 2nd opinion (I've taken him to the GP and discussed with the HV so far - both of which have just said 'wait and see, he's premature after all').
Thanks in advance, from a worried mummy x