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Pregnancy and epilepsy

Mango401 profile image
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Looking for anyone with a similar experience!

I have a son who is turning 4 next week - I had pre eclampsia which turned to eclampsia in the end stages of my pregnancy and ended up taking a seizure mid labour. 7 weeks on from his birth I had a seizure (tonic clonic) and was put onto epilim. I was then taken off epilim as it is not good for child bearing women. I then got put onto Keppra, which I ended up having two major tonic clinic seizures in 2016. They then put my onto Levetiracetam, which I was on for about 8 months but kept getting "electric" moments. So I then put myself back onto epilim as I knew this had previously worked well in the past.

My partner and I would really love to have another child next year, starting to try in October 2018 (after holiday!!). I've been told I need to be changed to another medication before I can try, or possibly try and come off medication altogether. I would need to try this 6 months beforehand and then see what happens. Has anyone had a similar experience? I'm so nervous but we would just love to have another so badly!

Any advice is appreciated! Thankyou x

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Mango401
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romaluna2015 profile image
romaluna2015

Levitricitiam is classed as a safe medication for epilepsy for pregnancy . I am on levitricitim have been for just over 2 years now. I am also currently pregnant and have tonic clonic epilepsy and absent seizures. Thankfully my seizures haven’t been made worse by pregnancy as long as I don’t trigger them .. I would personally follow your consultants advice . All the best xx

LindsayB24 profile image
LindsayB24

Have you ever had tegratol. I have been epileptic since I was 8 (mid 30s now) and have tegratol from the start. I'm on my 3rd pregnancy while being on this medication and so far all has been well with all my kiddies. (Had a scan today bubba no3 is fine) I'm not saying this the perfect solution as all epileptics are different but see you consultant and see what they say. You would have to give your brain a good while to get use to the medication before trying for a baby. But hopefully all will be worth it. Good luck Hun. Xxx

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