Yes, it's possible to have normal lab results and have Myositis...
Yes, i was told by a rheumatologist in February that my neurologist was wrong and I don’t have myositis because my labs don’t support it. So I brought this up to my neurologist and he was pretty upset. He then listed all the evidence he had to support the diagnosis. Needless to say, I didn’t go back to that rheumatologist. It seems to me if a doctor says that, he is obviously not well versed enough in the disease to even try to treat us.
I have a positive Mi-2 and and MRI confirmed inflammation. My CK levels are normal which they seem to put a lot of emphasis on what does this mean? Also how do I find out which one I have? I’m going to ask my Rhuemy on Thursday at my next appt
Mi2 antibody is generally associated with Dermatomyositis. An increase in CK levels are an indicator of muscle damage.
I have had obvious muscle/skin flares with no CK rise and doctor has treated my symptoms , not lab results. But also had a rise in CK and felt fine!
My muscles really hurt and I’m struggling holding my head up on bad days. It particularly affects my left side. And I have painful finger joints symmetrical in both hands. Weird but I don’t have any skin issues? I wonder if it’s IBM as looking back I think I’ve had it a few years but it’s getting a lot worse recently and I think it triggered my hashimotos I’m so confused but want to know what I have. IBM progresses slowly, has low CK levels and affects one side more than the other. Any ideas Jo? X
Normally muscle weakness is symmetrical in Myositis, but since most of us a dominant side it might be you notice weakness more in one side than the other.
It's possible to have a type of non destructive arthritis when you have Myositis, for several years my hands were extremely painful and swollen.
The pattern of weakness is different in IBM to Polymyositis/Dermatomyositis; in IBM quads and forearms are particularly effected myositis.org.uk/Documents/I...
If your neck is effected it's more likely to be PM or DM myositis.org/learn-about-my...
returning. Miss everybody and all the help you have given me.
June 16 for myositis. Can anyone help what exactly I could be treated for? Can myositis be a symptom...
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