Yes, it's possible to have normal lab results and have Myositis...

Yes, it's possible to have normal lab results and have Myositis...

Yes, it's possible to have normal lab results and have Myositis...

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Yes, i was told by a rheumatologist in February that my neurologist was wrong and I don’t have myositis because my labs don’t support it. So I brought this up to my neurologist and he was pretty upset. He then listed all the evidence he had to support the diagnosis. Needless to say, I didn’t go back to that rheumatologist. It seems to me if a doctor says that, he is obviously not well versed enough in the disease to even try to treat us.

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I have a positive Mi-2 and and MRI confirmed inflammation. My CK levels are normal which they seem to put a lot of emphasis on what does this mean? Also how do I find out which one I have? I’m going to ask my Rhuemy on Thursday at my next appt

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Mi2 antibody is generally associated with Dermatomyositis. An increase in CK levels are an indicator of muscle damage.

I have had obvious muscle/skin flares with no CK rise and doctor has treated my symptoms , not lab results. But also had a rise in CK and felt fine!

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My muscles really hurt and I’m struggling holding my head up on bad days. It particularly affects my left side. And I have painful finger joints symmetrical in both hands. Weird but I don’t have any skin issues? I wonder if it’s IBM as looking back I think I’ve had it a few years but it’s getting a lot worse recently and I think it triggered my hashimotos I’m so confused but want to know what I have. IBM progresses slowly, has low CK levels and affects one side more than the other. Any ideas Jo? X

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Normally muscle weakness is symmetrical in Myositis, but since most of us a dominant side it might be you notice weakness more in one side than the other.

It's possible to have a type of non destructive arthritis when you have Myositis, for several years my hands were extremely painful and swollen.

The pattern of weakness is different in IBM to Polymyositis/Dermatomyositis; in IBM quads and forearms are particularly effected myositis.org.uk/Documents/I...

If your neck is effected it's more likely to be PM or DM myositis.org/learn-about-my...

myositis.org/learn-about-my...

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