Ankara in PMRGCAuka year agoPOPULAR
Well on reading the other posts I do not seem the only person to have had different diagnosis. At times I have wondered whether in fact my i...
tremarel in LUPUS UK2 years ago
Morning all my lupie friends . Was wondering if anyone is suffering with myositis?
Been having pain & weakness in my legs for ages now & fin...
Statins and Myositis
SDRM in Myositis UK2 years ago
Does anyone have any experience of muscle pain caused by statin medications?
I have been taking a variety of statins for (I think) around 20 ...
Myositis and Exercise
Can anyone throw light on another issue I am interested in, related to myositis of skeletal muscle - thighs, buttocks, and sometimes lower l...
Myositis and MG?
Goldyukr in Myasthenia Gravis Association2 months ago
I have Myositis and my neurologist feels I probably also have MG. I’m curious if anyone else has both of those? If so, any tips on helping ...
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Linorandthewolf in Myositis UK2 years ago
Maybe you guys can help me out, I've already been diagnosed with lupus but for the past little while I've noticed gradual weakness in my upp...
wotshernameagain in LUPUS UK5 years ago
Just been told by my Rheumatologists that I have Lupus Myositis and I will need to have a muscle biopsy on Friday and some other tests, then...
Myositis UK AGM & Conference
Jo-Goode in Myositis UK2 years ago
The AGM and Conference 2017 will be on Sunday 2nd July at the Oxford Belfry Hotel, Milton Common, near Thame, Oxford. The format for the day...
Myositis UK on Twitter
You can now follow Myositis UK on Twitter
Follow Myositis UK on Twitter
Jo-Goode in Myositis UK8 months ago
Myositis Forum UK
Jo-Goode in Myositis UK6 months ago
If you use facebook you may be interested in Myositis Forum UK, it's a UK & Ireland only closed group (so you have to be a member to view/co...
Myositis clinic in South East
Jan22 in Myositis UK10 months ago
I am new here and was initially diagnosed with D M three years ago. My diagnosis after lots of tests is now A N C A Vasculitis with Myositi...
Myositis conference details?
Eliotf in Myositis UK5 months ago
Does anyone have any links, summaries or other information on the conference which took place in June, for those of us outside the U.K.?
2nd Global Myositis Conference
Wishing all the myositis doctors, nurses, scientists, and physiotherapists a successful meeting at the 2nd Global Conference on Myositis, es...
Myositis Meetup in Cambridgeshire!
Jo-Goode in Myositis UKa year ago
Myositis Meetup for Coffee & Cake in Cambridgeshire!
Costa Coffee, Ely Leisure Village (A10), Cambridgeshire, CB6 2WH
Myositis UK Christmas Draw
Tickets are now available for the Myositis UK Christmas Draw, with a top prize of £500🎄
1st Prize £500, 2nd £150, 3rd £50 & other prizes 🎁
Myositis Forum UK
Jo-Goode in Myositis UK9 months ago
I'm admin for a Myositis group on facebook, Myositis Forum UK, with over 700 members
Maureenhall55 in Care Community2 years ago
I have been diagnosed with NM/Myositis and have over the course of a couple of months become totally dependent 24/7 and am in a wheelchair. ...
How painful is lupus myositis?
Spicer21 in LUPUS UK3 years ago
My GP suspects that I might have clotting issues to do with lupus and so has done some relevant blood tests, although he doesn't think I'...
The Myositis UK AGM and Conference is fast approaching on Sunday 2nd July.
The conference is free to Myositis UK members and one partner/care...
Myositis UK Conference
Looking forward to the 2017 Myositis UK Conference this Sunday 😀
On Saturday join us for Meet & Greet, whether you are staying at the hotel ...
Anyone have Hashimotos & Myositis?
MissFG in Thyroid UKa year ago
Wanting advice if anyone has both autoimmune diseases and / or on Mycophenolate pls
Myositis UK Christmas Cards
Jo-Goode in Myositis UK3 months ago
Christmas cards are now available to order, 5 designs
Myositis polymyositis help
gtn301072 in Myositis UK2 years ago
Have had moosijis for months now the dr said if could have been working for up to 4 or 5 before I new had to give up work but having real tr...
Myositis Diagnosis Problems
spiceyandsugar in Myositis UKa year ago
Please can anyone help at all? After being diagnosed with sleep apnea, 6 months into treatment I deteriorated. I had joint infla...
ANNUAL MYOSITIS CONFERENCE 2018
Tony-Burton in Myositis UK10 months ago
Does anyone know the date of the annual Myositis UK gathering, normally held in July in Oxford.,
Total body inclusion myositis
Angelique67 in Myositis UKa year ago
My mother has been diagnosed with total body inclusion myositis and her neurologist told us there is no effective treatment so we have been ...
how to use mmf 500mg for myositis
prakasarao in LUPUS UK5 years ago
One week to the Myositis Christmas Meetup!
Only a week to the Myositis Christmas Meetup 🎄 😬
Free to Myositis UK members (membership free)
Join @ myositis.org.uk/join.asp
Information, links & Myositis specialist clinics
Information, links & Myositis specialist clinics:
Admin to Myositis UK Healthunlocked - Jo Goode.
Diagnosed in 1994 with Dermatomyositis aged...
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