MRI results - all good: Just got the... - My MSAA Community

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MRI results - all good

anaishunter profile image
15 Replies

Just got the results of an MRI of brain + spine done 2 days ago. Neuro says no new lesions, no active lesions. Yeah!

Ocrevus is doing its job for me even at 1/2 dose. Blood test was done 2 weeks ago & 2 months after 1/2 dose infusion and showed B-cells depleted.

Plan is to have another blood test in 2 months to see if 1/2 dose is enough to last 6 months.

Next item to track - the MRI also showed an enlarged thyroid so now I need to go back to PCP for follow-up on that.

Happy and Safe ThanksGiving to all! Hope you can all find a way to get your ms under control and live a happy and fulfilling life while dragging your ms along with you for the journey. It's a bad companion to have, but don't let it take over.

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anaishunter profile image
anaishunter
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15 Replies
jimeka profile image
jimeka

Good news, pleased Ocrevus is working for you. Enjoy your thanksgiving 🦃

twooldcrows profile image
twooldcrows

glad you have been having a good time on Ocrevas ...i am on it and has done be lots of good ...take care and be safe ....love and much happiness...

greaterexp profile image
greaterexp

Hurrah for you!

Krista78 profile image
Krista78

Good news for you! Im newly diagnosed with MS and awaiting insurance approval to start Ovrevus hopefully in late Dec. Starting it during this pandemic scares the heck out of me (on too of the weight of it all) and hope I don't have terrible side effects.

anaishunter profile image
anaishunter in reply to Krista78

Hi Krista78 - I was also very scared after diagnosis and before being able to start treatment. The time seemed to go so slow. Waiting for the first Ocrevus infusion also required a lot of patience. Then you have to wait weeks if not months to know whether it works for you. There is too much time at hand and too many questions. Will my body tolerate the treatment? Will it work? Did I make the right choice of medicine? and more. You can ask any question to this forum, don't hesitate. We have all been there and many other places.

I have faith that you'll find the best treatment that works for you. Ocrevus did wonder for me. 6 months after the first round, my MRI showed no new lesion, no active lesion. I can only wish you that you will get similar results. Good luck, stay patient and keep strong.

Krista78 profile image
Krista78 in reply to anaishunter

Thank you for your reply and encouragement🙏🏻 The nerve pain in my head and left side and other significant symptoms have kept me out of work since September, most days in significant pain and fatigue. It is so hard to have any hope this wont be my every day. It is frightening and disheartening. Thank you for your insight and sharing your story.

anaishunter profile image
anaishunter in reply to Krista78

I can't say things are perfect under treatment but I feel so much better than prior to diagnosis. For me, this is a big win after dragging myself from day to day for 10 years.

Fatigue has receded and no longer dominates my life. Random pains are gone. I can function, work and live, even I have to put taking care of myself as a top priority (not doing too much, getting enough sleep, watching what I eat,....).

Krista78 profile image
Krista78 in reply to anaishunter

Gives me hope🙏🏻

mm1527mm profile image
mm1527mm in reply to Krista78

Going for my second full dose this week. I was diagnosed 2 summers ago. Started ocrevus half doses sept 2019. I too was very afraid of side effects and all was fine thank god hope it continues. Really helped my fatigue! You will do great, blessings

mrsmike9 profile image
mrsmike9

Much to give thanks for.

kdali profile image
kdali

Great news!! How long have you been on 1/2 dose?

anaishunter profile image
anaishunter in reply to kdali

I had a full dose on 8/2019 and now a 1/2 dose one year later on 8/2020.

All during the spring of 2020, my Tcells were too depleted (along with Bcells) to get another full dose.

kdali profile image
kdali in reply to anaishunter

Ty!

carolek572 profile image
carolek572CommunityAmbassador

So happy to hear of your results and positivity, anaishunter Be Well, Take Care of Yourself, and Keep Smiling :-D

mm1527mm profile image
mm1527mm

Wonderful news!!

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