Just food for thought

[Cierra1]

I live with MS everyday. I don't think it will ever get easier but manageable. I wake up tired. I use to take capaxone 3 times a week but stopped it on my own. Because i was getting big red blotches with heat that would last 2 weeks. Can anyone give me information on new medications for ms? Thank y'all. Have a great day. 😃

[Hidden]

I had lots of nausea 14mg aubagio on the pills iam now on 7mg not sure how I feel bout that but I too are looking at other disease modifying drug

[rjoneslaw]

I’m on Ocrevus it’s an infusion every 6 months I wish I had been on to start with. I saw results immediately after the 1st dose. Before O I was on Tecfidera it was fine but I was slowly losing certain abilities after awhile. When I went in the hospital the dr there took me off Tecfidera and recommend I go on O. It took 30 days for Tecfidera to wash out my system before I could start O

If you search the forum you’ll see others experience with it

Hope this helps

[greaterexp]

This is just a thought, but did you apply an ice pack after each injection and follow up with cortisone cream to the injection site right after removing the ice? My injection site reactions have gradually lessened, so I don't need the ice pack, but I still apply cortisone immediately after the injection.

I hope you find a good alternative quickly.

[ahrogers in reply to greaterexp]

When I was on Rebif the nurse told me to squirt Flonase on the site after the injection. It definitely lessened the redness but it was still there a little bit. Copaxone may not be as irritating.

Sounds like a discussion with your neuro is overdue Cierra1. Lots of new meds out there now and some are pills. I am on Ocrevus and like that it is only every 6 months and no injection site reactions 😁😁 some of your options are dependent on your JC virus level. I hope you have an appointment soon and find a DMT that is a fit!

[Angelchef80]

I first tried Gilenya but had to stop after 4 days, I was dizzy for about four hours after I would take it. Now I am on tysabri. It is an infusion every 28 days.

[IFwczs]

The most "popular" MS DMT today is definitely Ocrevus. My neurologist says it's the only MS DMT to slow down disability. It is for RRMS as well as progressive (I think it's the only one for progressive). I have been on it for a couple of years and love it! No side effects (but you shouldn't take it if you have family history of breast cancer).

My tiredness and fatigue were turned around when I changed my diet.

[carolek572 CommunityAmbassador]

Welcome to this forum! I am on Ocrevus, Cierra1 I was on Copaxone many years ago but stopped, at the advice of my neuro, because I could no longer tolerate it. Please let your neuro know of your adverse reaction to Copaxone, and your desire to switch to another DMT

[bxrmom]

Hello Cierra1 When I was first dx in 2006 I was on Copaxone daily. When the 3 times a week dose came out, I was on that for about a year. Then I switched to Tecfidera and have been on it for a few years now. My white cell levels started to get low, but they seem to making their way back up as of a couple of weeks ago so I am able to stay on Tecfidera.

Good luck to you in your search for a new med. Keep us updated when you can.

[Smithnova]

Talk to your doctor, there are more options every year. The more they study and research; the deeper the education of MS, the more they learn leads to more promising meds and tools. MS is hard enough to handle, let them help you find a med that works for you. There is constant research in place, always ask to discuss whats new and what could be best for you. Best of luck in finding what is best for you!

[sashaming1]

nationalmssociety.org

Injectable medications

Avonex (interferon beta-1a)

Betaseron (interferon beta-1b)

Copaxone (glatiramer acetate) - did this one with no side effects but it wasn't working very well

Extavia (interferon beta-1b)

Glatiramer Acetate Injection (glatiramer acetate -generic equivalent of Copaxone 20 mg and 40 mg doses)

Glatopa (glatiramer acetate - generic equivalent of Copaxone 20mg and 40mg doses)

Plegridy (peginterferon beta-1a) - did this one with no side effects but it wasn't working very well

Rebif (interferon beta-1a)

Oral medications

Aubagio (teriflunomide)

Bafiertam (monomethyl fumarate)

Gilenya (fingolimod)

Mavenclad (cladribine)

Mayzent (siponimod)

Tecfidera (dimethyl fumarate)

Vumerity (diroximel fumarate)

Zeposia (ozanimod)

Infused medications

Lemtrada (alemtuzumab) - I did this one with no side effects and seems to have worked fine

Novantrone (mitoxantrone)

Ocrevus (ocrelizumab)

Tysabri (natalizumab) - I did this one for 7 years with no side effects and worked fine until I tested positive for the JC Virus which could havd led to a bad side effect (PML)

Some of these are new (and also expensive! like the others I suspect)

[Violonchelo]

I had avonex since 1999 till 2005. And after Rebif till now.

At the moment My MS is stable since 2007.

It is 3 inyections at week.

I hope that your doctor help you!

😍😍😍😍