Ok, I'm in such a bad space that my poli... - My MSAA Community

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Ok, I'm in such a bad space that my political correctness has left the building.

Allen5280 profile image
18 Replies

So if I decide I need to write a post saying how miserable, unhappy, suffering and in pain. How my depression and my loneliness are pushing me to the verge of incomprenhendable suffering. If someone feels the need to tell me to get over it, or do this or do that. Especially with things that have been tried without success. I am politely trying to say.... PISS OFF. I can be MAD, I can be sad I can even be putting the noose around my neck as I write... ITS MY PREROGATIVE! The one thing that MS has granted me is the RIGHT to tell someone to kiss my grits! Ice always tried to be respectful of others but seeing as how that isn't going both ways, I'm not going to be liked on here much anymore. Jist a generalized warning on some of the things others have the nerve to say to me. I'm tired of pretending it's ok and it's going to be ok because I have MS uts killing me and its NOT OK cause it's doing it to damn slow!

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Allen5280 profile image
Allen5280
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18 Replies
agapepilgrim profile image
agapepilgrim

I hear you, buddy! Makes me furious when someone tells me “chill out, Judi”. Or, “ put your big girl pants on”. I like the shrink whol told me it’s ok to go in a room, cover my head, scream into a pillow, and cry all I want to. And another ok response when I told my brother due to intense pain with no relief in sight, life is not worth the living, he calmly said “you are entitled to opinion”. That shocked me. I am? Oh, ok. Maybe I will go find a cup of coffee and a cookie. I’m tired of eating healthy. My brother: that’s a good idea. So, Allen, go ahead, and have a bad idea. We all have them. Some of us have more bad days than good days. I do have a few happy memories. I think I will go find some frozen butter pecan fake ice cream since I’m allergic to milk. I hope you less painful day tomorrow

Allen5280 profile image
Allen5280 in reply to agapepilgrim

Thank you Judi

Amore55 profile image
Amore55 in reply to agapepilgrim

I’m with you! I absolutely hate it when someone tells me to “settle down”. I think of all the books I have yet to read, music to listen to, and how many more ice cream cones I still want to eat and then I know I am not done here with life, no matter how close I have come. But if one more person tries to tell me or “convince” me how jolly good life is I might tell them to go give a pig a 30 minute orgasm. Kelly

in reply to Amore55

Good one Kelly

No one has the same story here

Some of us are alone and have no support system....

Some of us have family and friends near us...

It definitely makes a difference!

I think 🤔 it is great, this site (people)

Make a difference and want to help.

rjoneslaw profile image
rjoneslaw

U have that right and I respect it.

Morllyn profile image
Morllyn

Yes you do have the right to your opinions and feelings, they are yours and you have the right to express them.

Most of us here have similar symptoms but no two of us have exactly the same exact symptoms nor other stressors that exacerbate those symptoms, so we cannot truly understand what you are going through/feeling.

But we care❣️

I truly hope that this day sees some relief coming your way.

Take care Allen. ❤️

in reply to Morllyn

Good words

Texandyroe profile image
Texandyroe

You absolutely have the right to share your feelings without fear of judgement or pity. This whole coronavirus isolation is pushing us all to the limits.

2littletime profile image
2littletime

👍💖

twooldcrows profile image
twooldcrows

now i like this one it shows you are alive and very well ...yayyyayayyay....thank you got you fired up and to know you are great and alive ...yayay....i liked that you enjoyed the guys joke on the pig with the long organism ...so that has described you ...wow lucky girls...take care and stay mad it has mad you feel better right ...you are alive and i hope you don't stay mad at me but i was really worried about you ...so now i will leave you alone ...

in reply to twooldcrows

Good

Mermaidia11 profile image
Mermaidia11

@Allen5280You have the right to tell anyone to kiss your ar@e; MS or otherwise - (It’s so liberating, I don’t suffer fools gladly and have been doing it for yonks!)

People here are actually trying to help and support you – they don’t know what it is like walking in your shoes, no one does; and that is part of problem...

But at least they have taken the time to reach out to you with words of support that they feel would be helpful?

Other sites wouldn’t give a flying... They just want to bang on about themselves and DMDs...

You sound suicidally unhappy Allen, we are all mortally worried about you mate

Really worried,

but none of us are trained counsellors

And perhaps therefore don’t have the right words to say

But you have to give marks for trying?

Where are you in the world?

I wish I could give you a big hug

So sending one across the t’interweb to you right now

in reply to Mermaidia11

Good words

HensTooth profile image
HensTooth

Absolutely! You are so right. Consider your grits kissed! 😘

You have the right to feel exactly how you feel. No one has the right to take that from you.

When you reach out online, people will try to help. They care about you. I hope that feels good.

All of us are dying. All of us are suffering from MS. You aren’t alone.

You have a right to feel your feelings, and this should be a safe place to share about them. Hugs to you!

Momjules profile image
Momjules

Hi!

I understand you.

But imagine you can’t even have ice cream because on top of ms you have diabetes and heart failure!

Always in pain and begging for my pain pills!

Enjoy your “ fake” ice cream and I hope you can find a way to have a better day than I.

Good luck to you!

Christina49 profile image
Christina49

Right On!!Allen5280

You said a lot of what someone of us want to say. People still look at me like I'm crazy..I get statement's like "Oh you be okay" or "Its all in your head"!Whaaateverrr! I have come to realize and accept that know one knows better than me how I feel living with MS..Its more important for me to live with it expressing and processing my feelings and thought however helps me. So Allen..keep expressing However it helps you! We are All here forYou!

Excuse my writing today. Did a lot yesterday so muscles are cramping!!

mrsmike9 profile image
mrsmike9

I hope you can direct your anger at the MS and not the people who reach out because they care. Instead of thinking of their "helpful hints", see these words, "I care about you". That's what those words really mean.

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