December Appointments, Anyone? - My MSAA Community

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December Appointments, Anyone?

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greaterexp
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jimeka profile image
jimeka

2nd hospital physio

11th OT physio

18th ms nurse

23rd hospital physio

In between lots of knee exercises, oh what fun 🤭

greaterexp profile image
greaterexp in reply to jimeka

I know it's a bit of a bother with Christmas, but I'm glad you are getting lots of physical therapy. Let us know how it's helping.

jimeka profile image
jimeka in reply to greaterexp

Will do 💐

erash profile image
erash in reply to jimeka

Your calendar needs some non-medical self time penciled in. Time to be joyful 🌲🎁🛍😊🤗

jimeka profile image
jimeka in reply to erash

I agree 🤗

stepsforNeeC profile image
stepsforNeeC in reply to jimeka

Blessings and prayers. Sunshine your way

jimeka profile image
jimeka in reply to stepsforNeeC

Thank you 🤗

erash profile image
erash

🤷‍♀️ I haven’t been getting health unlocked notifications for the past mos. (they started back up yesterday). So, hi everyone and hope you’ve been well and if celebrate, had a wonderful Thanksgiving.

I started relapsing, got a cold, got worse, did a 3 day steroid infusion. Between steroids, colder weather, and cold resolving I improved but still a limp and more spasms.

Saw MS PT yesterday and we worked on why or where the limp was originating from. New, more exercises to add to my regimen 😊

I follow up with her in January.

Worsening shortness of breath and seeing Pulmo for follow up on the 13th.

Recounting all this, it sounds like I’m broken...but I’m not.

The worst is I just miss my mom 😢💔

I do hope all are feeling wonderful! 👍😊🤗

jimeka profile image
jimeka in reply to erash

Sorry erash . It’s an awful period of time to go through. I still miss my mum after 7 years in January, but I talk to her particularly when the grandsons get good news at school or during sports. I think being down with a cold or flu, whatever, probably makes you feel worse. Tomorrow is your birthday so I hope that you feel up to celebrating, do something that brings you joy, then post and let us know how you did. Blessings Jimeka 🐼 🌞

greaterexp profile image
greaterexp in reply to erash

I'm sorry you've been through the mill lately. I'm glad you are starting to be on the mend.

I love the thought by jimeka to talk with her mom. I tend to miss my dad this time of year, and maybe this year I'll write him a letter to thank him for all he has meant to me and so many others. He's been gone for years now, but somehow, I think it will help me feel better.

By the way, my email from HU has often been stopped. HU always reports that it's because of my email provider. After this last problem, I changed my email for HU to another backup email provider; so far no problems.

Early happy birthday. I hope you can do something special. Know you are much loved by all here on the forum.

erash profile image
erash in reply to greaterexp

Thank you greaterexp

How do I add an email back up 🤷‍♀️

jimeka profile image
jimeka in reply to erash

You can go into edit and write more or delete on your original post 😊

greaterexp profile image
greaterexp in reply to erash

I already had another email account I rarely used. I just went to my settings and changed my email address with Healthunlocked, so their emails would no longer be sent to the old email account which kept blocking them. Also make sure your email address book has the correct HU address. Though mine was correct, my old email account kept identifying it as spam, but mail never went to my spam folder either. Confusing!

erash profile image
erash in reply to greaterexp

Just odd that it stopped and started without my doing anything to the email or settings 🤷‍♀️🤷‍♀️🤷‍♀️ but thanks!

greaterexp profile image
greaterexp in reply to erash

That’s what happened to me three or four times. I always reported it to HU, but they said the problem was with my email provider. I hadn’t changed any settings and had the correct address in my email contacts. It’s a mystery. I hope you report it to HU so they can see if this is a trend and something they need to fix.

mm1527mm profile image
mm1527mm in reply to erash

Prayers to you!

kdali profile image
kdali in reply to erash

Oh no! I’m so sorry to hear of your relapse 😭 I hope therapy can restore some function soon. When is your next Ocrevus?

erash profile image
erash in reply to kdali

Next is 2/14 ❤️

kdali profile image
kdali in reply to erash

Bummer! You have to do all that work without the infusion goodness 🤦‍♀️

OKgal profile image
OKgal

Many! I have many appointments. 🙄

12/2 dental cleaning. I do this every 4 months, because teeth are important.

12/9 urology check-up. Thanks MS for the neurogenic bladder. 🙄

12/13 ophthalmologist for OCT scan. They lost my September scan, so I’m doing this again. 🙄

12/19 dermatologist for annual skin check. Skin is important. Everyone should have a derm.

12/26 gynecologist for Pap smear. I’m an idiot for scheduling this the day after Christmas.

Wish me luck for maintaining sanity this month. 🤞🏻

greaterexp profile image
greaterexp in reply to OKgal

Wow! I hope you have time to rest and celebrate.

kdali profile image
kdali in reply to OKgal

I do 3 dental cleanings per year also! GL, there’s a lot this month for you 😵

mm1527mm profile image
mm1527mm in reply to OKgal

Busy month for you! But the check ups are so important. I usually end up doing most of mine in one month also

OKgal profile image
OKgal in reply to mm1527mm

Actually, I start in November with my “well adult” exam. Everything medical is so specialized, I haven’t been able to lump them all together. It would be nice...or at least all in one week. 🤔

Midgey_Midge06 profile image
Midgey_Midge06

I have a neuro apt but they are “fitting” me in. I had an apt for the 20th but they moved offices and tried to change it to march at 7:45am - office is an hour away! Never gonna happen. So i have an apt ......... mmmmm .... who knows wen

greaterexp profile image
greaterexp in reply to Midgey_Midge06

What a pain. I hope the appointment goes well.

Midgey_Midge06 profile image
Midgey_Midge06 in reply to greaterexp

I wanted to just move it to June but cuz i was in the ER and had MRI done and stuff my man insists we go in dec. Sigh. He loves me but come on dude.... 🤣🤣🤣🤣💜💜💜💜

carolek572 profile image
carolek572CommunityAmbassador

December is quiet for me, and that is by design. I travel less and less in the winter months (unless absolutely necessary) because of my failing balance and gait. It is better being on Ocrevus, but it is not a good as I would like it to be. :-D

greaterexp profile image
greaterexp in reply to carolek572

You’re a smart cookie!

carolek572 profile image
carolek572CommunityAmbassador in reply to greaterexp

:-D

kdali profile image
kdali in reply to carolek572

There’s too much going on at the end of the year, especially once you leave the house! The crazies come out from mid November to Jan. I’m using children as a reason to not travel for the week of Xmas, unless it’s to the airport because we are going to the beach/cruise ship.

So far no one has taken me up on that plan 😞 but I keep putting it out in the universe! 🙌🏻 🏝

carolek572 profile image
carolek572CommunityAmbassador in reply to kdali

I would go for that, and my return would be coordinated with Mother Nature ~ say March? :-D

kdali profile image
kdali in reply to carolek572

I’m sure that could be arranged for the right price!

Kenu profile image
Kenu

December 9th. Pain pump refill , 11th. Oncologist for cancer ♋️ follow up. Big one December 6th.both furbabies get there hair cut, Rozy and Sniper😂 😊🐾🐾🐾🐾Ken

greaterexp profile image
greaterexp in reply to Kenu

I pray you get a good report!

Kenu profile image
Kenu in reply to greaterexp

Thanks 🙏 😉

mm1527mm profile image
mm1527mm in reply to Kenu

Prayers 🙏

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Neck appt, sometime at the end of the month!😁 Thank you for asking 🤗💕🎄

greaterexp profile image
greaterexp in reply to Jesmcd2

How are you doing with your neck now?

kdali profile image
kdali in reply to Jesmcd2

Did I miss your pic of the festive neck brace? 😵😭

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kdali

I was trying to be Ina bubble where nothing could touch me!😭🤣 kdali And I had to cancel my appointment and reschedule it for this month greaterexp but it's feeling pretty good! 😊

Do you have any appointments this month? 🤔

kdali profile image
kdali in reply to Jesmcd2

Aww, I hope you feel like getting out of the bubble soon!

I have one per week and the 27th is baby day. Today’s check was all good! However, I didn’t know my name when I went to check in 🤣🤣🤣🤰

kidyid profile image
kidyid

Just brain MRI and lumbar puncture... a colorful holiday season for me!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kidyid

We're sorry that you have to go through that kidyid are you going to have to wait long for your results? 🤗💕🎄

Tcordell82 profile image
Tcordell82

Hemotology on the 12th praying I don’t have to have another pint of blood taken

greaterexp profile image
greaterexp in reply to Tcordell82

I hope not. I’ll share some of mine!😚

Tigerlilly81 profile image
Tigerlilly81

Neurologist tomorrow. New neurologist. We are going to discuss my elevated CSF protein and ataxia. Possibly getting a thoracic and lumbar MRI.

Chiropractor next Tuesday. For some reason my occipital neuralgia has been acting up:(

kdali profile image
kdali

3 office visits and one hospital stay to go! 🤰 I am enormous!!! 🤣

greaterexp profile image
greaterexp in reply to kdali

You’re tiny! It’s the baby and her gear that are enormous.

kdali profile image
kdali in reply to greaterexp

Hah! That’s what I said last time when people said I was huge...I said no, V is huge 🤣 I dropped her off at moms yesterday so I could get a prenatal massage and she opened the door, looked at my belly and gasped, “YOU'RE GETTING HUGE” 😵 I saw her a week ago, it is a crazy difference!

erash profile image
erash in reply to kdali

How r u feeling?

kdali profile image
kdali in reply to erash

Pretty good all things considered! I’m not sleeping so well at this point, but most days I can catch a nap with V. Today is one of those office visits, so I’m excited that in 3 weeks, 1 day and 7 min, I’ll have my new little cherub 🥰

Ty for asking! 😘

Kenu profile image
Kenu in reply to kdali

Tax write off 👍🤭😂🤣😆😉 cool Ken 🐾🐾

kdali profile image
kdali in reply to Kenu

🤣 I’ll take it!! I’m glad we don’t have to buy much baby stuff too!

jimeka profile image
jimeka in reply to kdali

You could never be enormous 🤗

kdali profile image
kdali in reply to jimeka

You’re very kind! 😘

janetb1968 profile image
janetb1968 in reply to kdali

I bet your gorgeous xxxxx ❤️

kdali profile image
kdali in reply to janetb1968

Aww, ty! Round is the new...something 🤷‍♀️🤣🤰

mm1527mm profile image
mm1527mm in reply to kdali

How exciting! I bet you cant wait! Blessings

kdali profile image
kdali in reply to mm1527mm

I can’t!! I’m ready!! 🥰

ahrogers profile image
ahrogers

Dermatologists and then labs for my January Ocrevus infusion.

My son is coming to visit for 5 days with his girlfriend. I haven't seen him since April last year when the Army sent him over to Okinawa. Very excited, only 13 more days 😁😁

kdali profile image
kdali in reply to ahrogers

Oh my, what a visit that will be!! Very happy for you 🥰

greaterexp profile image
greaterexp in reply to ahrogers

Have a wonderful visit!

mm1527mm profile image
mm1527mm in reply to ahrogers

How exciting! Enjoy!

pamgarner profile image
pamgarner

just 1 heart appt for my atrill fibulation,I been good though, I am surprised I don't have more since I try to squeeze them in by the end of year for insurance .Let's not forget my favorite today (ha ha) mammogram,whooppee!

greaterexp profile image
greaterexp in reply to pamgarner

Oh, joy! Though I dislike them, I sure appreciate hearing that I’m all clear. I hope all goes well today and with your upcoming infusion.

pamgarner profile image
pamgarner in reply to greaterexp

I told the nurse at my mammogram,when I was young I wanted to have a rose tattoo on my breast,so glad I didn't ,it would now be a long stem rose!!!giggle:)

greaterexp profile image
greaterexp in reply to pamgarner

You’re hilarious!!!!!! Love it.

RoseySawyer profile image
RoseySawyer in reply to pamgarner

🤣😂♥️🌹

carolek572 profile image
carolek572CommunityAmbassador in reply to pamgarner

Too funny, pamgarner :-D

janetb1968 profile image
janetb1968

Not this month only have Tysabri on the 13th December xxxxxx 💕

greaterexp profile image
greaterexp in reply to janetb1968

Hurrah for a relatively quiet month!

CrazyCatWom profile image
CrazyCatWom

I get to see my neurologist on the 11th, and if he doesn't call me by this weekend. he'll be giving me his analysis of my MRI and MRA. I really wanted to talk about other things with him--mostly his admonishing at one of his talks when he stressed, "tell your doctor EVERYTHING!" Well, he has 23 years of "EVERYTHING" I need to catch him up on! That's what happens when one loses all their medical records when a warehouse goes up in flames 14 years ago. :/

greaterexp profile image
greaterexp in reply to CrazyCatWom

I hope you hear good results. What a difficult place it puts you in with not having old records.

CrazyCatWom profile image
CrazyCatWom in reply to greaterexp

It wasn't just old records--it was ALL my records. My first neurologist's records of my MS diagnosis, my first MRI, records of the lumbar puncture, the treatments for my optic neuritis, the betaseron treatment. I'Then Id discovered that five years ago when my health issurance wouldn't let me see a neurologist because there was no record I'd ever seen one. Then I thought surely, I would prove to the insurance company if I showed them my family doctor's records regarding his "second. . . um, nope! When he closed his office in my city, he put all his records in storage . . . oh, yeah! THAT warehouse! And when I was applying for disability, I couldn't even get the records of my knee surgery when I was 14, because the hospital where I'd been diagnosed with MS had bought the children's hospital where I'd had the knee surgery. And of course all those records had been moved into storage in a, uh, yeah, THAT warehouse! AFter all that, I only half-jokingly say it's good I was born in another hospital that has no connection to the university hospital whose warehouse went up in flames before all those records could be computerized. Otherwise there'd be no record except up in the state capital, that I was even born! It took me being wheeled into that University hospital's ER, comatose with 3 brain bleeds last year for me to have any existance in the medical records world! Now, how likely is it that something like that would happen to anyone?In a war-torn foreign country, maybe. But this was in a state of the US. So, since I didn't get the chance to tell him the story of all that "white scaring on the left side" of my brain he saw on the MRI he'd ordered in September, 2018.

greaterexp profile image
greaterexp in reply to CrazyCatWom

Unreal! However , I believe with all my heart that you were born.

We should all get copies of everything we can and store them it selves, huh? The records, including the MRI from when I had the CIS over 20 years ago are gone, too. Now I get copies of everything I can.

CrazyCatWom profile image
CrazyCatWom in reply to greaterexp

Oh, I know! What's really frustrating for me is, I actually had the film of my first MRI in my possession, lumbar puncture results, etc. to take to my family doctor for his second oppion on my MS diagnosis! But because I follow rules, I returned all of it to the university hospital's records department. >(

leking1 profile image
leking1

Just 1 for December...tomorrow at 10 am...the Pain Clinic, but I already have 3 for January...they can wait until after Christmas.

bxrmom profile image
bxrmom

I had my chiro appt yesterday, and every 2 weeks after that. Other than that, I think that is it until Feb when I see my Neuro again :) Unless something creeps in lol

mrsmike9 profile image
mrsmike9

Praise God, mine are done!

RoseySawyer profile image
RoseySawyer in reply to mrsmike9

Mine as well. ☺️♥️🌹

Neworleanslady profile image
Neworleanslady

December 30 checkup

Currently in 1st month of having switched from Copaxone to generic

greaterexp profile image
greaterexp in reply to Neworleanslady

I hope it works just as well. Please let us know how you’re getting along.

Neworleanslady profile image
Neworleanslady

Thanks!

agate profile image
agate

Two appointments this month--both routine. One is for lab work and the other is a followup on the lab work by seeing the doctor to go over the results. My potassium level is being watched, as well as blood glucose. I have Type 2 diabetes.

I figured out that in a good year when there are no problems that need medical attention, I still have an average of one appointment a month. I gave up several doctors a long time ago even though they're doctors many people routinely have: urologist, gynecologist, otolaryngologist and dermatologist.

Even so, I still have routine appointments for lab work, the primary care doctor, the neurologist, the ophthalmologist, the optician, the audiologist (hearing aids), the dentist, the podiatrist, and the diabetic shoe specialist. Some years PT sessions are added in--usually about 8 appointments. And I've been lucky in not having serious falls or infections recently.

This is what life is like when you're getting along in years--quite a few appointments just to take care of your health.

greaterexp profile image
greaterexp in reply to agate

Our health becomes a full time job, doesn't it? I'm glad to hear from you.

agate profile image
agate

It keeps me busy. In years when there have been falls or infections or other problems, I've been much busier just keeping up with the needed medical appointments.

Midgey_Midge06 profile image
Midgey_Midge06

So my neuro called i have an apt at 1:20 to c him. I also have my chiro in the morning at 10am. I am sure once we r in longview scott will want to do shopping or something so its gonna be a long day it will take at least 3 days to recover from. Yippee

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