Does anyone feel pressure in their head? - My MSAA Community

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Does anyone feel pressure in their head?

mm1527mm profile image
11 Replies

I had a spinal tap done about one month ago. Not sure if this is from the tap still or ms symptom or if i should be concerned? Thanks for the info

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mm1527mm profile image
mm1527mm
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11 Replies
falalalala profile image
falalalala

I was told not to lie down for a few hours after I had mine done.

Of course, immediately after being told that, I wanted to lie down-but I didn't.

I'd probably call the doctor's office to see what they'd say.

mm1527mm profile image
mm1527mm in reply to falalalala

Thank you

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

You have had this pain/pressure this whole time mm1527mm ?

If you have? Call your neuro!

No One can DX you here, that's your Dr job! And why they get paid the big bucks!☺️

But is it a migraine, sinus, allergies? Stress?

Tired? Or just worried? And that's ok to!😊

Take a breath, BUT! Like I said, if you have had it this long, call him!

🤗💕

J🌠

mm1527mm profile image
mm1527mm in reply to Jesmcd2

Hello no its not constant and i also had a sinus infection not long ago, also have allergies and have been stressed alot lately while trying to decide on treatment and also some light and short headaches

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to mm1527mm

You have just been dx'd, it's Alot to take in all at once! I'm not surprised you are stressed.

When is your next appointment?

Do you have a good support system to help you make your decision?

🤗💕🌠

mm1527mm profile image
mm1527mm in reply to Jesmcd2

My next appointment is sept 9 i am scheduled for ocrevus infusion. Had facial numbness, mri revealed brain lessions. Did blood work. Spine and neck fine. Spinal tap showed no rings but high igg immflamation. Cis but likely ms or to turn into ms. Jcv positive went to two ms specialists one said treat aggressive ocrevus or second choice tecfidera . Then second dr said if it were him He would just wait and do an MRI since it is not technically MS yet or start on Copaxone or tec They both said it is whatever I would like to do however being that I am young and have two young children it seems that many people have said to treat aggressively To help in the long run and my family has been very helpful and it has been very helpful to use this app and speak to people who also have been going through the same thing do you have any input on either of the two medications and the side effects I am just a little concerned about the side effects

mm1527mm profile image
mm1527mm

My next appointment is sept 9 i am scheduled for ocrevus infusion. Had facial numbness, mri revealed brain lessions. Did blood work. Spine and neck fine. Spinal tap showed no rings but high igg immflamation. Cis but likely ms or to turn into ms. Jcv positive went to two ms specialists one said treat aggressive ocrevus or second choice tecfidera . Then second dr said if it were him He would just wait and do an MRI since it is not technically MS yet or start on Copaxone or tec They both said it is whatever I would like to do however being that I am young and have two young children it seems that many people have said to treat aggressively To help in the long run and my family has been very helpful and it has been very helpful to use this app and speak to people who also have been going through the same thing do you have any input on either of the two medications and the side effects I am just a little concerned about the side effects

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to mm1527mm

I'm glad that it was only the laspe. And they were able to catch it! I was on Copaxon, and now on 'O' Ocrevus. I have never been on Tecfredra.

All I can tell you is write your questions down!!!!! And take them to your neuro! And make them answer them!☺️

You are your own advocate! So be strong about it! And you will do great!

And if you don't like your neuro? Get a new one!!! 🤗💕🌠

mm1527mm profile image
mm1527mm in reply to Jesmcd2

Thank you! How long have you been on o? Any side effects for you?

4fishylady profile image
4fishylady

I've been on Tecfidera for almost 4 years now, and doing very well, at 76 yrs old. My Neuro believes that some treatment is better than no treatment, since it slows the progression of MS. He thinks you should have fewer relapses with treatment. (There are many ways to get the DMT if you are unable to afford the medications. The doctor's office staff can help you with this. Do not be afraid to ask them.) After my spinal tap, I was told to lie down when I got a headache, which I did, a lot for the first 5 days afterward. The bad headache would go away as soon as I lay down. But, your talk of head pressure, is something I deal with frequently. Once it felt as if a headband was tied tightly around my head at forehead level, and someone was tightening it constantly. After a week or so of that, I called my Neuro and he ordered a prednisone pak. It went away shortly thereafter. Also had one long spell of it, that the pred pak did not make it go away, and I had the IV solumedrol for 3 days in a row. It took a while, but finally went away after that. I have some head pressure frequently, even this morning. I will take a meclizine hoping that helps, but it sometimes doesn't. I also have not slept well for the last 2 nights, so that may play into it. Taking an anti-inflammatory pill of some sort, even like advil or tylenol might make it back off some. I will also take turmeric, since it is supposed to be an anti-inflammatory. But, as the others have said you should probably call your doctor if it doesn't back off soon.

mm1527mm profile image
mm1527mm in reply to 4fishylady

Thanks so much for the information. Its not very frequent or severe and i do notice advil or tylenol do help so i am thinking it could also be sinus or stress related from headaches.

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