I home! : Had an interesting visit with my... - My MSAA Community

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I home!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
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Had an interesting visit with my neuro! As we actually talked about 'George" or this 10 cm x 8cm x 2cm thing in my brain. It's actually longer than that, and my understanding is, it's connecting the 2 cerebrums in the back of my head. So, basically, my left and right rely on this. πŸ˜’ Well, this is interesting! Good thing, I'm left handed and dyslexic! πŸ€£πŸ˜‚

Anyhoo! Back to that later! He put me 3day solumedol, 1 yesterday 2 @ home!. And Tegretol! I really hope it works! I'm tired of this!

So George! He is behaving! Although what happened after the Ocrevus, and my, notice word!! My!!! Reaction to it is not normal! It is something we are going to keep an eye on in Nov. Next ifus.

He is also pleased with fine motor skills in right hand! TY you jimeka for the idea of gem art!! As that s**t is hard when you use the wrong hand and can't think! Or focus! But I will re-wire my brain!!!!!

Next MRI of all next month!

Thank you for your patience with me! I'm slowly making my way back!

MarkUpnorth I will get to your posts when I can comprehend it!πŸ™ˆπŸ˜”πŸ€£

Thank you all!! πŸ€—πŸ’•πŸ¦ˆ

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Jesmcd2
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22 Replies
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Iona60 profile image
Iona60

Glad that you were able to have a good visit with the neuro. I didn't quite understand, is George a good thing?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Iona60

George seems to be a black hole or something. It's an unknown, that without a biopsy we won't know. And since it's not doing anything, never did anything when it showed, I'm not doing a biopsy. I just named it!β˜ΊοΈπŸ€—πŸ’•πŸ¦ˆ

Iona60 profile image
Iona60 in reply to Jesmcd2

Hmmm. Hoping that the Solumedrol will work and that George will shrink with Ocrevus.

Juleigh21 profile image
Juleigh21

Good luck with the 3 days of solumedrol, tegretol, and your future ocrevus infusion. Hopefully β€œGeorge” and the MS will calm down.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Juleigh21

TY!!! πŸ€—πŸ’•πŸ¦ˆ

greaterexp profile image
greaterexp

It sounds like your neuro is taking great care of you. Here's praying that the Tegretol does its work well and quickly! Thanks for the update!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to greaterexp

TY! πŸ€—πŸ’•πŸ¦ˆ

carolek572 profile image
carolek572CommunityAmbassador

Keep adapting, and don't let George dictate what you can and cannot do! :-D

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to carolek572

I never have! It's just wierd seeing it!πŸ™ˆπŸ€—πŸ’•πŸ¦ˆ

carolek572 profile image
carolek572CommunityAmbassador in reply to Jesmcd2

It is reassuring that your neuro is also keeping an eye on it as well! I am sure that you are in good care.

Keep Smiling,

Carole :-D

jimeka profile image
jimeka

You can over come anything. πŸ€—

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to jimeka

So can YOU! πŸ€—πŸ’•πŸ¦ˆπŸ«

rjoneslaw profile image
rjoneslaw

Good luck

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to rjoneslaw

You too! πŸ€—πŸ’•πŸ¦ˆ

leking1 profile image
leking1

I hope it Helps!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to leking1

TY!! πŸ€—πŸ’•πŸ¦ˆ

ms23 profile image
ms23

Tegretol (carbamazepine) worked wonders for my daughter! I hope you benefit from it, too! As with any medication, just have your liver function tests done periodically so you stay in a safe zone. That's something we should all be doing!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to ms23

My neuro is having me do a blood test in 10 days. So he's keeping an eye on me! β˜ΊοΈπŸ€—πŸ’•πŸ¦ˆ

PWilli profile image
PWilli

So glad you have the neuro you do! Sounds like he is taking care of you. I hope that George gets the idea that he IS NOT welcome and he should find a black hole and get lost! 🀨 Pray that all goes well and the MRI goes well next month.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to PWilli

I really did get lucky with him! The clinic up in roch. Is really good! He takes the time to try to get answers, and answers mine. George needs to go, but as long as he doesn't do anything, I'm good!πŸ€£πŸ€—πŸ¦ˆ

Beckylp54 profile image
Beckylp54

You sure have a good neurologist. I'm praying that George disappears and your new medications work well for YOU! Stay strong πŸ’ͺ and never give up

Blessings❀becky

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Beckylp54

TY!! And giving up is not an option! πŸ€—πŸ’•πŸ¦ˆ

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