I am always writing to you: I am always... - My MSAA Community

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I am always writing to you

RoyceNewton profile image
4 Replies

I am always writing to “YOU”, “YOU” as an individual, “YOU” as a family. I try to think of the words that I wish I had heard long ago. Thankfully they were there but I am not going to share my Mother with everybody. Besides she would rather be outside mowing the lawn than inside sitting at a computer. As she always says “she is above the grass today so it is a good day”. “YOU” my brother\sister are above the ground so this is a good day for “YOU as well.

Actually it is a very nice day today. Blu sky as far as the eye can see, not a cloud anywhere. No breeze just nice and still. The birds are still outside doing what birds do so I guess kind of a standard day. Somebody asked yesterday why I write “YOU” instead of you. A reasonable question as it is a little outside the norm. “YOU” is “YOU” the individual, sitting reading my thoughts. I do think that at least on person out of four thousand plus relates to what I say on any given day, so I am talking to “YOU” whoever “YOU” are or wherever “YOU” might be on our Blue Rock revolving around our very own star, in the milky way galaxy. Makes “YOU” feel I guess, but “YOU” my friend are not small or insignificant. “YOU” matter to me. I may not know your name or even where “YOU” are but I do know something about “YOU”, something that will always link “YOU” to me.

“YOU” share in some form the same illness as me. “YOU” share the same uncertainty about your future as I do. We are not exactly alike but we are more similar than we ever expected to be. Nobody told me as I was born “Hi, one day you will have a very frustrating incurable but far from fatal disease”, that “YOU” will find a fire within “YOU” that “YOU” will feed and make burn bright. To guide “YOU” through those lonely dark nights and back into the light of new dawn. “YOU” have the strength and “YOU” will gain the knowledge yo live a thrive thru many years of this disease. This what I would like to say to “YOU” and “YOU” alone. turn look me in the eyes, take my hand, tell me if I squeeze to hard. This is an illness that can be managed, it can b e coped with. It is not the be all the end all of anything. Yes it is a sharp left turn upon your life journey. There are obstacles, but nothing with a bit of courage planning and pure bloody mindedness (Will) that “YOU” can not do.

Seriously, wipe your tears away for a moment. They do come back at times over the years. Pull your shoulders back stand up straight and start doing what needs to be done to walk your lifelong ms path. I suggest buying and wearing some protective underwear (DEPENDS) and getting information on Disease Modifying Therapies (DMT). Nothing will cure “YOU, but slowing down the rate at which “YOU: get worse is a good thing. This disease may never be cured but that is never a reason sit in a dark corner, cry and do nothing. This is a doable condition, frustrating but very doable znd “YOU “CAN DO”it,

Royce

Twenty plus years and counting

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RoyceNewton profile image
RoyceNewton
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4 Replies
carolek572 profile image
carolek572CommunityAmbassador

Yes, it is a doable disease. Yes, you can always do something. Yes, you can still achieve many things, mind you, that you will need to plan it a little differently, but it can be done. Adapt, Adapt, Adapt. :-D

Keep Smiling,

Carole :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

You most certainly can

Doubled51 profile image
Doubled51

You can still do anything you want to do it just takes a little longer.😋. Never give up

Donnie

RoyceNewton profile image
RoyceNewton in reply to Doubled51

You are not 6 feet under yet so there is absolutely no reason to give up on doing anything

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