Ocrevus & insurance - patience required. - My MSAA Community

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Ocrevus & insurance - patience required.

anaishunter profile image
6 Replies

So my neuro finally approved my second round of Ocrevus (the 1st full one) in early April. My blood tests are now acceptable to allow treatment. This is now 10+ months after the first 2 1/2 doses.

Because I started a new job, we had to get insurance approval again. Finally got a call from the doctor's office saying that United Healthcare will approve it if done outside a hospital infusion center. (this took 4 weeks compared to the 5 days it took with Blue Shield of California). So be patient.

Now I have to wait for the paperwork to be in place before scheduling.

I am so lucky to be doing great. Crossing my fingers that it lasts until I get to the infusion.

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anaishunter profile image
anaishunter
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6 Replies
jimeka profile image
jimeka

Glad that you are doing so well, but sorry it’s taken so long. Let us know when you do go and how it goes, Blessings Jimeka 👍

kdali profile image
kdali

Glad you’re getting somewhere!!

carolek572 profile image
carolek572CommunityAmbassador

Glad to see that everything is on track. Let us know how your infusion goes. :-D

JTZES profile image
JTZES

United Health Care has disallowed hospital based infusions. They will approve a non hospital based infusion center.

Your best option is a rheumatology infusion site. That is what I had to do for my last dose.

What I noticed as the difference was they gave me oral tylenol and benadryl versus infusion benadryl. They gave me a 30 minute dose of steroids. Hospital based infusions add the steroid to the Ocrevus which is then considered a compound medication which greatly increases the cost.

rjoneslaw profile image
rjoneslaw

good to know

ahrogers profile image
ahrogers

I was delayed on a dose a year ago when I moved to another state and had to wait first for my insurance with my new job to kick in and then get in with a PCP to be referred to a neuro. It took 3 months to get in to the neuro but was scheduled for infusion a month later. I have always gotten it at the neuro office, originally on a clinical trial. I was delayed a little over 3 months and was fine.

I hope you do well too!

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