Ocrevus : Hi everyone! I just thought I... - My MSAA Community

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Ocrevus

positiveness profile image
20 Replies

Hi everyone!

I just thought I would share with everyone that my first dose of ocrevus will be in a couple weeks. I can't believe how quickly time goes by and I was diagnosed close to15 years ago. As usual though, things can always be worse.

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positiveness profile image
positiveness
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20 Replies
greaterexp profile image
greaterexp

I'm so happy for you to get started on Ocrevus! Let us know how it goes.

positiveness profile image
positiveness in reply to greaterexp

Thank you so much!

carolek572 profile image
carolek572CommunityAmbassador

That is great, and please let us know how it went! :-D

positiveness profile image
positiveness in reply to carolek572

Ok

jimeka profile image
jimeka

Hoping that it goes well 👍

positiveness profile image
positiveness in reply to jimeka

Thank you

Kenu profile image
Kenu

Hope things go well and let us know 👍😊🙏 Ken 🐾🐾

positiveness profile image
positiveness

Ok

Jazzihorsecat profile image
Jazzihorsecat

Welcome back positiveness, long time no See! Glad u rdoin ok! ManyPrayers 🙏 & Blessings to ya! L💗VE YA!! Jazzy🌹💜

positiveness profile image
positiveness

Yes, it definitely has been a while.

Peruzzot profile image
Peruzzot

Hope it works for you.

positiveness profile image
positiveness in reply to Peruzzot

Thank you me too. I guess only time will tell.

pamgarner profile image
pamgarner

It will be fine and it goes fast for me even though it is a few hours,I spend the majority of my time running to the restroom, the iv makes me, you know.the place I have this done is a big circle of chairs with folks with different issues from cancer treatment to organ transplant .It makes me feel fortunate I "just" have ms.Everyone is alittle nervous the first time, it is always the fear of the unknown,You will do great, let us know

positiveness profile image
positiveness in reply to pamgarner

Thank you so much for sharing your experience with me. You are definitely right about the fear of the unknown and going to the bathroom numerous of times.

Iona60 profile image
Iona60

Good luck.

Yooper profile image
Yooper

Praying 🙏 Ocrevus gives you great results!!

positiveness profile image
positiveness in reply to Yooper

Thank you! I need as many prayers as I can get.

ahrogers profile image
ahrogers

Just don't worry if you get a little rash during your first infusion, it is very common. I got it on my face but didn't feel it but the nurse saw it. All that was needed to make it go away was to slow the infusion and a cool cloth over it for a few minutes. Haven't had it happen again and I have been on it for over 2 years. Expect to take a nap, the 50mg of Benadryl always knocks me out for an hour or two. Luckily I am awake enough to drive home by the time it is all done. Be sure to find out if you need to bring your own lunch. I had my husband come with the first time since I didn't know how I would feel to drive home but go by myself now.

Good luck and many blessings!

positiveness profile image
positiveness in reply to ahrogers

Thank you so much! It helps me to read about people that have gone through the experience already.

lbenmaor profile image
lbenmaor

I hope it's helpful. Let us know how you're doing.

Best Wishes,

Leslie

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