Unusual symptom

[Sandydemop]

Hi all, has anybody lost their sense of taste? It's been a very strange week without being able to taste my food. I know you are going to say ask your doc. I will. But meanwhile has anybody else ever experienced this? Thanks!

[rjoneslaw]

What was the last thing that you ate or ingested before you lost your ability to taste?

I have never had that happen to me. I figured that question would at least give you a starting point to figuring out how it started.

[greaterexp]

Yes. I can’t say I can’t taste at all, but my sense of taste is diminished and altered. I’ve always loved my cup of coffee in the morning, but it doesn’t taste good at all now. This has happened over the past two months or so. I was diagnosed in late 2016, and didn’t expect this symptom.

[Sandydemop in reply to greaterexp]

Hi there, thanks for writing back. I'm sorry about your coffee. This smell taste thing is really... bizarre. The other day I was trying to taste cauliflower but all I could get was the texture.. We never expect new symptoms do we? I want to ask G-d, Are there more challenges coming or should I say when? The good news is it's not my worst day since having MS. I hope you will tell your doctor about the symptom. (Here I am trying to take care of you.) Warm wishes and happy new year,

Sandy

[greaterexp in reply to Sandydemop]

Thanks, Sandy. We do take care of one another here. We are like family that way.

[Sandydemop in reply to greaterexp]

Thanks. BTW, would you like to share your name?

[greaterexp in reply to Sandydemop]

Erin

[Sandydemop in reply to greaterexp]

thank you very much Erin.

[Jazzihorsecat]

I truly have Sandydemop, & welcome to our awesome MSer warrior family!😃👍💖 When I was in a relapse this past early year, everything tasted like H20 big time, even very hot & spicy foods, my neuro. Said its just the M.S. & not to worry about it, after getting the awesome book by Ann Boroch, "Healing Muliple Sclerosis", it subsided, especially starting the Candida Overgrowth cleanse. So, no worries. 💐💓Blessings---Jazmine🌹Rose💜

[Sandydemop in reply to Jazzihorsecat]

Dear Jazinco, Thanks for writing. Did it go away?

[Jazzihorsecat in reply to Sandydemop]

👍😃Yes Sandy it did finally, my taste came back, which I am glad about cuz Man am I the chef of better than any Restaraunt here, so my C.G./Hub says!😛😃😉💓💛💙💘💞💖💐Love Ya! & Many Blessings to ya!💐---Jazzy🌹💜

[jkdavid99]

Yes, i ended up in hospital in may for 3 days steroid and MRI. I had 30 more active lesions and lost my taste. NOTHING tasted even close to food. Even my favorite things were terrible. I tried everything but i basically lived on otter pops and lost 25 pounds. 6 months later i can taste again but food definitely tasts different now. Dr said it wasn't MS. I disagree

Good luck to you

[jimeka in reply to jkdavid99]

How are you doing? Blessings Jimeka 🦋

[jkdavid99 in reply to jimeka]

Got results from latest mri. No new lesions and the others are slowly shrinking. That is great news but then a miserable cold decided to jump in. Colds for us isnot good. Still not able to drive or work but maybe soon, i hope.

[jimeka in reply to jkdavid99]

Maybe soon in the New Year. Take care of that cold, blessings Jimeka 🦋

[Sandydemop in reply to jimeka]

Hi Jimeka, thanks for writing. Wishing you the best New Year!

[Sandydemop in reply to jkdavid99]

Hi @jkdavid99, thanks for writing to me. I'm glad you can taste food again. I'll talk to my doc next week about it and see what she says. Usually, when I have a complaint, she says it wasn't the MS.

[jkdavid99 in reply to Sandydemop]

In my experience it means they dont know

[erash]

Newer research theorizes that the loss of sense of smell is an early sign of MS as it is in Parkinson’s. It makes sense that taste could also b affected

[Mssailor in reply to erash]

I lost my sense of smell later. I didn’t notice exactly when. It is one of my most annoying symptom. Do you know where you heard about this.

[erash in reply to Mssailor]

I think it was in an MS new daily feed. I will see if I can find and will post

[Sandydemop in reply to erash]

Hi erash, thanks for doing the research.

[Sandydemop in reply to Mssailor]

Hi @Mssailor, thanks for writing and really everybody who validated this bizarre thing.

[ynggal in reply to erash]

I agree with the research. The loss of my sense of smell was one of my first symptoms.

[Mssailor]

Yes, it was the symptom that eventually led to my diagnosis. I lost my sense of taste in half my tongue.

[Sandydemop in reply to Mssailor]

strange-- half your tongue? Anyway, thanks for taking the time to follow up with me. Take care and Happy New Year

[erash]

google.com/search?q=MS%20an...

Here’s the article

[Sandydemop in reply to erash]

Thanks! very interesting. Not too hopeful but definitely educational. I was also interested in the linked articles about trans cranial stimulation which seem hopeful.

[Brindisi1]

Thanks erase for link.

[ynggal]

My sense of smell is almost non existent and my sense of taste isn’t far behind. I guess it depends on where your brain lesions are. I know that I miss both senses terribly.

[Sandydemop in reply to ynggal]

Thanks for writing back. It's one of those things we take for granted until we don't have it, right?

[sashaming1]

I have, but due to a Brain Injury due to a fall and hitting my head.

[kris1973]

Yes. Lost most of it 6 mos ago along with other senses. MRI showed new lesion in the area that affects the senses. Hasn’t gone away-probably still have 1/2 taste etc.

[Sandydemop in reply to kris1973]

Dear Kris, ugh. How are you adapting to that?

[kris1973 in reply to Sandydemop]

Its ok-takes time to adjust. Getting there but food is not real appealing. Eating more healthy snack type meals. I normally don’t eat sweets but they taste the best now.l.🤣

[Sandydemop in reply to kris1973]

Thanks Kris, I find myself focusing more on the texture of the food. And yes, strong flavor like granny smith green apples taste great. Garlic too

[quegh]

Yes I experienced it but I was kind of "out of it" so I never really noticed it at the time. It affected my sense of taste and smell at the same time. I could still taste and smell and I thought it was normal, but it was not.

The first time I ate after the sense of taste came back I spit out my food, I thought it had gone rotten, the sense of taste was overwhelming. When my sense of smell came back suddenly I realized why people were choking because the smell of garbage that I hadn't taken out of the house.

[WCwaiting]

I hope this is not the case but this is a common symptom of COVID-19. Loss of sense of smell and taste.

[HensTooth]

WCwaiting I was going to write the same thing! Then I realized this post is from 1 year ago... 😂