Hello family, Ocrevus infusion number four just finished!

I am sitting in the infusion center at a local hospital and I have just had my ocrevus 4th infusion! Once again it went off with flying colors. It took a while but that was due to blood pressure issues going to low on my end. I had no negative reactions to the infusion. I simply took two extra strength Tylenol before it started and that was that. I follow up with my primary care physician Monday to consider blood pressure medication to keep it elevated to a safer level. I wanted everyone to know that although it can be more challenging for some individuals, the ocrevus infusion is nothing to be scared of. It simply requires you to clear your calendar for most of a day and be prepared to be bored sitting in a hospital. So take your notebooks, take your books, take your pillow to sleep on and take everything you can think of to waste a day without being totally bored out of your mind! Of course if you're like me you have to find your mind before you can get bored out of it! LOL! I am excited and look forward to the results I see from this infusion. I will be updating the ocrevus update and make it a fourth edition in the next few weeks after the infusion has time to show what it has done to improve my life this time! Take care and everyone have a safe and jolly weekend. Christmas is right around the corner but don't let the stress get to you! Enjoy the reason for the season instead! 💕Fancy. Ho ho ho!🎄🎍😀😊🤗

[anaishunter]

Thank you for sharing the experience.

Do you mind sharing how Ocrevus has helped with you MS now that you've been on it for more than a year? Has it stopped the creation of new lesions?

[jimeka]

Hey, nice to hear from you. Pleased that the infusion went well. How is the Bell’s palsy? Hope that you can enjoy Christmas with no more incidents, hugs Jimeka 🎄

[Hidden in reply to jimeka]

Jimeka, my Bell's Palsy had started to improve and then I took a really severe fall and it sets to Bell's Palsy back. Yuck. I've been using a TENS unit on it now and I believe I'm starting to see Improvement again. I also go to a doctor that helps significantly once a month and he'll be working on it again Monday. So thanks for thinking about me and my dilemma. It was sure nothing that I needed on top of everything else and some days it's tough to deal with. The left side of my face is still fairly well paralyzed and that's a lot harder disability than most people could ever realize. Fancy.

[Raingrrl]

Congrats on getting through Ocrevus #4! You are about 6 months ahead of me. I just had #3 last week. I haven’t gotten the results of the MRI’s from last week either. My MRIs during my 5 years on Tysabri are stable. I’m looking for Ocrevus to do the same.

[Hidden in reply to Raingrrl]

Raingrrl, I wish and hope that your MRI remains clear on Ocrevus,. While I was on tecfidera my MS went from Relapsing and Remitting MS to Secondary Progressive MS. So needless to say I felt that Tecfidera left me down incredibly so and I'm pleased that Ocrevus has stepped up and is doing what it can to stop my disability progression. I'll be praying and thinking of you and hoping you're next MRI remains clear. Please let us know when you get the results in. Thanks. Fancy.

[KC0808]

Good to hear it went well for you Fancy thank you for posting. Keep updating I have my first full dose infusion in May 2019 my two half doses went well staying positive is so very important 🌹

[Hidden in reply to KC0808]

KCO808, it's Fancy. Good luck with the I agree totally with you the thing positive is so very important. Keep up the great attitude and the good work let us know when you had your next infusion in May. I actually go back and do my next infusion early in June. Keep in touch and take care. Fancy.

[erash]

Glad the infusion went well and looking forward to your update of great results 👍

[pamgarner]

so glad it went well!I am going to have my first full one in jan.but you are right boring,how much longer is a full dose than the first two half's, I know everyone is different but that nurse told me only about an hour or alittle longer

[carolek572 CommunityAmbassador in reply to pamgarner]

pamgarner The nurse is correct. My full infusion didn't take any longer than my 2 1/2 infusions, though. I was prepared with my magazines and my tablet, but I was asleep and snoring most of the time! Everyone is different.

Keep Smiling,

Carole

[Hidden in reply to pamgarner]

pamgarner, I hate to tell you this but yesterday I arrived at the infusion center about quarter till 9 and I left the infusion center about 5:30. Yuck. That was a record for me as in the longest one I've ever had to deal with! The nurses were obsessed with my low blood pressure and they stopped my infusion several times and ķept pumping more fluids in me which then made me have to jump up and go to the bathroom and it became a vicious cycle so to speak.😥 I guess the old saying about receiving fluids is true that if you receive them quick in they come quick out! LOL! Fancy.

[pamgarner in reply to Hidden]

so sorry for your experience, urrrgghhhh! IV always makes me go to ladies room every 10 minutes, I swear.they r remodeling the hospital I get this done, so I have to go down a hallway to use ladies room,so have to call husband in waiting room and he comes in,since your loved ones have no room there since the remodel, and he holds on to me and we push IV down hall instead of getting disconnected,since he pushed me 1st time, oh the adapting we have to do.This disease has made me flexable if nothing else...

[carolek572 CommunityAmbassador]

Hidden So happy to hear of your latest infusion. I too, find that I am enjoying clarity of mind, better gait and overall better outlook and I have been on Ocvrevus a little under a year! I love your contagious positivity, so..

Keep Smiling, Stay Strong,

Carole

[greaterexp]

That's such great news! I sure hope your Bell's Palsy improves quickly.

[Kitsey]

So happy for you. I hope you have wonderful results from the infusion.

[KKlynch5096]

Anyone on Copaxone