Bit of good news 😁😁😁😁😁

[janetb1968]

Well I'm still JCV very low positive so the MS nurses told me today when I was having my 8th Tysabri infusion. They are happy and i am..........just got the MRI next week - fingers crossed. Hope everyone is as well as u can be and it's getting pretty chilly here in Lancashire UK 🤶🤶🤶🤶 4 degrees today xxxx ❄❄❄❄❄

[GildaS]

Good news, indeed! I had to look up what 4 degrees Celsius translates to in Fahrenheit: about 39. That is nippy. We have been having lows in the 20s at night here in Santa Fe, New Mexico. Winter is almost here, here. I love reading posts from different countries. We all have so much in common on this board, regarding of where we live. Best of luck on the MRI.

[Jesmcd2 CommunityAmbassador]

Way to go janetb1968 🎉🎉 fingers crossed for your MRI and no surprises!! It's getting colder here in NY also! Brrr❄️ we already had some of the sn*w, bad word! 😄🤗💕

J🌠🎃

[jimeka]

Great news Janet, let’s hope the Tysabri is working. I have never been tested for the JC virus, maybe because I have not been offered a dmt. 4*. We had 12* at this side, it’s been a beautiful day. Someone told me today that snow is on its way, too early. Hope the mri goes well, blessings Jimeka 🦋 🤗

[MS_Indestructible in reply to jimeka]

I've not been tested for jcv since Rituxan is pretty much PLM free. There are zero known cases of PML from any ms patients on it for all of theses years.

[MS_Indestructible]

good news indeed. Let's hope your MRI results reflect the same good news. Stay warm

[Ali_B62]

What's JCV? Best wishes from a Bolton born woman living in the North East.

[janetb1968 in reply to Ali_B62]

It's the John Cunningham virus which can be brought on by high levels of the virus. It's associated with Tysabri which is what im on for my MS at Preston. JCV can cause the PML infection which isn't good at all u will probably need to Google it all lol xxx nice to meet a fellow Northerner and my mum was from Bolton. Nice to meet u xxxxx

[Ali_B62 in reply to janetb1968]

You too! I didn't realise there were all these issues linked to DMD's, sounds quite complex are you R/R or more serious?

[Ali_B62 in reply to Ali_B62]

Searched and understood. Thank goodness you are very low positive, excellent news!

[janetb1968 in reply to Ali_B62]

Hi I'm R/R but very active apparently that's why I'm on Tysabri XXX

[Ali_B62 in reply to janetb1968]

Hope it calms down for you and that Tysabri continues to help.

[kycmary in reply to janetb1968]

Hi janetb1968 I was on Tysabri for approx. 11 years off & on. Dr. took me off as the longer ur on it the bigger the chance of contracting the PML. I have been as high 1.5 at the last check it was 1.3 but it was explained to me that those numbers mean nothing because once you test positive for the JC Virus it could hit at any time & then BLAM! there is no climbing out of it back to what ever ur normal was. IF you live what ever deficit it gave you is permanent. That is why I agreed to quit Tysabri & I loved it. Tysabri kept me on my feet, Now I waiting for the paper work & what ever else to start Ocrevus. I am R/R

[janetb1968 in reply to kycmary]

My level is 0.75 up from 0.65 but it's still low hope the Ocrevus goes well for u im also R/R xxxxx nice to meet u 😁😁😁😁😁

[Morllyn]

Good news indeed!

It got to 71degrees here in eastern Tennessee yesterday (21.6667 degrees c). Supposed to get to 66 degrees today.

[bxrmom]

Good luck with your MRI janetb1968 Hope it's good news. Keep us updated when you can 😉

Jessie

[Kenu]

Glad to hear you are doing better 👍. Blessing that you’re MRI is good 👍🙏. 😉🐾 Ken 🎃. We had the rain and cold a week ago and now we are back to 70’s for a week 😃. Indian summer right now

[janetb1968 in reply to Kenu]

Wow! I love indian summers not had one in the UK for ages xxxx hope you've got ur shorts on hun xxxxx

[Kenu in reply to janetb1968]

I do😃 I’m hardcore leave them on as long as possible 👍. Long sleeve T-shirt in morning as it is in high 40’s and then 60’s by noon 🕛. Great weather 🙏 love it this time of year 🎃🐾 Ken

[kdali]

Yay for low JCV! I hope your MRI results are boring. 🤗

[janetb1968 in reply to kdali]

Me too hun xxx

[Guava69]

All the best on your MRI. I think it will go well. I've been on Tysabri for over 6 years!!! so it's been doing its job. I'm here in the Sunshine state of Florida so I'll send some sunshine across the pond to you☀️☀️😎 Enjoy