SOMETHING I FORGOT TO SAY

[ssdw1958]

When I went to the dentist yesterday the hygienist said to me I must be feeling better I said why do you say that and she replied that my legs were not shackling and I had just realized that. Maybe the Ocrevus is doing something and it just takes some one that you don’t see all the time to make you realize it.

[jimeka]

Let’s hope it is the Ocrevus that is working. 🦋

[hairbrain4]

Sounds like Ocrevus is working! I also don't have the shaking and reslessness in my legs like I used to have.

[ssdw1958 in reply to hairbrain4]

funny how someone has to say something before you realize what is going on.

[jackiesj]

Out of small things come that which is great.....

[erash]

Regardless of the reason, celebrate the change 😊👍

[Jesmcd2 CommunityAmbassador]

What a Day!! ssdw1958 sounds like it was a good one! Well except the cavity part.🙃 BTW you did good for your Uncle!!🤗💕

J🌠🎃

[ssdw1958 in reply to Jesmcd2]

It was a good day but I'm paying for it today my legs are rebelling but who cares I got a lot done. And i have to let you know it was 35*f this morning and there wasn't any condensation on my window's hey !!

[Jesmcd2 CommunityAmbassador in reply to ssdw1958]

Yeah!!!

[kdali]

Oh yes! I was hearing “you couldn’t do this last year, or two years ago” for a while before I realized it.

Good for you!!!! 🎉🕺🙌🏻

[dtefertiller48]

That is so true!

I am considering starting Ocrevus so I am following the observations of people who are on it closely. I am 57 was only diagnosed this last April although an old MRI from 2012 makes it plain I have had it much longer according to my MS specialist. I tried Tecfidera but had really bad side effects and would like to try Ocrevus but my neurologist is a little reluctant as I have had cancer in the past and currently have no active inflammation but I do have approximately 22 brain lesions, 5 -8 black holes in my brain and 2 lesions in my spinal cord along with marked brain atrophy which is the most concerning to me as I live alone and want to do everything possible to maintain my cognitive abilities and my independence. I already eat very cleanly, exercise via Aquatic Fitness classes 3-4 times per week and take multiple supplements.

I am currently not on a DMD but am concerned about silent progression. I have only had one real relapse but it was mistakenly called Bell's Palsy when I was hospitalized with another severe but unrelated health condition.

What has your experience with MS in general and Ocrevus in particular, been like if I may ask? I am new to all this although being a medically retired Registered Nurse is helpful in understanding the issues, I am seeking the real life experiences of fellow MS'ers.

I welcome anyone 's input!!!

My specialist is recommended Aubagio but I do not like what I have read about it- particularly that it remains in your body for 2 years after your last dose- although they can give you something to hasten the metabolism.

Has anyone had experiences with Aubagio as well?

All replies welcomed and appreciated!

[Kenu in reply to dtefertiller48]

I have been on Aubagio for the last nineteen months and have been doing great. No side effects and last two MRI’s were stable and no new lesions 👍. Has been great after doing shots and infusion for twenty one years 👍. Working for me 🙏🐾 Ken 🎃

[hairbrain4 in reply to dtefertiller48]

I was diagnosed on my 50th birthday. That was 13 years ago. I have tried Rebif, Techfidera, Copaxone 20 & Copaxone 40. Copaxone worked the best for me out of those 3 but the injections were becoming too painful and the subque tissue was deteriorating on my arms. With all of the good reviews about Ocrevus I wanted to try it. So far so good. I had 13 lesions, 9 active, on my brain and 5 on my spinal chord when diagnosed. The last MRI I only had 2 active and no new ones, which was before Ocrevus. I have only had 2 1/2 doses of the Ocrevus, but I feel so much better overall. My legs have stopped keeping me awake at night and they don't feel jittery when I'm just sitting. I also have normal energy now without taking modafinil. Hope you find what works for you.

[Kitsey]

Great news!

[CraigS]

Good days are their own reward. I never care why.