Not Fit to Be Around: I wonder how many of... - My MSAA Community

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Not Fit to Be Around

greaterexp profile image
48 Replies

I wonder how many of us have difficulties with irritability. I hear sarcastic and snarky quips coming out of my mouth when I least expect it, but particularly when I'm tired. I spend a lot of time apologizing. I've always been very able to make stupid, thoughtless remarks long before MS, but since MS, I'm appalled at myself. I feel as though I need to apologize before I ever say anything to anybody, just in case. It makes me want to withdraw from people. Do any of you suffer with this?

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greaterexp profile image
greaterexp
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48 Replies
rjoneslaw profile image
rjoneslaw

All the time

erash profile image
erash

I seem to be doing less of this more recently. MS has forced me to slow down and be less impatient with myself and others. But don’t worry. I have retained many of my other bad habits 😜

ssdw1958 profile image
ssdw1958 in reply to erash

I like your reply

CraigS profile image
CraigS

Being irritable (I think) is inevitable. I’m tired a lot of the time and lots of noise bothers me. It’s especially bad when the 4 grandchildren are over. The cacophony can be overwhelming for me. I hate being that way, and sometimes it feels like I’m pushing them away. My only hope is that they will know that it’s just the noise and not them that bothers me. Now I don’t make snarky remarks to them, I just retreat to my shop or studio to gain my composure. It’s a constant battle.

Midgey_Midge06 profile image
Midgey_Midge06 in reply to CraigS

Noise is my enemy as well. I swear my mom had MS cuz my whole life she always complained about noises and everyone being to loud. Now i get it and sound just like her when i complain to my man as he is very loud!

SueAB profile image
SueAB

Absolutely! And I hate to tell you, but it doesn't get any better. My poor Husband! He is truly a Saint!

Juliew19673 profile image
Juliew19673

Your not alone - I've always have been an "unmuzzled" individual but before MS I had more self control - but when MS first reared it head, I was just out of control. Now I really try to hold back any first thoughts as they can be extremely biting.

greaterexp profile image
greaterexp in reply to Juliew19673

I'd really like to have a "mute" button.

carolek572 profile image
carolek572CommunityAmbassador

Yes, and I am constantly reminded to 'chew' on my words BEFORE I spit them out! :-D

Kenu profile image
Kenu

Yes, I seem to have snappy answers at time and don’t mean to be that way 😖. Hope everyone has a wonderful day 👍🙏🐾🎃 Ken

lbenmaor profile image
lbenmaor

Yes, it's common among our team. I've learned to improve on handling it.

I leave the area if it's bothering me. I think to myself what good hearing I have and sense

of smell when things get too loud and smell.

Best Regards,

Leslie

anaishunter profile image
anaishunter

Yes, it's on my list. I've learned to slow down when responding to people.

Jazzihorsecat profile image
Jazzihorsecat

Yep, i have that problemo too, my poor hub/caregiver puts uw/it sum & enuff, i find myself apologizing too greater, but don't retreat, just breathe (deep breaths), & truly think bout what to say, slow down, i've learned to slow down, cuz don't know why but M.S. makes me talk like im on Meth or something high!😕 which i am @ kn0t!!😜 Blessings🙏Prayers & Love U!❤💚💗❤ --Jazzy🌹💜

rjoneslaw profile image
rjoneslaw

Before MS I did speak my mind. My sister would and still does say if you need some to be said have me do. I guess I missed the line for filters before I popped out.

Sometimes some people just need to hear it straight out.

Midgey_Midge06 profile image
Midgey_Midge06

I have heard its called “disinhibition” i just read it somewhere recently. I just dont remember they whole why about it.

rjoneslaw profile image
rjoneslaw in reply to Midgey_Midge06

I have compassion but at the same time if I have something to say I need to say it. I can’t do the what if I had said that done that.

kris1973 profile image
kris1973

Have zero ability to handle it anymore...

stepsforNeeC profile image
stepsforNeeC

Yes, Yes, Yes, Yes and to the 4th POWER YES! I'm super sensitive, "kinda speak my truth" but always get told by my significant other that I hurt his feelings! If we hold too many inner emotions inward won't that manifest into stress hence turn into bad health????? We are who we in this MS journey, true friends and love ones will slowly learn to figure us prayerfully/hopefully!

NeeC

Texandyroe profile image
Texandyroe

Oh, yes..especially if I'm tired or feeling overwhelmed. Seems "I'm sorry" is my hourly mantra some days.

Midgey_Midge06 profile image
Midgey_Midge06 in reply to Texandyroe

I had to do that yesterday every time i opened my mouth or sent a text. I even told my man i wud rip his head off if he kept talking. Apology, apology, apology.....

Doubled51 profile image
Doubled51

Only everything that comes out of my mouth.

Donnie

greaterexp profile image
greaterexp in reply to Doubled51

I can’t imagine you ever being snotty.

Doubled51 profile image
Doubled51

I don’t think so either it’s just what I’m told by my wife.😇😇😇

Donnie

Iggyvair profile image
Iggyvair

I use my "mute" button extensively. As a result I am considered a curmudgeon. I consider being a curmudgeon the Lesser evil. Most of the time I am able to suppress this image.

greaterexp profile image
greaterexp in reply to Iggyvair

I think I'll invest in duct tape. Directions: apply liberally and often.

RoseySawyer profile image
RoseySawyer in reply to greaterexp

Hahaha 😂 It would hurt taking it off. 👍❤🌷

greaterexp profile image
greaterexp in reply to RoseySawyer

I think mine would stay indefinitely anyway.

RoseySawyer profile image
RoseySawyer in reply to greaterexp

😂❤🌷

Peruzzot profile image
Peruzzot

I have been a snarky master long before MS. 😁 When I was first put on Avonex one of the things listed as a side effect was that it could make me irritable and more prone to in short be snarky. I showed one of my coworkers the pamplet and she asked me how anyone was supposed to know the difference. I laughed hard and said that I guess that wouldn't affect me.

kdali profile image
kdali in reply to Peruzzot

Snark Master 🤣

kdali profile image
kdali

I have to monitor myself when I’m fatigued or I become something I’m not. I have dry dark sarcastic humor, if you can believe that 😂🤷‍♀️

greaterexp profile image
greaterexp in reply to kdali

Not in a million years!

rjoneslaw profile image
rjoneslaw in reply to kdali

My sister and myself we love sarcastic humor. When we meet someone they eventually get the hang of it and follow suit then they blame us for corrupting them because they weren’t that way before they met us.

My mother’s friend has this daughter who out of nowhere told her mother we were her best friends but we never hung around her because she didn’t get us and felt uncomfortable being around us because we were sarcastic. That one I didn’t get.

She invited us to hangout with her for her bday one year and I asked my mother why she would want us to come when she doesn’t know us outside of knowing you. Come to find out her mother asked my mother to have us come because she didn’t have any friends and could we not be sarcastic because she had emotional issues and didn’t understand what it meant. We did go it was extremely awkward but we did it because no one should be alone on their bday. She told told us she had the time of her life that day.

kdali profile image
kdali in reply to rjoneslaw

Wow, that’s really nice of you and such a sad story.

rjoneslaw profile image
rjoneslaw in reply to kdali

I get you. I have the same humor

Babslover profile image
Babslover

I do but don’t know until I get comments from others. Sometimes I think 🤔 that someone else gets away with their comments but it’s ok. Why?

Joc-42 profile image
Joc-42

Yes I relate to the frustration. I have to ask my husband when with people, if I said anything inappropriate. When in a group I am not relaxed, and I fear what I may say.

hairbrain4 profile image
hairbrain4

For me, I find that noise bothers me more & more. I also realized it bothers me the most when I'm tired & hurting somewhere on my body. Since I am aware of it now, I need to try to correct it so not to intentionally hurt someone. Just because I have ms doesn't give me an excuse to not be responsible for my actions. It's just one more thing that I have had to make life changes due to ms.

greaterexp profile image
greaterexp in reply to hairbrain4

I so agree.

Ali_B62 profile image
Ali_B62

Trouble with MS is, it's just there at the forefront of the mind, and when we are tired it gets uncontrollable - if only we could immobilise the tongue every now and again! ☺

elaineinqueens profile image
elaineinqueens

Like many others, I have always spoken my mind. Have been known among my friends as the "head b*tch". Hubby has also always known how I can sometimes be - and married me anyway! But since MS has reared its ugly head, I am impatient, cranky and irritable! Especially when I'm fatigues, which hits me almost every day. I apologize to hubby and explain why, but for this one thing, he does not get it!

guitarguy profile image
guitarguy

I could write a book filled with my smart a$$ remarks and uncalled for and unintentionally mean responses etc. I’ve always had little patience for people but between the effects of my various ailments and all the meds I should just start wearing a tss shirt that says “avoid at all costs” or “ not fit for human consumption. Invariably my saint of a wife bears the brunt of many of these comments due solely to proximity. I try to make point of mulling something over for a few moments before opening my mouth. I’ve had limite success with that but in the interim have become an expert apologist. if I’m also drowning in depression and self-pity at the time, all bets are off. It’s still a work in progress and probably will be for some time. After all, almost without exception the people who suffer the most are only trying to help out or be nice to me. However, I grow weary of my life consisting of my health and having that dominate most discussions.

In short, I’m finding many new ways of saying I’m sorry and using them far more than I’d like to. Yet another gift that keeps on giving.

Dave

Shaken, not stirred...

greaterexp profile image
greaterexp in reply to guitarguy

You said it perfectly. I think there are many of us in the same boat. I wish I could swim better; I’d jump that ship in a heartbeat!

rjoneslaw profile image
rjoneslaw

I just read this article "MS Does Not Excuse Poor Behavior" and I thought about this post. The article did make a point but we need to just let it out. People seem to find that one last nerve and you just have to let it go. For me it not MS it's me reacting to the moment but if someone wants to blame MS for what I did I have no problem with it

here is the link below

multiplesclerosisnewstoday....

greaterexp profile image
greaterexp in reply to rjoneslaw

Yes, I just read that and believe it’s true. But I find I have needed to explain to friends that I have trouble with spitting out things I don’t mean and ask for forgiveness and understanding ahead of time. So far, they’ve been understanding.

RoseySawyer profile image
RoseySawyer

All the time. My Daughter's coach thinks I'm rude. I like to be heard not ignored. Awwwwwwe Well! 👀❤🌷

guitarguy profile image
guitarguy

So, when I opened up my credit card monthly statement there was a fairly large charge for a dog training collar which I then googled and saw that it sends the strongest “signal/shock” of anything on the market.

Problem is, we don’t have a dog. 😳

It should have raised a red flag when she asked me my neck size!

“Watts” the matter with me?

I think I may in for a “shock” which I must say is “revolting”.

I think I may be in for an “electrifying” experience!

On the other hand, she’s probably earned her way through the Costco size pack of 9 volt batteries and then some. There are times when her halo gets in the way too.

Dave

I realize that many, if not all members don’t sign their posts. It’s a habit that was ingrained in me decades ago so my intent is to continue to do so unless it violates a rule or offends anyone in any way. If so please don’t hesitate to say so.

greaterexp profile image
greaterexp in reply to guitarguy

Signing off with your name is perfectly fine! Some folks don't feel comfortable using their real names online, but please do what makes you most comfortable.

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