Good news, bad news, and next steps - My MSAA Community

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Good news, bad news, and next steps

anaishunter profile image
14 Replies

The exciting good news for me is that I've been able to walk non-stop for miles and hours (6+) this weekend with no symptom whatsoever. Last summer, I experienced "foot drop" after 30 min or so - this was prior to ms diagnosis.

Not sure what to attribute this to: 1st round of Ocrevus treatment, diet or lifestyle changes (more exercise) or the disease opting to be dormant right now. But I'll take it!

The bad news is that I lost my job at the end of August. I could attribute this to ms to the extent that it was an incredible distraction to me for the past 6 months - symptoms, tests, dx, then learning about all the twists and turns of disease and treatment.

Next step: I see my neuro later today, and I'm confident that I'm on the right track to maintaining a good life for the time being. Finding a job will happen and I'm only going to be stronger because of this unpleasant experience of ms and job loss.

Thank you for this community for helping in the process by sharing an incredible amount of great, first hand experiences and tips.

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anaishunter profile image
anaishunter
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14 Replies
RoyceNewton profile image
RoyceNewton

WOW, that is amazing, you really do seem to be doing the best that you can. So keep it up and keep carrying on, I am impressed.

Royce

SueAB profile image
SueAB

anaishunter, Good for you. It is awesome to hear such great news from a fellow MSer. It always gives us hope to read posts like this!

jimeka profile image
jimeka

Very encouraging. May it continue 🦋

Kenu profile image
Kenu

That’s Great 😁 Nice to hear improvement 👍🙏🐾Ken

kdali profile image
kdali

Hooray on the walking! Maybe it was your job stress making your MS act out? I hope you continue to have improvements 🤗🕺

Juliew19673 profile image
Juliew19673

Good for you! My money is on the DMT, diet and exercise. That AND your positive attitude - keep it up!

anaishunter profile image
anaishunter

Yep. I've been feeling so much better since I lost my job. The office job is fighting on the same side as my ms = the wrong side.

Juliew19673 profile image
Juliew19673 in reply to anaishunter

Well said!

erash profile image
erash

Yay! For you. I pray that the good stuff continues...and even gets better 🌈

goatgal profile image
goatgal

Anaishunter The trail ahead will continue to reveal itself in unanticipated ways. But with your positivity, you will take it in stride. Keep going!!!

Johngm profile image
Johngm

I start my first Ocrevus in October. I'm a long time hiker and cross country skier hoping this will help me do some of my favorite things again!

janetb1968 profile image
janetb1968

Well done hun that sounds awesome xxxx

Johngm profile image
Johngm

This is the first sign of good news I've had since I was diagnosed 14 years ago. I start Ocrevus next month and pray I'll able to walk without any assistive devices, John from Chelmsford.

greaterexp profile image
greaterexp

You’re incredible!!! Thanks for sharing your triumphs. I hope the job situation changes to your liking when you’re ready.

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