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My MSAA Community
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How is everyone?

1 - hurricane Florence

2 - fires

3 - Ocrevus

4 - had an accident

5 - picked up a virus

6 - Sciatica

7 - neurologist/doctors appointment

Please can you share how you are all doing. Some of you have even broke your phone or laptop, just drop us a line with how you all are please. It will be good to hear how you are doing. Blessings Jimeka πŸ¦‹ 🍫 🌻

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I have my Rituxan infusion on Thursday. I went down tonight and got my blood work done. I will have to check with the nurse to find out what number this one is. Been a bit more fatigued than my normal and a lot more depressed. I've not been able to move past it. I'm here, alive, and other than feeling blah, I guess I'm doing quite well. Thanks for asking jimeka . Hope all is well on your side of the pond.

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Feel better and cheer up🌈😊

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erash how are you after your first Ocrevus? Blessings Jimeka πŸ¦‹ 🍫

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Thanks for asking. Fantastic! Almost walking on water and waiting for the boom to dropπŸ™„but I will take these good days however many they may be 😊

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You would wonder what is in it that makes one person feel terrific, and another really rough. πŸ¦‹

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An MS PT told me not to try to analyze why some days are good and some are bad. I’m sure she’s right but it’s difficult not to try to figure out rhyme or reason. MS is like the weather. Can’t predict it and always changing 🌦🌈

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TouchΓ© πŸ¦‹

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that's wonderful, I am happy you are having a such a good experience with O

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thank you

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Why are you bummed? MS_Indestructible πŸ€” the weather? The season? Did Doubled51 steal your hot wheels again? 😞

Don't fall to far, it's not a good place to be. And we all care! And guess what????

Holloween is next month!!! πŸŽƒπŸ‘»πŸŽƒπŸ€£

πŸ€—πŸ’•πŸŽƒ

J🌠

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You know how I am with Hot Wheels.πŸ˜…πŸ˜‚πŸ˜‚πŸ˜‡

Donnie

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wow you made my day, I forgot about Halloween, I've got to think of some real great ways to scare the be-gibbers out of the local kids.

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just the ms...time for my 6 month infusion on Thursday, I should feel much better afterwards. Nope I hid my Mustang but now I got to find it. Depression has been my long time foe. We know each other too well. I can't figure which I hate worse. The depression or the fatigue, seems like ms doubled down on me with these two.

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Hi Terry, sorry you are feeling blue. There must be something in the air, as quite a few of us are feeling alittle low. I hope the infusion goes well on Thursday, and it gives you a kick start. Let us know how it goes, Blessings Jimeka πŸ¦‹ 🌈

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thank you, it must be something in the air, traveling far and wide. I sure will. I'll ask the nurse how many sessions I've had now. Quite a few I know

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I hope you pull out of the blahs soon. Please don't keep those feelings to yourself and let your doctor know if it starts getting too difficult. I know you know this but wanted to let you know we care, too. I'm preaching to the choir, as they say, I suppose. Best wishes...

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thank you. I have two really good doctors [psychiatrist and psychologist] that work with me. I can email them and they respond very quickly in relative terms

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That's awesome! Relative terms....I understand that! Sometimes my expectations of timelines vary drastically with what actually happens. I still haven't mastered patience.

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Never pray for patience! πŸ¦‹

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i know, right?? I feel like God has been giving me serious lessons in patience and I still fail pretty miserably.

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So do we all. πŸ¦‹

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Thank you for doing this post jimeka 🍫 and I would tell ya, but then I would have to kill ya.πŸ˜’πŸ˜žπŸ˜­

Went to the doc's yesterday, PCP because I have friggen thrush.😟 And laryngitis. πŸ˜’ I have been sick for a month. And where did all this come from you ask? Cause I did.😭

The steroids did it. 😑😭 And I tried so hard not to get sick! Grrrr

On the plus side, I started on making Christmas presents.πŸ€£πŸŽƒ

Oh yeah, found out also that my eye Dr never sent my reports to my PCP or my Neuro.😑

Hope everyone is doing better than me!!!☺️

πŸ€—πŸ’•πŸŽƒ

J🌠

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Thanks for asking, saw a Nutritionist last week to figure out my drastic weight loss and she thought I need to add in more meat protein. I've gained 5 ounces - it's a start! I also got a Fitbit to see what I dont.

Hope everyone has a great Day!!

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Wishing you well in your goal to gain weight. It sounds like you are going about it much more logically than I did. My doctor had been concerned about my low weight. I gained much of it back by eating Publix ice cream!! Lots of it. Actually, I stopped taking Topamax, too. That was probably what helped most. I hope your nutritionist helps you to figure out what works best for you to get you back at a healthy weight.

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Yes - nutrionist said ice cream as well, which I do eat, just not often enough. I

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Juliew19673 As soon as I figure out how to wrap them, I'd be more than happy to share a pound or two with you!

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How can you possibly have a pound or two to share, you are always on the go and eat so naturally, unless you mean a pound of plaster off your leg! Lol πŸ˜‚ how are you today? Blessings Jimeka πŸ¦‹ πŸ€—

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Jimeka Sue dear, I am no sylph! Muscles weigh more than flab, so maybe that's it...but bless those 50# feed sacks and all the outdoor work. Its given me a head start on what lies ahead. The plaster cast is heavy and I will welcome its removal, but in the meantime it will strengthen my quads. In the meantime, I am learning new tricks. 😏

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Went to Neuro yesterday and he wanted to know if I wanted to do more MRIs and possibly change DMTs. But I talked him into waiting til Jan because I might have found an MS Specialist 20 miles from my home which would be awesome. Just have to check insurance and see if he’s taking new patients. That would be so awesome.

Donnie

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hope the new Doc will work out for you. Closer is always better

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Just my luck. He’s not covered by my insurance. But why would I think any different.πŸ˜€πŸ˜€πŸ˜€

Donnie

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Oh no, surely under the circumstances of your health, they would cover him. So sorry. There must be someone better than him? Blessings Jimeka πŸ¦‹ 🍫 πŸ€—

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We’re still looking jimeka . Haven’t given up.

Donnie

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I’m great! I marked my calendar for when my body would clear Ocrevus and started an extended fast. I’ve broken keto a few times before then to see if I really do feel better, sleep better, etc and I do πŸŽ‰πŸ•Ί

My neuro wanted me back on amantadine for my legs (duh, I was only thinking it’s for alertness) and it’s helping! I’ve also got a magnesium lotion I’m trying out...it smells nice, I don’t know if it helps πŸ€·β€β™€οΈ I’m back on massage therapy and I hurt for 4 days after my first session back 😭

How are you doing? πŸ€— 🍫

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Thanks, jimeka. The fires in our area are starting to be controlled, and the choking smoke is abating. We still pray for rain!

How are you doing?

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I have an appointment with my ms nurse tomorrow, which is a total waste of time, but if I cancel I won’t get back in if I need to see my neurologist. I have been Charlie sitting or he has been Nanna sitting. He had an ear infection but his ear drum perforated last night so we are having an iPad and movie day. Thank you for responding, it’s nice to know how you are all doing. Blessings Jimeka πŸ¦‹ 🍫

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Aww Bless his heart!πŸ€—πŸ’• I'm sure he is loving all the time he is Nanna sitting!☺️

πŸ€—πŸ’•πŸ¦‹πŸ«πŸŽƒ

J🌠

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He will have square eyes by the end of the day, and I need match sticks all ready! πŸ¦‹ 🦈

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πŸ€£πŸ˜‚πŸ€£πŸ˜‚

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Goodness. I hope he is feeling better soon and you are able to get some quality Nanna time yourself. They grow up so fast. Thank you for being such a caring person. You are a blessing to this group.

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Hey jimeka,

Thanks for asking. I have my infusion and MRI behind me. Today, here in New England, we are feeling the remnants of hurricane Florence. Nothing like NC or SC, so I really cannot complain. Looking forward to a planned trip to AZ in October.

I hope MS_Indestructible will be feeling not so crumbly soon. I get melancholy from time to time, for no apparent reason, and I have a few trusted persons that help me deal with it.

jimeka I pray that you are feeling better as well. Let Charlie spoil his Nanna :-D

Stay Strong, everyone,

Carole

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thank you

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Just remember that you have many in this ms forum, hoping that better days are just around the corner for you ~ :-)

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Thank you for your kind words, it has made a difference in my life today. ~terry

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I’m doing well.

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Thanks so much for your caring heartβ€πŸ’šπŸ’™πŸ’› i am doin ok, got my choco-bears ((canibis)) for any pains, like my new phone it is bigger in size & gbs better than the last one. Love ya! & Prayers for nana's baby!πŸ™---JazzπŸŒΉπŸ’œ

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I have acquired a pet bat...in my house. He's holed up in the corner between my plantation blinds. He needs to leave. He can't stay. I would like to have my den back, even though I never sit in there. Stay tuned for further developments.

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Oh my - as beneficial as bats are - NOT IN THE HOUSE - lol. Hope he leaves soon.

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