Ooncrevus: My neuro and I have decided to... - My MSAA Community

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judymax profile image
20 Replies

My neuro and I have decided to forget O and go back Copaxone since my condition had gotten worse since starting O. Not looking forward to needles again but maybe will keep me from declining more.

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judymax
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20 Replies
Kenu profile image
Kenu

How about going to an oral like Aubagio? One a day no needles 🙏🐾😉 Ken

judymax profile image
judymax in reply to Kenu

My neuro feels that copaxone is better because of no side effects and no need for blood tests every 6 months

Kenu profile image
Kenu in reply to judymax

With Aubagio I do blood test once a year with all my other ones, cholesterol, thyroid, vitamin D levels, etc. Have had no side effects at all. Last two MRI’s were stable and no new lesions 👍. Just a thought it’s been great so far 🙏😉🐾. Ken

Iona60 profile image
Iona60

How long were you on O? Did you have new symptoms?

judymax profile image
judymax in reply to Iona60

Had 2 1/2 doses and two full and have gone down hill since

jimeka profile image
jimeka

Sorry to hear that Judy, but as with all medications, we all react differently. How long were you on Ocrevus? Blessings Jimeka 🦋

ssdw1958 profile image
ssdw1958

Hi this is ssdw1958 could you let me know how that works out for you.

judymax profile image
judymax in reply to ssdw1958

Thanks. Just waiting for insurance approval and hoping it comes before my next scheduled infusion of O on October 10

Gma06 profile image
Gma06

I have been thinking of going back to Plegridy as I feel worse on Ocrevus. I have had 2 complete infusions and not doing as good as I was before. Neurologist convinced me to give it time.

ssdw1958 profile image
ssdw1958 in reply to Gma06

That’s what my neurologist said to me give it time well I am going to receive my 2 year does on November 9th so we will see what happened.

judymax profile image
judymax in reply to Gma06

I know how that goes! I got real tired of going down down down.

erash profile image
erash

Since these DMTs work so differently, I wonder if there is benefit to using combined DMTs? I know there are wash out periods for some before a new one can be started and those can not likely be used simultaneously but others maybe...I think I read a study where they were doing this but can’t recall which DMTs or what the outcomes were thus far.

judymax profile image
judymax in reply to erash

I don't believe my insurance would cover two DMT's ..........sooooooooo expensive!

erash profile image
erash in reply to judymax

Good point

greaterexp profile image
greaterexp

Every one is different, and each DMT is different, that's for sure. I hope you do better with the Copaxone. My neurologist had briefly talked about Ocrevus, but when my last MRI showed no new lesions, and since I haven't gotten "needle fatigue" too badly yet, she recommended I stay on Copaxone for now. As long as it works, I'm great with that. Keep us updated on how you're doing.

Iona60 profile image
Iona60 in reply to greaterexp

I was able to stay on copaxone for ten years.

judymax profile image
judymax

I did really well with copaxone. The only reason I tried O was to get rid of needles...now wishing I would have stayed with it!

lbenmaor profile image
lbenmaor

Sounds like a good plan!

Leslie

37kf80 profile image
37kf80

I was started out on Copaxone then switched to Gilenya due to allergic reactions. Since on Gilenya I've developed new lesions and now they want to switch me to Ocrevus. Copaxone isn't too bad once you get use to injecting yourself. Good luck#

judymax profile image
judymax in reply to 37kf80

I was on copaxone for many years and switched to O....big mistake on my part. Looking forward to going back on copaxone

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