Ocrevus 1st infusion scheduled! - My MSAA Community

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Ocrevus 1st infusion scheduled!

erash profile image
14 Replies

O-day is Sept 14th.

P.S. B/C I missed the opportunity for the Shingrix (shingles vaccine) and b/c O can increase risk of shingles/herpes, and after discussion with the infusion Oncologist, I am going to take Valtrex as a preventive for potential shingles reactivation. It's an option he uses with some of his transplant patients. Valtrex is a relatively safe med with few if any side effects. I like this idea :)

Any good books on tape suggestions for the infusion day?

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erash profile image
erash
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14 Replies
BigMar7 profile image
BigMar7

I am so happy for you! I hope all goes well! 😀❤️

Peruzzot profile image
Peruzzot

I hope it makes you feel better.

Here are some audio books you might like:

We Band of Angles by Elizabeth M Norman

Ada the Enchantress of Numbers and Political Science by Betty Alexander

Wicked Women by Chris Enss

Rise of the Rocket Girls by Nathalia Holt

Liar, Temptress, Soldier, Spy by Karen Abbott

kdali profile image
kdali

🙌🏻🙌🏻🙌🏻

By “on tape” do you mean the audible app? 😵

erash profile image
erash

Yes

kdali profile image
kdali in reply to erash

😂 I like the narrator for Game of Thrones a lot, Roy Dotrice.

jimeka profile image
jimeka

I am so happy for you, I hope it goes well and you see positive affects. Keep us updated, blessings Jimeka 🤗

greaterexp profile image
greaterexp

It's so exciting that you can start Ocrevus! That's a brilliant idea about the Valtrex!

I've heard many folks say they slept through a great deal of the infusion, so I'd bring a book you don't mind sleeping through.

erash profile image
erash

Daily for 3 mos following each infusion

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Way to go erash ! Hoping everything goes great for you! Make sure you let us know how it goes!🤗💕

J🌠

I'm partial to Stephen King.😀

erash profile image
erash in reply to Jesmcd2

S King-Maybe to scary (Miss Shark fan 🙃)

SueAB profile image
SueAB

Erash, So glad that you have a date. You have been a huge part of our community and we all wish you the very best!

Iona60 profile image
Iona60

Yipee!

anaishunter profile image
anaishunter

Good luck. Drink a lot before and just plan to relax or have a fairly passive activity (like watch a movie). The Benadryl will most likely put you into a half sleep (you can't really sleep because they'll wake you up every 30 min to check your blood pressure).

Let us know how it went!

AWESOME news! I'm so happy for you, it sounds like you are so excited. Don't expect too much from the first few infusions. It should be after the first year when you'll notice the best changes. At last you are starting 😂 ~terry

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