New to this community of Fighters! - My MSAA Community

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New to this community of Fighters!

Mymarcus2010 profile image
5 Replies

Im new to the this community...Ive had MS for 10 years, I feel so young at 46 to be now in an active flare that my mri revealed in brain. My feet are numb and burn when I stand too long and numb in my left leg and of course the MS hug has ramped up! Im on nerve pain meds and waiting on my blood work to come back to start a new treatment. I was doing so good for about 4 years and out of the blue this fare has taken me down for months. I've had two steroid treatments and was on Prednisone. Then it ramps back up..ugh frustrating and depressing. I hate to see my family struggle with me. This community encourages me and helps me stay positive..any suggetions?I have changed my diet, etc. Thank you and blessings to you all!

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Mymarcus2010
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5 Replies
greaterexp profile image
greaterexp

I don’t have any really helpful ideas for you, but want to welcome you to a wonderful group. I sure hope you get some relief from your symptoms quickly. It’s hard on you and on your family, too.

I come here to vent when my family can’t really understand. I hope that you do the same.

Iona60 profile image
Iona60

Welcome and sorry that you are stuck in this flare. My only solution is to reduce stress and ride it out. Best of luck.

Jazzyinco profile image
Jazzyinco

Mymarcus2010, a very warm welcome to u, just be patient & let us know how ur blood wrk comes out!😍💗💙💛 Here Your Family too!Blessings & keep on Trucking!🚚---Jazmine🌹💜Rose

hairbrain4 profile image
hairbrain4

Welcome to the community! It's a great place to talk it out when you need to. We may not have the answers you need but we do understand your frustration. I've been going through a new flair this past week. But I am just riding it through. The last flair I had, I did the Solumedrol IV for 3 days and I was so miserable afterward that I'm not going through that again. I've had several of them but that one was horrible. So I am taking it easy and not pushing myself to do any more than I think I can. The world will just have to wait. I am waiting for my appointment for a new treatment of Ocrevus. I am hopeful that it will help.

Mymarcus2010 profile image
Mymarcus2010

Yes..I experienced the same after a 3 day steroid treatment. Awful!!! I will probably start Tysabri for the first time and just see how that goes. I've heard good things about Ocrevus. Take it easy and rest...one day at a time. Blessings to you:)

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