More spasms with Tegretol?: It seems since... - My MSAA Community

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More spasms with Tegretol?

bxrmom profile image
19 Replies

It seems since I started Tegretol last week to help with the spams, they have been more frequent than less...opposite of what it is supposed to do. I take this in addition to my baclofin and & Tizanidine. I tried to look online to see if this is possible but I can't find anything that says it causes more spams. It's frustrating if this is the cause of them to be more frequent. I have my MRI scheduled for tomorrow morning, hopefully, I don't start to have spasms while having it and need to have some scans redone.

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bxrmom
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19 Replies
RoseySawyer profile image
RoseySawyer

Sorry about your spasms. ❤🌷

jimeka profile image
jimeka

Maybe the tegretol works better on its own, and with baclofen, some people find that their bodies get used to it, so you have to keep increasing the dose. Hope the mri goes well and no spasms. Blessings Jimeka 🦋 🍫

bxrmom profile image
bxrmom in reply to jimeka

Never thought of that jimeka and thank you ;)

if you find that tegretol is making your spasms worse, maybe call you doctor before you take it again or until your mri is over.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Umm bxrmom your not helping with the tegretol decision here.🤔 Good luck with your MRI 🤗💕

J🌠🦈

bxrmom profile image
bxrmom in reply to Jesmcd2

Sorry about that Jesmcd2 Just think it's weird that I have been having more spams since starting it. Think I will call my neuro after my MRI and see what they have to say about it.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to bxrmom

Plz keep me posted ok? bxrmom 🤗💕

J🌠🦈

bxrmom profile image
bxrmom in reply to Jesmcd2

I sure will Jesmcd2 Just called my neuro's office as I forgot to call until I saw your message but apparently they are closed for lunch. Will call back ;)

lbenmaor profile image
lbenmaor

Sorry to hear about your spasms. Does your Dr. know?

bxrmom profile image
bxrmom in reply to lbenmaor

Not yet, I'm going to call him tomorrow.

lbenmaor profile image
lbenmaor

Can you call today?

bxrmom profile image
bxrmom in reply to lbenmaor

Just been too busy with my MRI and other stuff going on around the house that I'm going to call tomorrow. I think they have closed by now anyway.

lbenmaor profile image
lbenmaor

Sounds like a good plan.

bxrmom profile image
bxrmom in reply to lbenmaor

Called today and left a message as they must have been really busy. Hopefully, I get a call back with something else that works better.

lbenmaor profile image
lbenmaor in reply to bxrmom

Thanks for letting me know. Good Luck.

bxrmom profile image
bxrmom in reply to lbenmaor

Thanks very much, lbenmaor Will update when I hear something back.

bxrmom profile image
bxrmom

Jesmcd2 This is my Tegretol update today: My neuro's nurse called back today (when I was in the shower of course). My neuro said I could either try taking the Tegretol once a day to see if that makes the spams less, or stop taking it all together but to keep taking the Baclofin. So I think I will skip the morning dose of the Tegretol because I think it has been making me extra tired as well...not every day but some days I seem to be more tired than others lately. That's it for now.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to bxrmom

Thank you bxrmom 😀 I can't take baclfin. And I know when my step son took tegretol he slept all the time. So I'm not real Keen on going on it if and when it's needed. 😐😕 I think I'm going to lean more towards Botox? 😀🤣😂

Keep me posted on it though! Maybe it has to build up? 🤔

🤗💕

J🌠🦈

bxrmom profile image
bxrmom in reply to Jesmcd2

I know it's only been a couple of days but I think only taking it once a day at night might be helping. I will update after I have been on it a little longer.

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